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My DD's Grandma gets that, but she always wants to feed DD something without giving her enzymes. It's hard enough getting her to take her enzymes in the first place, but to try and give her them after Grandma has already handed her a cookie is a joke. <br /> <br />We also have a hard time with...

My DD was diagnosed late at 14 months, and therefore has lung involvement. She started Pulmozyme at that time, but a couple months later began HS. I really think the HS has helped her the most. She was asked to be in the HS study, but I refused because I was unwilling to risk her getting the...

My DD was diagnosed late at 14 months, and therefore has lung involvement. She started Pulmozyme at that time, but a couple months later began HS. I really think the HS has helped her the most. She was asked to be in the HS study, but I refused because I was unwilling to risk her getting the...

My DD was diagnosed late at 14 months, and therefore has lung involvement. She started Pulmozyme at that time, but a couple months later began HS. I really think the HS has helped her the most. She was asked to be in the HS study, but I refused because I was unwilling to risk her getting the...

My DD was diagnosed late at 14 months, and therefore has lung involvement. She started Pulmozyme at that time, but a couple months later began HS. I really think the HS has helped her the most. She was asked to be in the HS study, but I refused because I was unwilling to risk her getting the...

My DD was diagnosed late at 14 months, and therefore has lung involvement. She started Pulmozyme at that time, but a couple months later began HS. I really think the HS has helped her the most. She was asked to be in the HS study, but I refused because I was unwilling to risk her getting the...

I know how you feel. It has been a year now since my DD's diagnosis. I freaked out originally and still do at times, but you will find that you just can't control everything. I was afraid to let my DD play outside for a while and tried buying things that would allow her to get exercise indoors...

I know how you feel. It has been a year now since my DD's diagnosis. I freaked out originally and still do at times, but you will find that you just can't control everything. I was afraid to let my DD play outside for a while and tried buying things that would allow her to get exercise indoors...

I know how you feel. It has been a year now since my DD's diagnosis. I freaked out originally and still do at times, but you will find that you just can't control everything. I was afraid to let my DD play outside for a while and tried buying things that would allow her to get exercise indoors...

I know how you feel. It has been a year now since my DD's diagnosis. I freaked out originally and still do at times, but you will find that you just can't control everything. I was afraid to let my DD play outside for a while and tried buying things that would allow her to get exercise indoors...

I know how you feel. It has been a year now since my DD's diagnosis. I freaked out originally and still do at times, but you will find that you just can't control everything. <br /> <br />I was afraid to let my DD play outside for a while and tried buying things that would allow her to get...

My daughter wasn't old enough to do PFTs when she started HTS, but they did bring her in to watch her during her first dose to see of she would tolerate it. Apparently some people experience broncial spasms with it.

That's wonderful!! Congratulations!

That's wonderful!! Congratulations!

That's wonderful!! Congratulations!

That's wonderful!! Congratulations!

That's wonderful!! Congratulations!

My daughter has been on Hypertonic Saline since around 16 months. She was asked to do the ISIS study by her clinic, but I refuse take her off it. It's a blind study, so we wouldn't know if she were getting the HS or placebo. I saw a bigger difference in Reagan starting HS than when she began the...

My daughter has been on Hypertonic Saline since around 16 months. She was asked to do the ISIS study by her clinic, but I refuse take her off it. It's a blind study, so we wouldn't know if she were getting the HS or placebo. I saw a bigger difference in Reagan starting HS than when she began the...

My daughter has been on Hypertonic Saline since around 16 months. She was asked to do the ISIS study by her clinic, but I refuse take her off it. It's a blind study, so we wouldn't know if she were getting the HS or placebo. I saw a bigger difference in Reagan starting HS than when she began the...