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His name in Mark too.

Welcome Mark. I watched your video and thought that you must be from the IE when you mentioned San Diego and LA being the closest clinics. Image my surprise when I clicked on your profile and saw you live in SJ. I grew up in SJ! Anyway, welcome and keep up the good work!

So does this mean that your son does not have G511D either? If he DOES in fact have this gene, and it did not come from you, that means he has a 2nd cf gene mutation from you. Your signature line says he is a symptomatic carrier but if he does have the G511D mutation he may actually have CF.

Like I said, I don't know how it is packaged, but I have experience with vancomycin. That is packaged in vials (small glass bottles) that have a rubber stopper, a metal ring around the top, and a plastic cap. If we were using the whole vial, we could remove the metal ring with pliers. This...

We don't use Tobi, so I'm not sure if this is possible. Can the solution be drawn from the bottle with a sterile needle? That way it remains unopened and "sterile" and should be able to be used again. Just use a new sterile needle every time. Like I said we don't use Tobi, so I don't know...

We use the Mobilaire also. Albuterol and Hypersal we do at 30 psi, Pulmozyme at 25 PSI. We don't do TOBI, but I believe that is supposed to be at 25 PSI.

My husband is only a CF carrier (verified by Ambry sequencing and sweat test), yet he has symptoms. He sees a pulmonologist every 6 months and does many of the same treatments as my daughter with CF. He does have bronchiectasis but neither he or my daughter culture PA or MRSA (only normal...

8 yo with pancreatic insufficiency, fighting for genetic sequencing <div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Julie7</b></i> this dr sees my son as otherwise healthy, especially from a lung function standpoint, he said to me that kids who have CF and present at this late age...

Great, thanks! Just had it done today, so have not been allowed to eat/drink yet. I will be able to eat/drink in a couple hours (just clear liquids) so hopefully I'll feel better soon.

Great, thanks! Just had it done today, so have not been allowed to eat/drink yet. I will be able to eat/drink in a couple hours (just clear liquids) so hopefully I'll feel better soon.

Has anyone had stomache cramping after a g-tube placement? Overall the site feels fine, just a little sore, but getting some severe cramping where the stomache muscles tighten breifly and then relax. If you had this symptom, how long did it take to work out?

Has anyone had stomache cramping after a g-tube placement? Overall the site feels fine, just a little sore, but getting some severe cramping where the stomache muscles tighten breifly and then relax. If you had this symptom, how long did it take to work out?

We use one similar to the Avent IQ24, but it certainly wasn't $250 when we bought it! I think we paid around $85. I think your best option would be the other Avent electric sterilizer. It seems to be their new design. Maybe since the IQ24 is in short supply, retailers have jacked up the...

We use one similar to the Avent IQ24, but it certainly wasn't $250 when we bought it! I think we paid around $85. I think your best option would be the other Avent electric sterilizer. It seems to be their new design. Maybe since the IQ24 is in short supply, retailers have jacked up the...

It does seem like a rather small dose. I don't know how much she weighs, but my 100 lb daughter can take up to 5 creon 20 with each meal, add in a few for snacks and she is taking up to 20 creon 20 a day. You state she takes it 3 times a day, is this at each meal? Creon needs to be taken when...

It does seem like a rather small dose. I don't know how much she weighs, but my 100 lb daughter can take up to 5 creon 20 with each meal, add in a few for snacks and she is taking up to 20 creon 20 a day. You state she takes it 3 times a day, is this at each meal? Creon needs to be taken when...

Excerpt from vertex web site: http://investors.vrtx.com/releasedetail.cfm?ReleaseID=644158 "For eligible patients, the program also includes the following: Free Medicine Program: Vertex will provide KALYDECO for free to people who do not have insurance and have an annual household income of...

Excerpt from vertex web site: http://investors.vrtx.com/releasedetail.cfm?ReleaseID=644158 "For eligible patients, the program also includes the following: Free Medicine Program: Vertex will provide KALYDECO for free to people who do not have insurance and have an annual household income of...

If you didn't know, Disney has First Aid stations at each park. You can store any medical equipment with them if you don't want to carry it around. They can even provide a space to do treatments if you need it.

If you didn't know, Disney has First Aid stations at each park. You can store any medical equipment with them if you don't want to carry it around. They can even provide a space to do treatments if you need it.