Search results

Some extraverted CF'ers seem to be doing ok in this area but I think if you have some disposition of being introverted then CF is almost a sure way for a person to end up a quirky loner. For me there seems to be always this duality in socialising. One, people don't know about my CF and I can...

To me the 18 year thing sounds like a strange thing to say or atleast seriously outdated. We're all too different for that. Some will just stay reasonably healthy into their 40's while others need new lungs when they're 15. Absolutely no point in getting hung up on any random numbers. It's...

Hi there, It's possible but it seems to have one of those standard sideeffects lists and the statistics for each to occur are pretty low. Antibiotics, having infections, malnutrition of many sorts, could also be at fault. Weakness is very common with CF because when we feel crappy/almost...

Yes main cause antibiotics but also nebbing, malnutrition, just being sick, eating loads of sugary food, throwing up a lot, so on. There are better whitener toothpastes now that can be safely used everyday and it makes a difference for me. If they are old enough to use regular toothpaste they...

Read my post again? Also, one's absorbtion of nutrients generally doesn't suddenly hugely change from one day to the next so if you're planning on gaining or losing weight you pretty much know what you're up against.. The calories thing makes it a lot easier to understand. I'm PI myself...

My brain turned this around into the right order automatically and so it read: Acidic CF sweat that is resistant to Metals?? And I was going to say NO, CF sweat especially, starts to spin violently in circles when Odin strikes his electric guitar. \m/ >_< \m/ OT. Titanium, platinum...

Cool! Subbed.

The body does not run on air so there's not really any way around calories in, calories out. Ofcourse how our CF bodies take in those calories might be a slightly personal and different story. Also for example there can be some degree of bloating and for example carbs can be a cause of that so...

Indeed headaches, lack of clarity, tingly and tunnelvision. And for me the heart is also a good indicator. It will eventually get overtired from lack of oxygen and start to object with irregular beating and chestpain. When I really went too far I'll also have that chestpain and irregular...

Hi there, sorry to hear you're in such a rough spot. It's hard to give worthwhile advice but to listen to what you have to say. Setbacks are so hard to take when you fight so hard. On the other hand each day that we're around is a won fight on it's own that we can be very proud of. It's...

Hi there, To lose weight or to keep it on it's basically as simple as calories in..calories out. So if you eat less then what your body needs throughout the day you'll lose weight, and if you eat more then that you gain. Factoring in activity, being sick, etc. For this purpose it doesn't...

Hi there, Running and to a lesser extent walking is just hard on the knees and some other joints anyway you look at it. Your step and shoewear have to be spot on to not get problems and even healthy regular runners tend to develop all sorts of problems and often. Used to be a regular...

Nope, at 72 you'd think someone would know MUCH better. Even worse, you pick a "fight" in any other thread you see LeChampion post in, derail and ruin it. Quite childish as well as very poor internet etiquette. Besides, taking a look at that posthistory (everyone enjoys some drama right.)...

Yeah surprise projectile mucus is a good one. There's the cleaning-out-the-mucus-cup-at-the-end-of-the-day-or-whatever-you-put-your-mucus-in moment. Some days it get's stuck in there even after flushing with water and then this long strand is hovering and there's nothing to do but wait for it...

Well done getting your fev1 back up! Sometimes it's possible to get it up even higher, if you were not at your strongest and lungs were not clear. Or if that's just what your lungs are like now, when you were not sick and lungs were clear when you got 42. (Luckily, 42 is also the answer to...

Hi there, don't try to go overboard in the learningprocess. You'll learn more day by day, year after year or as things come up for your daughter. If you try to read everything you can way ahead of time you run the risk of overwhelming and greatly scaring yourself while many things do not even...

So first God is everywhere and hears everything, but then he's absent. God creates everything and does everything for a purpose, but then he's absent and did not create CF? CF has been around long before the mayor monotheïstic religions came to be. Who created it back then? Was it these...

Could tell her not to worry too much. Education is slightly overrated and if health gets in the way of her education that still won't keep her from finding her way in life. I've been at home a lot but learned a lot more at home through devouring my parents old fashioned huge encyclopedia...

Antibiotics mess up our body in some ways besides some bugs they are supposed to mess up yeah. I'm also a member of the 30%'s club but feeling like crap and not exercising is a vicious circle for me. So now I'll exercise through anything, fever, flu, I'll still try to pick up some weights.. And...

Hospitalisations and IV's just get in my head that "I'm sick right now" and it used to just make me extra careful with or just neglect exercising and maybe even neglect some of my usual daily activities and so end up losing a lot of strength and energy while it's supposed to be the other way...