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  1. J

    Blood Clot in vein from Picc

    Interesting that doing it in IR is so much easier for you! Mine usually took multiple attempts, but the time I had it done in IR, they worked for 3 hours and finally placed it in the vein they said was their last option. I left with cuts and bruises all the way up both arms from elbow to...
  2. J

    In the hospital- cough has not gone away since last Nov.

    Blythe, Sorry to hear your daughter is having such a hard time. When I go through times where my cough just won't back off, cleaning out via bronchoscopy is the one thing that seems to give me some relief. I've read where some people have said it wasn't a good thing for them as they had...
  3. J

    In the hospital- cough has not gone away since last Nov.

    Blythe, Sorry to hear your daughter is having such a hard time. When I go through times where my cough just won't back off, cleaning out via bronchoscopy is the one thing that seems to give me some relief. I've read where some people have said it wasn't a good thing for them as they had...
  4. J

    In the hospital- cough has not gone away since last Nov.

    Blythe, <br /> <br />Sorry to hear your daughter is having such a hard time. When I go through times where my cough just won't back off, cleaning out via bronchoscopy is the one thing that seems to give me some relief. I've read where some people have said it wasn't a good thing for them as...
  5. J

    The Vest

    I do 10 minutes in the morning and 30 in the evening with 3 different settings (decreasing pressure for each, increasing frequency).
  6. J

    The Vest

    I do 10 minutes in the morning and 30 in the evening with 3 different settings (decreasing pressure for each, increasing frequency).
  7. J

    The Vest

    I do 10 minutes in the morning and 30 in the evening with 3 different settings (decreasing pressure for each, increasing frequency).
  8. J

    7% saline

    If you're not able to get it from Foundation Care Pharmacy, you might see if you can get it the way I do. I'm not really sure why my pharmacy doesn't order the pre-mixed stuff for me, actually. They get me vials of 14% (to be exact, it's 14.6 or something like that) saline which are made to be...
  9. J

    7% saline

    If you're not able to get it from Foundation Care Pharmacy, you might see if you can get it the way I do. I'm not really sure why my pharmacy doesn't order the pre-mixed stuff for me, actually. They get me vials of 14% (to be exact, it's 14.6 or something like that) saline which are made to be...
  10. J

    7% saline

    If you're not able to get it from Foundation Care Pharmacy, you might see if you can get it the way I do. I'm not really sure why my pharmacy doesn't order the pre-mixed stuff for me, actually. They get me vials of 14% (to be exact, it's 14.6 or something like that) saline which are made to be...
  11. J

    Blood Clot in vein from Picc

    I also was only sutured once, and it was in IR as well. At least it was in the correct place but was irritated and miserable the whole time. My other PICCs were all placed in my hospital room. They rarely went well for me, but none of them were anywhere near as bad as the one placed in IR...
  12. J

    Blood Clot in vein from Picc

    I also was only sutured once, and it was in IR as well. At least it was in the correct place but was irritated and miserable the whole time. My other PICCs were all placed in my hospital room. They rarely went well for me, but none of them were anywhere near as bad as the one placed in IR...
  13. J

    Blood Clot in vein from Picc

    I also was only sutured once, and it was in IR as well. At least it was in the correct place but was irritated and miserable the whole time. My other PICCs were all placed in my hospital room. They rarely went well for me, but none of them were anywhere near as bad as the one placed in IR...
  14. J

    Any ideas on this?

    At my PFT on Monday, I learned my FVC and FEV1 have both dropped by over 20%, putting me at 60%.  Although it was worse than expected, I knew thing haven't been right recently.<br><br>About a month ago, I became suddenly short of breath and had a rather severe pain between my left shoulder and...
  15. J

    Any ideas on this?

    At my PFT on Monday, I learned my FVC and FEV1 have both dropped by over 20%, putting me at 60%. Although it was worse than expected, I knew thing haven't been right recently.<br><br>About a month ago, I became suddenly short of breath and had a rather severe pain between my left shoulder and...
  16. J

    Any ideas on this?

    At my PFT on Monday, I learned my FVC and FEV1 have both dropped by over 20%, putting me at 60%. Although it was worse than expected, I knew thing haven't been right recently.<br><br>About a month ago, I became suddenly short of breath and had a rather severe pain between my left shoulder and...
  17. J

    Cayston Donation

    I do Tobi, not Cayston, but a friend of mine with cf uses Cayston and would like to have it if it's still available. I'll PM you her address. Thanks!
  18. J

    Cayston Donation

    I do Tobi, not Cayston, but a friend of mine with cf uses Cayston and would like to have it if it's still available. I'll PM you her address. Thanks!
  19. J

    Cayston Donation

    I do Tobi, not Cayston, but a friend of mine with cf uses Cayston and would like to have it if it's still available. I'll PM you her address. Thanks!
  20. J

    Pic lines

    My first picc line was because oral antibiotics just weren't taking care of the problem at that point. However, for a while I was still sometimes able to use them. We would try oral antibiotics first. If they didn't work, I would do IVs with a picc line. Actually, cipro or levaquin still...
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