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If you participated in the CCP for Kalydeco, when did you start it? Thanks.

If you participated in the CCP for Kalydeco, when did you start it? Thanks.

I didn't know there was such a thing as inhaled Fortaz.

I didn't know there was such a thing as inhaled Fortaz.

Correct Jen--when you are eligible for extra help, medicaid kicks in, and home IV's are covered. If you are only receiving SSDI+medicare, home infusion is not covered. I do have a secondary private insurance but I was still hoping to get the copays/out of pockets covered....no such luck...

Correct Jen--when you are eligible for extra help, medicaid kicks in, and home IV's are covered. If you are only receiving SSDI+medicare, home infusion is not covered. I do have a secondary private insurance but I was still hoping to get the copays/out of pockets covered....no such luck...

thx. that's what I have found as well. they cover the nurse visits (which I don't use) but not the actual drugs.

thx. that's what I have found as well. they cover the nurse visits (which I don't use) but not the actual drugs.

If you get your home IV/infusion services covered by MediCARE please tell me which part covers it? A,B,C or D I have been told that Medicare does not cover home infusion AT ALL. Thank you for your help!

If you get your home IV/infusion services covered by MediCARE please tell me which part covers it? A,B,C or D I have been told that Medicare does not cover home infusion AT ALL. Thank you for your help!

I think it depends on the patient whether or not he or she would continue with treatments. As with Brady, he is young enough that he has no damage and is slowly decreasing his treatments as time goes on (g551d). Each patient would probably have to use their judgment with their doctor's...

I think it depends on the patient whether or not he or she would continue with treatments. As with Brady, he is young enough that he has no damage and is slowly decreasing his treatments as time goes on (g551d). Each patient would probably have to use their judgment with their doctor's...

I agree. 5% doesn't sound too life shattering or significant enough--that is the reason they began the 661 trial.

A phase 3 for 770/809 could be a good indication. We won't know more until mid 2012. Though this release sounds promising.

Thanks for posting this update! Here is the link for anyone who wants to read it from the web. http://investors.vrtx.com/releasedetail.cfm?ReleaseID=670755

Thanks for posting this update! Here is the link for anyone who wants to read it from the web. http://investors.vrtx.com/releasedetail.cfm?ReleaseID=670755

I have had one for 5 years and access it myself. I don't care about how it looks as long as I can cover it up.

I have had one for 5 years and access it myself. I don't care about how it looks as long as I can cover it up.

If you intend to try Kalydeco as a DDF508 or other mutation, then you'll need to find a doctor who will write the script for it. There are doctors that are out there that ARE writing the script no matter the mutation. Just as Amy said, most people just take 'no' for an answer and stop trying...

If you intend to try Kalydeco as a DDF508 or other mutation, then you'll need to find a doctor who will write the script for it. There are doctors that are out there that ARE writing the script no matter the mutation. Just as Amy said, most people just take 'no' for an answer and stop trying...