Search results

  1. M

    Embarrassing issue with cf

    I think it happens to more 'normal' people than we really know. They just don't talk about it or have forums to discuss such issues. You are definitely not alone.
  2. M

    Voice

    My voice is terribe! (though others might not even notice). It gets hoarse, skratchy, squeeky, nasaly, high-pitched, all at the same time. Its probably the most unattractive thing one could possibly imagine. I think its pretty funny sometimes how absurd I sound. The weird thing is people who...
  3. M

    Obama & Healthcare

    socialized medicine is not for the us. they cannot run social security and medicare correctly. they need to FIX the system that is ALREADY set up. NOT CREATE A NEW ONE.
  4. M

    update on finding of Ataluren FDA approval

    "The FDA and the European Commission have granted ataluren Orphan Drug status for the treatment of nonsense mutation cystic fibrosis and nonsense mutation Duchenne and Becker muscular dystrophy. The FDA has also granted ataluren Subpart E designation for expedited development, evaluation, and...
  5. M

    Mucus?

    do you mean hard as in difficult or hard as in texture?
  6. M

    Atalauren

    They must have been eager to compete with recent Vertex results.
  7. M

    neb machine

    Its the machine (compressor). They only last a year or so and are FAMOUS for this problem. Call the manufacturer and tell them it doesn't work. They should send out a replacement one. Is it made by Pari? If so, they are very good about mailing out a new one right away with a UPS label to return...
  8. M

    I need your input please

    Depends on how you are feeling and if things are improving. If there is no improvement after a week and you are still feeling crummy, I would stay in the whole two weeks. Supposedly there have been studies to show that staying in the hospital for the full course of IV's has better outcomes...
  9. M

    Intravenous Ozone has greatly helped my sinusitis

    So I take it this is not something covered by insurance?
  10. M

    Who cooks?

    yum. i love seeing what others eat and hearing their recipes. soooooo goooood.
  11. M

    Good portable concentrators?

    I bought an Inogen which is handy to have for travel. Beware it is not for night time use. Its on-demand, not constant flow. I bought with the original purpose of having it for night time but it just doesnt work well enough for night time sleep for me. So I still use a regular concentrator for...
  12. M

    Intravenous Ozone has greatly helped my sinusitis

    this does not sound like a reliable medicine.
  13. M

    770+809 clarification

    thanks for posting. In the last paragraph of this article, it says this new data is stronger than the past data it released.. Which does not make sense given that the stock dropped.... or maybe the stock dropped simply because there was information incorrectly reported which makes the data look...
  14. M

    MediCARE participants who receive home infusion services

    Yeah, i am pretty sure that's what I meant-that medicaid pays for home IV's--not medicare. anyhow, medicaid is need based. our income is substantial and i wouldn't qualify. thanks for offering to help though.
  15. M

    weird symptoms near my port

    they can do an xray and/or cat scan to check on the port. its better to be safe than sorry.
  16. M

    weird symptoms near my port

    they can do an xray and/or cat scan to check on the port. its better to be safe than sorry.
  17. M

    Appartments & smokers....

    i lived in an apt building once where the people above me smoked. the smoke carried right through the air conditioning/heat ventilation system and into our apt. it was horrible. does that particular apt complex have a building that is smoke free on the premises? you may want to move because its...
  18. M

    Appartments & smokers....

    i lived in an apt building once where the people above me smoked. the smoke carried right through the air conditioning/heat ventilation system and into our apt. it was horrible. does that particular apt complex have a building that is smoke free on the premises? you may want to move because its...
  19. M

    Rallying the troops.... we need to get together on this

    when insurance companies start backpedaling and stop covering drugs that people have already taken and showed benefit from....this is what concerns me. why is there no regulation to allow patients to keep taking medication if there has been significant improvement? why can the insurance...
  20. M

    Rallying the troops.... we need to get together on this

    when insurance companies start backpedaling and stop covering drugs that people have already taken and showed benefit from....this is what concerns me. why is there no regulation to allow patients to keep taking medication if there has been significant improvement? why can the insurance...
Top