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anyone attempting to get pregnant on Kalydeco? have they told you NOT to get pregnant on Kalydeco?

be thankful he can take it.

there has to be a clause that allows for discharge if you are disabled. have an attorney look at the paperwork to go over everything you signed.

why are there so many duplicate posts? I stopped reading these forums because it is really annoying. Am i the only ones seeing double posts? Is it being worked on?

Gymnastics is also my FAVORITE sport to watch in the olympics. I also watch equestrian jumping. Did you know there is a 65 year old olympian this year? He is an equestrian rider!

i can't take it anymore. I get flushed, short of breath, difficulty breathing, increased heart rate. They say it is an allergy.

That is a story worth sharing!

It is awesome that your LFTs are normal! Are you going to post any info on your PFTs? Are they at least holding steady or has there been any improvement? I know its still early and we still don't won't know if these results would be long-term, but it would be of great value to those who are...

No, I am referring to the 770/809 cobmo EAP. I am not interested in getting a script for the Kalydeco.

phase 3 has not started yet. next year.

How do I find out if the drug has a compassionate use clause?

Has anyone participated in an expanded access program? Is it true the dr has to be the one to initiate the request through the company? I thought that expanded access was a separate program that had to be approved by the fda and then physicians would provide the company with a list of names who...

who initiates the patient to begin the compassionate care program? the company in a formal request to the FDA or the physician sends a list of names to the company? thx!

Initially, it was difficult for me too. You'll get used to it over time.

We should be ENCOURAGING one another to do research, use ALL available communication options, share our thoughts as well as findings and it is a shame if we try to prevent it.

I think I missed something.......can we say there is a bit of drama here?

I heard their children's program was good. I commuted to St Louis Univ hospital for adult care because I did not find KU med center good.

I have about had it with CF Services Pharmacy. Their customer service reps are anything but competent. I have given them many chances and tried to be 'patient'. I would rather give my money or my insurance money to CF Svs Pharmacy. But their service is terrible. I am going to give up. What are...

Exactly. Why don't people know the facts? I need to do more research but I was just giving my personal experience of our gov't and how it is currently running. Badly.

Lobbyists are the reason that consumers do not know what garbage goes into their food to start with. The processed food companies who have billions of dollars pay lobbyists to change the laws (by persuading congress) and THEY are the ones who get the system set up the way THEY would like it to...