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  1. M

    cfrd/i-port

    After doing some research, I found out that the i-port medical device was approved for use about two weeks ago. If you have CFRD and do NOT use an insulin pump(instead administer injections with each meal), you may want to ask your medical provider about this device. It looks to be something...
  2. M

    cfrd/i-port

    Has anyone tried the i-port? Its for insulin injections. I was wondering how it worked if anyone has tried it. For some reason i can't stand the thought of an insulin pump so i do 4 shots per day but i keep getting bruised legs. with summer approaching, i thought this may be easier to use...
  3. M

    prednisone

    thanks a lot Steve. Thanks for sharing your story. Inspiring.
  4. M

    prednisone

    sorry, i misread your posts. i am on 5mg in the am only since tx 1+ year ago.
  5. M

    prednisone

    Great thanks. me too
  6. M

    prednisone

    do you mind sharing what post-transplant dosage you are currently on? thx
  7. M

    kidneys and water

    Have any doctors or research shown that drinking more water helps prevent kidney disease after transplant?
  8. M

    Safety Precautions After Transplant

    You can't get too creative when it comes to following protocol for germ prevention. I also had a tx about a year ago. I don't go to movies, don't go to restaurants after 5 pm, stay away from children, avoid malls after 3 pm, wear gloves at the gym, and have someone else do the grocery shopping...
  9. M

    pregnancy after tx

    Thank you!
  10. M

    Run the NYC Marathon for TEAM BOOMER - FIGHTING CYSTIC FIBROSIS!

    How much is it to run? I couldn't find that info there. Do u have to raise a certain amount?
  11. M

    Transplant and emotions

    Life support and ecmo were before tx. I was off the ventilator within a couple days after surgery. For some reason, one of the meds was causing severe muscle pain after tx. Once the med was stopped, I was magnificently better. It was hard for ME because I had lost so much muscle mass and I...
  12. M

    Transplant and emotions

    Got a tx in jan. It came quickly. I was on the list for less than 2 weeks. My lungs failed rather fast. I am soooooo glad I did it. I was too out of it to be scared. After it was so difficult for me to recover. I had lost 20 lbs-got down to 89. Make no mistake, this recovery is not a walk in the...
  13. M

    pregnancy after tx

    Has anyone on here gotten pregnant after a tx? I know people have, just wondering if any of them are on this forum.
  14. M

    3 months Post Transplant...

    I am thrilled to be running!! Nothing can compare to breathing EASILY!!
  15. M

    Were u on soc sec before transplant?

    Were u on soc sec disability before transplant and if so, When where you cut off from benefits after transplant? How did they find out u got a tx? Thx!
  16. M

    new disability law determining soc sec benefits

    Does anyone know when soc sec was going to make the proposed changes for determining soc sec benefits?
  17. M

    How did your decline go?

    For me it was super quick though I knew it would come eventually. I was compliant 99.9% of the time. Iwas holding steady at about 35% for a couple yèars with reg hospitalizations and o2 at night. I went in for my reg iv treatment and suddenly started having severe pain and my body was...
  18. M

    Perfumed People

    I once had to leave xmas eve church service because the woman in front of me smelled so bad. The smell was so strong that when my husband and I went to bed, I made him take a shower because the smell was in his hair!! I wish people were more considerate.
  19. M

    new lungs

    I haven't been here for a while but I wanted to share I got new lungs on jan 4! I highly encourage anyone who has low lung function to be evaluated if you even consider transplant as an option. I had no idea it was time. I went in the hosp thinking it was a reg iv treatment but I went downhill...
  20. M

    transplant and ssdi

    Have you had a transplant, and if so did you receive ssdi before the tx? Are you still getting ssdi? If not, when did it stop?
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