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my o2 sats dropped quickly when i was under and i kept coughing (go figure) while they were trying to get the scope down the throat to look at my heart. i woke up with the anesthesiologist yelling at me and telling me he couldn't get the scope down my throat. meanwhile while i was waking up, i...

my o2 sats dropped quickly when i was under and i kept coughing (go figure) while they were trying to get the scope down the throat to look at my heart. i woke up with the anesthesiologist yelling at me and telling me he couldn't get the scope down my throat. meanwhile while i was waking up, i...

Interesting. Last week I had my genotyping done to confirm my mutations. My first genotyping was done in the 1990s. I want to be doubley sure of my mutations with all these new drugs coming out......

Interesting. Last week I had my genotyping done to confirm my mutations. My first genotyping was done in the 1990s. I want to be doubley sure of my mutations with all these new drugs coming out......

you can receive ssi if your income is very small (below their guidlines). Then you would probably qualify for your state medicaid program which pays for almost all your scripts. The first step is to go to your local dept of social services AND social security office and apply in person. tell...

you can receive ssi if your income is very small (below their guidlines). Then you would probably qualify for your state medicaid program which pays for almost all your scripts. The first step is to go to your local dept of social services AND social security office and apply in person. tell...

I think Lauren has some valid points. 770 was created for one mutation. The FDA approved the drug for that ONE mutation. It is hard not to become emotional about these issues but I believe that the FDA can choose to make the approval process longer if we step in and start trying to change the...

I think Lauren has some valid points. 770 was created for one mutation. The FDA approved the drug for that ONE mutation. It is hard not to become emotional about these issues but I believe that the FDA can choose to make the approval process longer if we step in and start trying to change the...

thank you for the link. I tried to complete the form, then it asked me to verify with an email confirmation, which I did, but it doesn't say if the letter got sent. Once i have a login, where do i go to send this letter?

thank you for the link. I tried to complete the form, then it asked me to verify with an email confirmation, which I did, but it doesn't say if the letter got sent. Once i have a login, where do i go to send this letter?

I ate out A LOT to gain weight. Its expensive but its the only thing that worked for me. I could eat foods I loved and get a big quantity. Then always get a dessert. I had to stretch my stomach slowly. Also ask for butter on the side no matter what you order. And slather it on everything...

I ate out A LOT to gain weight. Its expensive but its the only thing that worked for me. I could eat foods I loved and get a big quantity. Then always get a dessert. I had to stretch my stomach slowly. Also ask for butter on the side no matter what you order. And slather it on everything...

<p style="line-height: 15pt;"><span style="font-family: 'Arial','sans-serif'; color: black;">Stanford University is offering free cystic fibrosis genotyping of the CFTR gene to eligible non-Caucasian, non-Hispanic CF patients. This clinical service is being funded by the CF Foundation (CFF), a...

<p style="line-height: 15pt;"><span style="font-family: 'Arial','sans-serif'; color: black;">Stanford University is offering free cystic fibrosis genotyping of the CFTR gene to eligible non-Caucasian, non-Hispanic CF patients. This clinical service is being funded by the CF Foundation (CFF), a...

thanks SO MUCH for sharing your experiences!

thanks SO MUCH for sharing your experiences!

Oh, and if you participated in the study for kalydeco, did Vertex require you to be genotyped again prior to starting the study to verify they were indeed studying the accurate mutation? (more recently a person was incorrectly genotyped and found out they WERE g551d instead of homozygous f508)

Oh, and if you participated in the study for kalydeco, did Vertex require you to be genotyped again prior to starting the study to verify they were indeed studying the accurate mutation? (more recently a person was incorrectly genotyped and found out they WERE g551d instead of homozygous f508)

Compassionate Care Program. I was wondering if there was anyone on here that started it prior to approval that was NOT in the study and the approximate date they started.

Compassionate Care Program. I was wondering if there was anyone on here that started it prior to approval that was NOT in the study and the approximate date they started.