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this is where you have to be a parent and tell your child what is best for her. she will be sad if she can't take lessons, but in the end, YOU have to live with the consequences. i would not put my child at risk if it was me. there are plenty of other activities and classes or teachers who...

this is where you have to be a parent and tell your child what is best for her. she will be sad if she can't take lessons, but in the end, YOU have to live with the consequences. i would not put my child at risk if it was me. there are plenty of other activities and classes or teachers who...

that's a good question! i wonder if they genotyped everyone who participatedbefore the trials started.......

that's a good question! i wonder if they genotyped everyone who participatedbefore the trials started.......

after reading this post from Angie <a href="http://runsickboyrun.blogspot.com/2012/04/start-of-my-kalydeco-journey.html">http://runsickboyrun.blogspot.com/2012/04/start-of-my-kalydeco-journey.html</a> i wonder how many people have been incorrectly genotyped back when they were doing throat swabs...

after reading this post from Angie <a href="http://runsickboyrun.blogspot.com/2012/04/start-of-my-kalydeco-journey.html">http://runsickboyrun.blogspot.com/2012/04/start-of-my-kalydeco-journey.html</a> i wonder how many people have been incorrectly genotyped back when they were doing throat swabs...

what is your ige level? this is the second time i have ever taken vorconizole (sp?) and my dr never mentioned anything about becoming resistant. their concern is safety. its very toxic i believe. why do feel like you should be on it constantly?

what is your ige level? this is the second time i have ever taken vorconizole (sp?) and my dr never mentioned anything about becoming resistant. their concern is safety. its very toxic i believe. why do feel like you should be on it constantly?

I flew in Feb. i put all the vials in a ziploc, wripped off the 'label/sticker' of the box that has my name and dosage and put it in the carry on. they will search it. tell 'em to put on CLEAN GLOVES!

I flew in Feb. i put all the vials in a ziploc, wripped off the 'label/sticker' of the box that has my name and dosage and put it in the carry on. they will search it. tell 'em to put on CLEAN GLOVES!

CONGRATS

CONGRATS

incomudrox---i am starting vfend and steroids. i had never heard of taking a liver supporting supplement before so I bought some today. have you taken the liver supplement at the same time you were being treated with anbx or antifungals? I was wondering if the liver supplement would in any way...

incomudrox---i am starting vfend and steroids. i had never heard of taking a liver supporting supplement before so I bought some today. have you taken the liver supplement at the same time you were being treated with anbx or antifungals? I was wondering if the liver supplement would in any way...

ABPA should be diagnosed in part by bloodwork, not just an xray i am currently being treated for ABPA and i am starting prednisone and vfend if you go on vfend beware it makes you VERY sun sensitive even with spf. need to wear protective clothing. i have only been treated for ABPA once before...

ABPA should be diagnosed in part by bloodwork, not just an xray i am currently being treated for ABPA and i am starting prednisone and vfend if you go on vfend beware it makes you VERY sun sensitive even with spf. need to wear protective clothing. i have only been treated for ABPA once before...

false. it does work on other mutations. do the research. not effective on double deltas though.

false. it does work on other mutations. do the research. not effective on double deltas though.

what is yourbeginning fev1 (before starting Kalydeco) and current fev1? thanks for sharing!

what is yourbeginning fev1 (before starting Kalydeco) and current fev1? thanks for sharing!