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I agree with jmiller. Any improvement and preservation of lung health is worth it to me. Its not a matter of life or death- it can simply be that each person who improves even SLIGHTLY would like the opportunity! MINIMAL improvement is STILL improvement. It could mean less bleeds for her. She...

maybe they haveless cluttered houses than Americans. we have a tendency to hoard crap or buy buy buy crap we don't need.

maybe they haveless cluttered houses than Americans. we have a tendency to hoard crap or buy buy buy crap we don't need.

So why wouldn't ANY cf patient go forward and ask their doc for an RX of the Kalydeco just to try it? If one person's doctor will give the script, then there should be other doctors that do the same. Who wouldn't want to try it? Except for those whose insurance wouldn't approve it, we should...

So why wouldn't ANY cf patient go forward and ask their doc for an RX of the Kalydeco just to try it? If one person's doctor will give the script, then there should be other doctors that do the same. Who wouldn't want to try it? Except for those whose insurance wouldn't approve it, we should...

So there have not been any Delta 508 people who have been able to get the 770 since its approval, correct?

So there have not been any Delta 508 people who have been able to get the 770 since its approval, correct?

in case you wanted to know: talked to my doc. they said it COULD be from air changes but not necessarily. best thing to do is monitor closely any changes and call if there is a reoccurance or if I'm feeling worse.

in case you wanted to know: talked to my doc. they said it COULD be from air changes but not necessarily. best thing to do is monitor closely any changes and call if there is a reoccurance or if I'm feeling worse.

THANKS for posting this update! I always wonder why the CFF does not post this information as quickly as it appears. If they want more participation then why do they not post items as they come available? I find items of value MUCH FASTER on this site than on the CFF website.

THANKS for posting this update! I always wonder why the CFF does not post this information as quickly as it appears. If they want more participation then why do they not post items as they come available? I find items of value MUCH FASTER on this site than on the CFF website.

I got back from a vacation tonight. Flying about 4 hours in the air total today. I have been feeling ok all week out of town. I haven't had a bleed in about a year. Then I got home from the airport and I started having some hemoptysis. About a couple tbs. (same volume as last year) I was...

I got back from a vacation tonight. Flying about 4 hours in the air total today. I have been feeling ok all week out of town. I haven't had a bleed in about a year. Then I got home from the airport and I started having some hemoptysis. About a couple tbs. (same volume as last year) I was...

has anyone heard anything about the 661 trials yet? i heard after jan 1, but nothing on the airwaves yet.

has anyone heard anything about the 661 trials yet? i heard after jan 1, but nothing on the airwaves yet.

congrats. we justly deserve these benefits.

congrats. we justly deserve these benefits.

i wipe down the room as soon as I get there. there are usually caviwipes in the room, if not, ask for them. then unpack. this includes flip flops for shower, coffee maker (for you in this case), my sterilizer for nebs, my vest (i bring my own), emla cream for needles, cell phone and charger...

i wipe down the room as soon as I get there. there are usually caviwipes in the room, if not, ask for them. then unpack. this includes flip flops for shower, coffee maker (for you in this case), my sterilizer for nebs, my vest (i bring my own), emla cream for needles, cell phone and charger...

If you have private insurance (with a deductible) AND medicare part D, do you notice that medicare ends up picking up most of the deductible?