Search results

  1. M

    good idea

    Good idea to move the research threads all to one topic whoever did that.
  2. M

    good idea

    Good idea to move the research threads all to one topic whoever did that.
  3. M

    vx-661 recruiting

    haven't there been people posting on here about 770/809 who are currently in the trial? I thought they said they were seeing big results.....but i know that is different that the actual NUMBERS they arewatching (sweat chloride/fev 1) I also wonder whyVertex would continue with the study if the...
  4. M

    vx-661 recruiting

    haven't there been people posting on here about 770/809 who are currently in the trial? I thought they said they were seeing big results.....but i know that is different that the actual NUMBERS they arewatching (sweat chloride/fev 1) I also wonder whyVertex would continue with the study if the...
  5. M

    To those on kalydeco---Lauren (your thoughts, please)

    Jessica, thank you so much for sharing your experiences!! That is nothing short of AMAZING AND MIRACULOUS!! We are so happy for you!!!!!!!! Please continue to keep us posted on your improvements and your experiences. I love hearing about these victories and improvements as I'm sure most people...
  6. M

    To those on kalydeco---Lauren (your thoughts, please)

    Jessica, thank you so much for sharing your experiences!! That is nothing short of AMAZING AND MIRACULOUS!! We are so happy for you!!!!!!!! Please continue to keep us posted on your improvements and your experiences. I love hearing about these victories and improvements as I'm sure most people...
  7. M

    Kalydeco cost

    vertex offers assistance for those who need it. call them or go to their website.
  8. M

    Kalydeco cost

    vertex offers assistance for those who need it. call them or go to their website.
  9. M

    CF Cycle for Life

    awesome!! my husband completed the cycle for life last year!! 75 miles!!!!!!!!!!!!!!!! awesome way to raise money!!!!!!!!!!
  10. M

    CF Cycle for Life

    awesome!! my husband completed the cycle for life last year!! 75 miles!!!!!!!!!!!!!!!! awesome way to raise money!!!!!!!!!!
  11. M

    ipod

    What ipod app do you find the most helpful for medical stuff? What app in generaldo you usethe most? Or is most useful? Thanks!
  12. M

    ipod

    What ipod app do you find the most helpful for medical stuff? What app in generaldo you usethe most? Or is most useful? Thanks!
  13. M

    IV time, again! First time with the port

    Hand held shower is the best for ports. You will love your port......so much easier and less painful than piccs.
  14. M

    IV time, again! First time with the port

    Hand held shower is the best for ports. You will love your port......so much easier and less painful than piccs.
  15. M

    Sterilizing nebs

    Baby bottle sterilizer takes 6-7 minutes and it clicks so you know when its done. Its made by Nuk. 3-4 nebs can fit at once. I sterilize after every treatment.
  16. M

    Sterilizing nebs

    Baby bottle sterilizer takes 6-7 minutes and it clicks so you know when its done. Its made by Nuk. 3-4 nebs can fit at once. I sterilize after every treatment.
  17. M

    PLEASE READ - I really need help

    YOU need to call your local CF clinic NOW and tell them you are very SICK!! Make it sound worse if you have to and that your health is in SERIOUS danger. Tell them YOU CANNOT WAIT UNTIL YOUR SCHEDULED APPT to see get help. INSIST that they admit you and get you started on IV's. YOU are...
  18. M

    PLEASE READ - I really need help

    YOU need to call your local CF clinic NOW and tell them you are very SICK!! Make it sound worse if you have to and that your health is in SERIOUS danger. Tell them YOU CANNOT WAIT UNTIL YOUR SCHEDULED APPT to see get help. INSIST that they admit you and get you started on IV's. YOU are...
  19. M

    To those on kalydeco---Lauren (your thoughts, please)

    fo sho
  20. M

    To those on kalydeco---Lauren (your thoughts, please)

    fo sho
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