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  1. M

    Vertex 809 trial

    they are not supposed to be posting results if they are in a trial.
  2. M

    Vertex 809 trial

    they are not supposed to be posting results if they are in a trial.
  3. M

    vx 661 discussion moved

    Vertex said 661 did not have the problems that were being seen with 809. That's what the man said. I didn't get his card. He said 809 will be continuing but if the 661 shows to be more effective at higher levels then they are scrapping the 809. That is exactly what he said. They are going to...
  4. M

    vx 661 discussion moved

    Vertex said 661 did not have the problems that were being seen with 809. That's what the man said. I didn't get his card. He said 809 will be continuing but if the 661 shows to be more effective at higher levels then they are scrapping the 809. That is exactly what he said. They are going to...
  5. M

    vx 661 discussion moved

    The press release is not specific enough to make judgements about the status of the 809 or 661. As usual, they are very vague and don't go into detail. I suppose only Vertex is going to be the press release that we want to see. They will be more specific about the drugs and their progress...
  6. M

    vx 661 discussion moved

    The press release is not specific enough to make judgements about the status of the 809 or 661. As usual, they are very vague and don't go into detail. I suppose only Vertex is going to be the press release that we want to see. They will be more specific about the drugs and their progress...
  7. M

    Cayston Finger Slicing Club

    Really? Plyers? I believe it. Sometimes I really wonder how far America has come-Are we going backwards? I wonder why they(manufacturers) bend over backwards to protect children-because face it, half the 'security' tabs, covers and protective locks or barriers are to protect children. Which...
  8. M

    Cayston Finger Slicing Club

    Really? Plyers? I believe it. Sometimes I really wonder how far America has come-Are we going backwards? I wonder why they(manufacturers) bend over backwards to protect children-because face it, half the 'security' tabs, covers and protective locks or barriers are to protect children. Which...
  9. M

    Insights from current 661 or 809 trials

    Could you post the link to the cff press release? I can't find which one you are referring to. Thanks!
  10. M

    Insights from current 661 or 809 trials

    Could you post the link to the cff press release? I can't find which one you are referring to. Thanks!
  11. M

    Bad news from Vertex

    one way or another we won't know more until it is published by Vertex in writing. We're in the dark until they publicize the data and tell us all what the &8LL is going on.
  12. M

    Bad news from Vertex

    one way or another we won't know more until it is published by Vertex in writing. We're in the dark until they publicize the data and tell us all what the &8LL is going on.
  13. M

    Bad news from Vertex

    in our 15 minute conversation, Vertex never mentioned a second corrector. Not saying there isn't one but they were VERY candid when I asked questions about 770/809 and telling me why it wasn't working out.... when we discussed the 661, they were VERY enthusiastic about it and I believe if there...
  14. M

    Bad news from Vertex

    in our 15 minute conversation, Vertex never mentioned a second corrector. Not saying there isn't one but they were VERY candid when I asked questions about 770/809 and telling me why it wasn't working out.... when we discussed the 661, they were VERY enthusiastic about it and I believe if there...
  15. M

    Bad news from Vertex

    Harriett has it correct. Vertex reps said that the 809 was becoming ineffective after the dosages were upped. After the 809 dosages were increased, they had a reaction with the 770 that was making it ineffective. Those are direct quotes from the reps. That is why most likely the 809 will be...
  16. M

    Bad news from Vertex

    Harriett has it correct. Vertex reps said that the 809 was becoming ineffective after the dosages were upped. After the 809 dosages were increased, they had a reaction with the 770 that was making it ineffective. Those are direct quotes from the reps. That is why most likely the 809 will be...
  17. M

    Bad news from Vertex

    Yes, the preliminary results from 661 are showing it to be much more effective than the 770/809. It is good news because it means that they found a drug to be working at profound levels as the Kalydeco does for g551d. Its bad news because there will be a longer wait for the drug that works...
  18. M

    Bad news from Vertex

    Yes, the preliminary results from 661 are showing it to be much more effective than the 770/809. It is good news because it means that they found a drug to be working at profound levels as the Kalydeco does for g551d. Its bad news because there will be a longer wait for the drug that works...
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