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I can defintely taste a horrible fish taste when i have an infection. I chew gum -especially cinnamon seems to work well. But for me, is another indicator I am fighting a big infection. YUCKY

This is a fantastic idea. Thanks!!!!

This is a fantastic idea. Thanks!!!!

It doesn't really matter what your fev 1 number is if a) you are still gettting infections and it still leads to hospitalization b) you have OTHER symptoms of CF such as hemoptysis, change in mucous color, sleeplessness due to low sats c) no exercise tolerance I don't care much for the numbers...

It doesn't really matter what your fev 1 number is if a) you are still gettting infections and it still leads to hospitalization b) you have OTHER symptoms of CF such as hemoptysis, change in mucous color, sleeplessness due to low sats c) no exercise tolerance I don't care much for the numbers...

Left chest. 6 years or so. ? i don't remember. i love it and it makes life so much easier and way less painful.

Left chest. 6 years or so. ? i don't remember. i love it and it makes life so much easier and way less painful.

collistin works great

collistin works great

I want to say thank youto those people who update their blog and continue to keep your fellow patients, family members and care-giversin the loop. I find it rather helpful when individuals have blogs and continue to update and share information oryour stories. Everyday or every week for that...

I want to say thank youto those people who update their blog and continue to keep your fellow patients, family members and care-giversin the loop. I find it rather helpful when individuals have blogs and continue to update and share information oryour stories. Everyday or every week for that...

I was put on Levemir from the very beginning with my Novalog. I have rarely been over 200. You should try a long-acting insulin. I take mine before bed.

I was put on Levemir from the very beginning with my Novalog. I have rarely been over 200. You should try a long-acting insulin. I take mine before bed.

Americans do not get accepted to the universities here because they have certain 'guidelines' they have to use to prove they are being DIVERSIFIED. Americans are passed over to allow for foreign students to take away their shot at medical school. Why do we as people want MORE regulation? I...

Is all that info saying that its basically impossible for HOMO delta 508's to see benefit from the Kalydeco? No one has piped in from this group to say if they are trying the drug.

Is all that info saying that its basically impossible for HOMO delta 508's to see benefit from the Kalydeco? No one has piped in from this group to say if they are trying the drug.

You don't have to give up Hypertonic Saline for 661 part A.

You don't have to give up Hypertonic Saline for 661 part A.

um....what? lets be friends.

um....what? lets be friends.