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this thread is wacky i can't read it without struggling to move the message box

this thread is wacky i can't read it without struggling to move the message box

dramamama, did you post the link to the FB page? That's great! I don't have FB and want to get this info out there!! Super important to get this data shared and get it out in the open where people will read it and USE IT!!! Save the pdf if you can to your computer. I have a feeling this link is...

dramamama, did you post the link to the FB page? That's great! I don't have FB and want to get this info out there!! Super important to get this data shared and get it out in the open where people will read it and USE IT!!! Save the pdf if you can to your computer. I have a feeling this link is...

If you have attempted to use oral antbx and the cough keeps coming back worse than 'baseline' then you need to get pfts done and go on IV's. My advice is DO NOT WAIT. Address the issue and go on IV's NOW. Your doctor does not know what your 'baseline' cough is. YOU DO. If you are feeling...

If you have attempted to use oral antbx and the cough keeps coming back worse than 'baseline' then you need to get pfts done and go on IV's. My advice is DO NOT WAIT. Address the issue and go on IV's NOW. Your doctor does not know what your 'baseline' cough is. YOU DO. If you are feeling...

(this info may not be new to you but worthy for some who haven't seen it) Starting at slide 21 <a...

(this info may not be new to you but worthy for some who haven't seen it) Starting at slide 21 <a...

When I lived in CA, I was initially seen at Long Beach Memorial. From my experience, I do not believe the dr was fully in tune with CF Care 100% the way I thought he should be. At the time, he had another practice and CF was secondary -which to me equates to 'not great care'. The nurse there was...

When I lived in CA, I was initially seen at Long Beach Memorial. From my experience, I do not believe the dr was fully in tune with CF Care 100% the way I thought he should be. At the time, he had another practice and CF was secondary -which to me equates to 'not great care'. The nurse there was...

Side effects i've had with antbx: achy joints, headaches, sleeplessness, dyarea, <img src="i/expressions/face-icon-small-smile.gif" border="0">, tiredness. There are also effects which indicate allergic reactions: rash, chest tighness that seriously affects your ability to breath, (which...

Side effects i've had with antbx: achy joints, headaches, sleeplessness, dyarea, <img src="i/expressions/face-icon-small-smile.gif" border="0">, tiredness. There are also effects which indicate allergic reactions: rash, chest tighness that seriously affects your ability to breath, (which...

I read all the data from poster 204 and 206. No mention at all about a group of homozygous F508s with an increase in Fev1. Poster 204 groups everyone together. He/she was right. There is a chart that shows change in fev1 but it does not break down the change in fev1 according to mutation.

I read all the data from poster 204 and 206. No mention at all about a group of homozygous F508s with an increase in Fev1. Poster 204 groups everyone together. He/she was right. There is a chart that shows change in fev1 but it does not break down the change in fev1 according to mutation.

this link shows the completion date for phase 3 770 for dd508 to be July 2012 http://clinicaltrials.gov/ct2/show/NCT00953706?term=vertex+cystic+fibrosis&rank=11 this is from a press release dated June 2011 DISCOVER The Phase 2 DISCOVER study (n=140) was primarily designed to provide...

this link shows the completion date for phase 3 770 for dd508 to be July 2012 http://clinicaltrials.gov/ct2/show/NCT00953706?term=vertex+cystic+fibrosis&rank=11 this is from a press release dated June 2011 DISCOVER The Phase 2 DISCOVER study (n=140) was primarily designed to provide...

this is a NEW BEGINNING and a new chapter of life! How Exciting! After fighting this disease for decades, you deserve the chance to breath well! Congrats on your new organ!

this is a NEW BEGINNING and a new chapter of life! How Exciting! After fighting this disease for decades, you deserve the chance to breath well! Congrats on your new organ!

Does anyone have any info about the current possiblecorrector being tested outside of Vertex to go along with the Kalydeco? I think there were a few discussed at the conference and I believe that Viagra was one of the drugs that was currently being tested to work as acorrector with Kalydeco. Is...

Nikole, I believe that your child will have a VERY bright and happy future. I think at 5 years old, there are so many companies other than Vertex that are working to correct this problem and that she will benefit. I would be thrilled to know that if I had a daughter, she was born only 5 years...