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  1. M

    DF508 question

    Nikole, I believe that your child will have a VERY bright and happy future. I think at 5 years old, there are so many companies other than Vertex that are working to correct this problem and that she will benefit. I would be thrilled to know that if I had a daughter, she was born only 5 years...
  2. M

    Kalydeco or VX-770 off lable use?

    I have a PDF of the full document. PM if you want a copy and I can email it to you.
  3. M

    Kalydeco or VX-770 off lable use?

    I have a PDF of the full document. PM if you want a copy and I can email it to you.
  4. M

    Kalydeco or VX-770 off lable use?

    ok, that helps too. However, I am looking for the phase III results of DDf508s who participated in the 770 trial. From what I understand, it was in the phase III where there was a small patient subgroup who saw an increase in fev1.
  5. M

    Kalydeco or VX-770 off lable use?

    ok, that helps too. However, I am looking for the phase III results of DDf508s who participated in the 770 trial. From what I understand, it was in the phase III where there was a small patient subgroup who saw an increase in fev1.
  6. M

    DF508 question

    The fact that she has had no hospitalizations means nothing in my opinion. I never had a lung infection until I was 17 years old. That was my first hospitalization and I am double delta. There is only one sweat chloride test for CF that determines if a person has the disease. And 95% of cf...
  7. M

    DF508 question

    The fact that she has had no hospitalizations means nothing in my opinion. I never had a lung infection until I was 17 years old. That was my first hospitalization and I am double delta. There is only one sweat chloride test for CF that determines if a person has the disease. And 95% of cf...
  8. M

    Kalydeco or VX-770 off lable use?

    I found it! Nevermind!
  9. M

    Kalydeco or VX-770 off lable use?

    I found it! Nevermind!
  10. M

    Kalydeco or VX-770 off lable use?

    Above all is love: That is the nicest thing a person has ever said to me. Thank you. Do you have the link for the April chest research posting? I am searching the issue online now...
  11. M

    Kalydeco or VX-770 off lable use?

    Above all is love: That is the nicest thing a person has ever said to me. Thank you. Do you have the link for the April chest research posting? I am searching the issue online now...
  12. M

    Kalydeco or VX-770 off lable use?

    I suggest anyone that has a copy of Delta 508 be granted an RX for this drug. I believe if we all rally together and get this out there, our doctors will submit. Everyone should have the chance to benefit from this drug. Even if its not 'statistically significant' enough to get approved for the...
  13. M

    Kalydeco or VX-770 off lable use?

    I suggest anyone that has a copy of Delta 508 be granted an RX for this drug. I believe if we all rally together and get this out there, our doctors will submit. Everyone should have the chance to benefit from this drug. Even if its not 'statistically significant' enough to get approved for the...
  14. M

    Rash around my bottom/scrotum

    you should have an exam by a doctor.
  15. M

    Rash around my bottom/scrotum

    you should have an exam by a doctor.
  16. M

    Calling all CF bloggers!

    Sunshine, If you go to someone's blog spot in the top right corner, it says 'create blog'.
  17. M

    Calling all CF bloggers!

    Sunshine, If you go to someone's blog spot in the top right corner, it says 'create blog'.
  18. M

    Calling all CF bloggers!

    here is mine to add to your list. http://tblazing.blogspot.com/
  19. M

    Calling all CF bloggers!

    here is mine to add to your list. http://tblazing.blogspot.com/
  20. M

    stupid question

    amy sent you a pm
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