Search results

  1. M

    Bad news from Vertex

    After speaking with TWO representatives from Vertex IN PERSON, they both confirmed that the 770/809 trials will be scrapped alltogether if the 661 is more beneficial. They have findings that 661 will most likely take over and replace the 770/809 combo. You may have already figured this out. But...
  2. M

    Bad news from Vertex

    After speaking with TWO representatives from Vertex IN PERSON, they both confirmed that the 770/809 trials will be scrapped alltogether if the 661 is more beneficial. They have findings that 661 will most likely take over and replace the 770/809 combo. You may have already figured this out. But...
  3. M

    Starting Oxygen at Night

    It will give you better, longer, and more satisfied sleep <img src="i/expressions/face-icon-small-smile.gif" border="0">
  4. M

    Starting Oxygen at Night

    It will give you better, longer, and more satisfied sleep <img src="i/expressions/face-icon-small-smile.gif" border="0">
  5. M

    Collecting data for homozygous Delta508

    Or if you are currently taking the Kalydeco and did not participate in the trial, this also would be helpful.
  6. M

    Collecting data for homozygous Delta508

    Or if you are currently taking the Kalydeco and did not participate in the trial, this also would be helpful.
  7. M

    Clarification

    And if you report back with any findings please also report your mutation(s).
  8. M

    Clarification

    And if you report back with any findings please also report your mutation(s).
  9. M

    Collecting data for homozygous Delta508

    I am trying to collect data from those who experienced changes in the kalydeco trial who are homozygous Delta 508. Are there any of those patients on this site? If so, please report any findings you had while you were in the trial. (if you can) Thanks!
  10. M

    Collecting data for homozygous Delta508

    I am trying to collect data from those who experienced changes in the kalydeco trial who are homozygous Delta 508. Are there any of those patients on this site? If so, please report any findings you had while you were in the trial. (if you can) Thanks!
  11. M

    Kalydeco - insurance approval?

    That is great news Tom!
  12. M

    Kalydeco - insurance approval?

    That is great news Tom!
  13. M

    vx-661 recruiting

    expected approval date for 661 is 2020
  14. M

    vx-661 recruiting

    expected approval date for 661 is 2020
  15. M

    To those on kalydeco---Lauren (your thoughts, please)

    Ask the pharmacy carrier that your insurance provides, "do you cover Kalydeco?"
  16. M

    To those on kalydeco---Lauren (your thoughts, please)

    Ask the pharmacy carrier that your insurance provides, "do you cover Kalydeco?"
  17. M

    To those on kalydeco---Lauren (your thoughts, please)

    I found out my insurance covers Kalydeco, no further verification or letters from Doctor needed, just a script. No additional costs except the regular copay. I also spoke with Vertex on the phone and they said as long as your doctor gives you a prescription for it, then you are good to go. Last...
  18. M

    To those on kalydeco---Lauren (your thoughts, please)

    I found out my insurance covers Kalydeco, no further verification or letters from Doctor needed, just a script. No additional costs except the regular copay. I also spoke with Vertex on the phone and they said as long as your doctor gives you a prescription for it, then you are good to go. Last...
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