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For the Deltas--our CF education night is coming up at the end of March with updates to be given on the 770/809. (we already know the 661 trial has started recruiting) Does everyone have an education day/event at their center? If so, I'm sure they will be having updates for you as well. I will...

For the Deltas--our CF education night is coming up at the end of March with updates to be given on the 770/809. (we already know the 661 trial has started recruiting) Does everyone have an education day/event at their center? If so, I'm sure they will be having updates for you as well. I will...

I just wanted to say thanks a lot for what it means to all the cf people out there that you participated and didn't quit the trial when you started feeling bad again. It must have been very hard and very frustrating. For what its worth, we are all so appreciative.

I just wanted to say thanks a lot for what it means to all the cf people out there that you participated and didn't quit the trial when you started feeling bad again. It must have been very hard and very frustrating. For what its worth, we are all so appreciative.

Is anyone taking VX770 and planning to become pregnant?

Yes, they are starting it soon. I talked to a research coordinator whose center is participating in the trial.

Yes, they are starting it soon. I talked to a research coordinator whose center is participating in the trial.

I have notified the cff that patients of other mutations are going to try the 770 and to please let Vertex know more prescriptions will be in process.

I have notified the cff that patients of other mutations are going to try the 770 and to please let Vertex know more prescriptions will be in process.

Has anyone been in contact with a research coordinator to get started in the 661 yet?

Has anyone been in contact with a research coordinator to get started in the 661 yet?

That is a very plausible explanation.

That is a very plausible explanation.

Thank you. Yes, I am closely monitoring my changes in lung junk. I have been feeling better but not out of the woods yet. thanks for responding.

Thank you. Yes, I am closely monitoring my changes in lung junk. I have been feeling better but not out of the woods yet. thanks for responding.

some people who are trying to quit smoking try prescription anti-depressants even though it wasn't made for that purpose. Doctors are willing to give the patient theopportunity because they want to give their patient the best possiblechance to quit. Even thoughKaleydeco wasn't initially intended...

some people who are trying to quit smoking try prescription anti-depressants even though it wasn't made for that purpose. Doctors are willing to give the patient theopportunity because they want to give their patient the best possiblechance to quit. Even thoughKaleydeco wasn't initially intended...

Maybe Vertex could initiate something that was need-based. That would make more sense- For those of other mutations that are struggling to survive they could be given the Kalydeco to see if their condition improves. I think that would be fair and give those who need it most, the chance for an...

Maybe Vertex could initiate something that was need-based. That would make more sense- For those of other mutations that are struggling to survive they could be given the Kalydeco to see if their condition improves. I think that would be fair and give those who need it most, the chance for an...

I agree with jmiller. Any improvement and preservation of lung health is worth it to me. Its not a matter of life or death- it can simply be that each person who improves even SLIGHTLY would like the opportunity! MINIMAL improvement is STILL improvement. It could mean less bleeds for her. She...