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  1. P

    Vertex announces DF508 trial!!!

    Vertex announces DF508 trial!!!Congratulations. Congratulations. LouLou sure sounds pleased with her experience. Peter
  2. P

    Vertex announces DF508 trial!!!

    Vertex announces DF508 trial!!!Congratulations. Congratulations. LouLou sure sounds pleased with her experience. Peter
  3. P

    Vertex announces DF508 trial!!!

    Vertex announces DF508 trial!!!Congratulations. Congratulations. LouLou sure sounds pleased with her experience. <br />Peter
  4. P

    Pain

    Hi Melissa, go to a physical therapist (a good one). If you don't know any (good ones) go to www.apta.org, click on "find a therapist", put in a zip code and distance you want to travel, and make sure there is an OCS or SCS after their name (clinical specialist). You may also look up Hashimoto...
  5. P

    Pain

    Hi Melissa, go to a physical therapist (a good one). If you don't know any (good ones) go to www.apta.org, click on "find a therapist", put in a zip code and distance you want to travel, and make sure there is an OCS or SCS after their name (clinical specialist). You may also look up Hashimoto...
  6. P

    Pain

    Hi Melissa, go to a physical therapist (a good one). If you don't know any (good ones) go to www.apta.org, click on "find a therapist", put in a zip code and distance you want to travel, and make sure there is an OCS or SCS after their name (clinical specialist). You may also look up Hashimoto...
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    A1c - please help...advice...encouragement....prayer

    Hi Katie, This is a link from cff.org on cfrd. Either it will interest you or the 75 pages may put you to sleep. Nevertheless it's authors are highly regarded in cfrd treatment and research. Dana Harden is really special. This iPad doesn't seem to allow me to give an uplink. But you can cut and...
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    early onset arthritis

    Hi Jeana, I just looked @ Goggle. Lots of references all confirming cf related arthritis. Can you check them out? Peter
  9. P

    early onset arthritis

    Hi Jeana, I just looked @ Goggle. Lots of references all confirming cf related arthritis. Can you check them out? Peter
  10. P

    early onset arthritis

    Hi Jeana, I just looked @ Goggle. Lots of references all confirming cf related arthritis. Can you check them out? <br />Peter
  11. P

    Blockage

    Windex...above the message on the right (find a post from Sarabeth)..there is a lighbulb, and two little characters...one with an exclamation point and one with a cartoon bubble and a printer...just click on the one with a cartoon bubble ...behind his head...that is the Private Message link...a...
  12. P

    Blockage

    Windex...above the message on the right (find a post from Sarabeth)..there is a lighbulb, and two little characters...one with an exclamation point and one with a cartoon bubble and a printer...just click on the one with a cartoon bubble ...behind his head...that is the Private Message link...a...
  13. P

    Blockage

    Windex...above the message on the right (find a post from Sarabeth)..there is a lighbulb, and two little characters...one with an exclamation point and one with a cartoon bubble and a printer...just click on the one with a cartoon bubble ...behind his head...that is the Private Message link...a...
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    New to this site

    Hi Rebecca, Welcome to this site. Plenty of smarts around here.
  15. P

    New to this site

    Hi Rebecca, Welcome to this site. Plenty of smarts around here.
  16. P

    New to this site

    Hi Rebecca, <br />Welcome to this site. Plenty of smarts around here.
  17. P

    times a day you do pulmozyme

    From an insurance reimbursement point, "medically necessary" is the operative phrase for coverage. Of course insurance carriers have their "experts" who may decide some medicine prescriptions are not "medically necessary" over certain dosages. It sounds like those on the site now are getting BID...
  18. P

    times a day you do pulmozyme

    From an insurance reimbursement point, "medically necessary" is the operative phrase for coverage. Of course insurance carriers have their "experts" who may decide some medicine prescriptions are not "medically necessary" over certain dosages. It sounds like those on the site now are getting BID...
  19. P

    times a day you do pulmozyme

    From an insurance reimbursement point, "medically necessary" is the operative phrase for coverage. Of course insurance carriers have their "experts" who may decide some medicine prescriptions are not "medically necessary" over certain dosages. It sounds like those on the site now are getting BID...
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    Humidifiers?

    Definitely sounds like you should seek the advice of a pediatric pulmonologist at your cf center, if you have one. If there is a sterile vaporizer, I think the idea is to create a moist medium to loosen mucus and create an under girding of fluid to help the cilia move the junk to the tertiary...
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