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  1. P

    Humidifiers?

    Definitely sounds like you should seek the advice of a pediatric pulmonologist at your cf center, if you have one. If there is a sterile vaporizer, I think the idea is to create a moist medium to loosen mucus and create an under girding of fluid to help the cilia move the junk to the tertiary...
  2. P

    Humidifiers?

    Definitely sounds like you should seek the advice of a pediatric pulmonologist at your cf center, if you have one. <br /> <br />If there is a sterile vaporizer, I think the idea is to create a moist medium to loosen mucus and create an under girding of fluid to help the cilia move the junk to...
  3. P

    Need some advice

    Hi Jen, I'm surprised no men have weighed in, but I'm in your corner with LouLou.How much you've worked and in what capacity may help with the short term assignment for planning finances, but you are a terrific photographer. Man, most parents would give you a bundle for a portfolio of kid's...
  4. P

    Need some advice

    Hi Jen, I'm surprised no men have weighed in, but I'm in your corner with LouLou.How much you've worked and in what capacity may help with the short term assignment for planning finances, but you are a terrific photographer. Man, most parents would give you a bundle for a portfolio of kid's...
  5. P

    Need some advice

    Hi Jen, I'm surprised no men have weighed in, but I'm in your corner with LouLou.How much you've worked and in what capacity may help with the short term assignment for planning finances, but you are a terrific photographer. Man, most parents would give you a bundle for a portfolio of kid's...
  6. P

    Chronic Pain

    Not that it will "cure" the reason for the pain but do you exercise daily? If not, look up how exercising stimulates Pacinian corpuscles, Meissner corpuscles, Merkel,s discs, and Ruffini corpuscles in helping to override the free nerve endings possibly causing your aches and pains. Limbic...
  7. P

    Chronic Pain

    Not that it will "cure" the reason for the pain but do you exercise daily? If not, look up how exercising stimulates Pacinian corpuscles, Meissner corpuscles, Merkel,s discs, and Ruffini corpuscles in helping to override the free nerve endings possibly causing your aches and pains. Limbic...
  8. P

    Chronic Pain

    Not that it will "cure" the reason for the pain but do you exercise daily? If not, look up how exercising stimulates Pacinian corpuscles, Meissner corpuscles, Merkel,s discs, and Ruffini corpuscles in helping to override the free nerve endings possibly causing your aches and pains. Limbic...
  9. P

    Looking for a great Peds CF Dr in DC area

    Perhaps you have been lurking out there for a while, but Welcome to this resource just the same. Definitely a competent setting at JH. Maybe someone will answer you before bed time. Go there anyway. Not sure when you found this site but you will get a lot of help and usually in a hurry. Good luck.
  10. P

    Looking for a great Peds CF Dr in DC area

    Perhaps you have been lurking out there for a while, but Welcome to this resource just the same. Definitely a competent setting at JH. Maybe someone will answer you before bed time. Go there anyway. Not sure when you found this site but you will get a lot of help and usually in a hurry. Good luck.
  11. P

    Looking for a great Peds CF Dr in DC area

    Perhaps you have been lurking out there for a while, but Welcome to this resource just the same. Definitely a competent setting at JH. Maybe someone will answer you before bed time. Go there anyway. Not sure when you found this site but you will get a lot of help and usually in a hurry. Good luck.
  12. P

    History of Cystic Fibrosis

    Yo - whoa. I'm in the business and that scenario doesn't warm my confidence. Remember Atul Gawande's "Bell Curve" article? How close are other centers? Hopefully other members of the site or Lurkers will weigh in here. "Small mistakes" now can become problematical. The statement you mention...
  13. P

    History of Cystic Fibrosis

    Yo - whoa. I'm in the business and that scenario doesn't warm my confidence. Remember Atul Gawande's "Bell Curve" article? How close are other centers? Hopefully other members of the site or Lurkers will weigh in here. "Small mistakes" now can become problematical. The statement you mention...
  14. P

    History of Cystic Fibrosis

    Yo - whoa. I'm in the business and that scenario doesn't warm my confidence. Remember Atul Gawande's "Bell Curve" article? How close are other centers? Hopefully other members of the site or Lurkers will weigh in here. "Small mistakes" now can become problematical. The statement you mention...
  15. P

    Difficulty breathing

    Are you describing athsma or a pattern from her cf lung congestion? was her coughing normal after treatments? It seems it worsened after exertion(running around). Of course if the albuterol has quick effect that's good. It sounds as though you haven't seen this pattern before but she is 9 years...
  16. P

    Difficulty breathing

    Are you describing athsma or a pattern from her cf lung congestion? was her coughing normal after treatments? It seems it worsened after exertion(running around). Of course if the albuterol has quick effect that's good. It sounds as though you haven't seen this pattern before but she is 9 years...
  17. P

    Difficulty breathing

    Are you describing athsma or a pattern from her cf lung congestion? was her coughing normal after treatments? It seems it worsened after exertion(running around). Of course if the albuterol has quick effect that's good. It sounds as though you haven't seen this pattern before but she is 9 years...
  18. P

    How do you guys deal?

    "And what's more is, as soon as I got on disability with medicare and all that, my out of pocket costs skyrocketed! Being on disability has made my disability so much more expensive, it's sickening (literally, ha)." I am wondering what is meant by out-of-pocket expenses have sky-rocketed...
  19. P

    Chest bones popping

    You might also try a physical therapy practice with orthopedic skills. Go to <a target=_blank class=ftalternatingbarlinklarge href="http://www.apta.org">Find a therapist</a> and click on find a therapist link. Follow the routine and then look for a PT with an OCS or SCS after their name. You may...
  20. P

    Chest bones popping

    You might also try a physical therapy practice with orthopedic skills. Go to <a target=_blank class=ftalternatingbarlinklarge href="http://www.apta.org">Find a therapist</a> and click on find a therapist link. Follow the routine and then look for a PT with an OCS or SCS after their name. You may...
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