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  1. C

    I need some advice please!!!!!!!!!!!!!!

    I agree with everyone else - find out which test was done. Ambry and Quest Diagnostics are the only two labs that I know of that do the complete gene analysis. Also, both have much less comprehensive tests, too, so it's important to know exactly which test was done. Last thing, there are...
  2. C

    I need some advice please!!!!!!!!!!!!!!

    I agree with everyone else - find out which test was done. Ambry and Quest Diagnostics are the only two labs that I know of that do the complete gene analysis. Also, both have much less comprehensive tests, too, so it's important to know exactly which test was done. Last thing, there are...
  3. C

    I need some advice please!!!!!!!!!!!!!!

    I agree with everyone else - find out which test was done. Ambry and Quest Diagnostics are the only two labs that I know of that do the complete gene analysis. Also, both have much less comprehensive tests, too, so it's important to know exactly which test was done. Last thing, there are...
  4. C

    Chloride sweat test-22 month old

    Was it done at an accredited lab? If you don't know, check here: http://www.cff.org/aboutCFFoundation/Locations/FindACareCenter/ IMHO, if the sweat testing was conducted at an accredited hospital, I'd assume she probably has CF and ask for a referral to a CF center. They will confirm (or...
  5. C

    Chloride sweat test-22 month old

    Was it done at an accredited lab? If you don't know, check here: http://www.cff.org/aboutCFFoundation/Locations/FindACareCenter/ IMHO, if the sweat testing was conducted at an accredited hospital, I'd assume she probably has CF and ask for a referral to a CF center. They will confirm (or...
  6. C

    Chloride sweat test-22 month old

    Was it done at an accredited lab? If you don't know, check here: http://www.cff.org/aboutCFFoundation/Locations/FindACareCenter/ IMHO, if the sweat testing was conducted at an accredited hospital, I'd assume she probably has CF and ask for a referral to a CF center. They will confirm (or...
  7. C

    Chloride sweat test-22 month old

    Was it done at an accredited lab? If you don't know, check here: http://www.cff.org/aboutCFFoundation/Locations/FindACareCenter/ IMHO, if the sweat testing was conducted at an accredited hospital, I'd assume she probably has CF and ask for a referral to a CF center. They will confirm (or...
  8. C

    Chloride sweat test-22 month old

    Was it done at an accredited lab? If you don't know, check here: http://www.cff.org/aboutCFFoundation/Locations/FindACareCenter/ IMHO, if the sweat testing was conducted at an accredited hospital, I'd assume she probably has CF and ask for a referral to a CF center. They will confirm (or...
  9. C

    Welcome Ambry Genetics

    Genetics testing Nervous1, I was just wondering if you'd been tested for primary ciliary dyskinesia? It has similiar pulmonary symptoms as CF (plus chronic sinusitis and ear problems.)
  10. C

    Sweat test

    Sorry for the double post! As for tips, I'd just dress warmly and walk instead of taking elevators, etc (assuming you are able). HTH
  11. C

    Sweat test

    Sorry for the double post! As for tips, I'd just dress warmly and walk instead of taking elevators, etc (assuming you are able). HTH
  12. C

    Sweat test

    Sorry for the double post! As for tips, I'd just dress warmly and walk instead of taking elevators, etc (assuming you are able). HTH
  13. C

    Sweat test

    Sorry for the double post! As for tips, I'd just dress warmly and walk instead of taking elevators, etc (assuming you are able). HTH
  14. C

    Sweat test

    Sorry for the double post! As for tips, I'd just dress warmly and walk instead of taking elevators, etc (assuming you are able). HTH
  15. C

    Sweat test

    My kids' sweat tests were under $100. Insurance negotiated them down to less than $60 each. That was 2002 so I'm sure the cost has changed some.
  16. C

    Sweat test

    My kids' sweat tests were under $100. Insurance negotiated them down to less than $60 each. That was 2002 so I'm sure the cost has changed some.
  17. C

    Sweat test

    My kids' sweat tests were under $100. Insurance negotiated them down to less than $60 each. That was 2002 so I'm sure the cost has changed some.
  18. C

    Sweat test

    My kids' sweat tests were under $100. Insurance negotiated them down to less than $60 each. That was 2002 so I'm sure the cost has changed some.
  19. C

    Sweat test

    My kids' sweat tests were under $100. Insurance negotiated them down to less than $60 each. That was 2002 so I'm sure the cost has changed some.
  20. C

    Good New / Bad News

    Nervous1, I disagree with your doctor about testing for PCD. Patients with PCD are treated medically very similiarly to those with CF since the lung affects can be very similiar. JMHO. I also think it's worth saving up for the Ambry test and paying out of pocket. Even if you can only save...
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