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  1. K

    Using Avandia in Cystic Fibrosis

    Eeeek! one quick google search brings this puppy up with enough lawsuits and FDA warnings to resink the titanic! It's actually a drug normally prescribed for type 2 Diabetes, but is known to cause frequent heart attacks in anybody with any sort of heart disease. Many of us, through years of...
  2. K

    Using Avandia in Cystic Fibrosis

    Eeeek! one quick google search brings this puppy up with enough lawsuits and FDA warnings to resink the titanic! <br /> <br />It's actually a drug normally prescribed for type 2 Diabetes, but is known to cause frequent heart attacks in anybody with any sort of heart disease. Many of us, through...
  3. K

    I am in hospital

    am in hospital Ok, first of all relax!! you need to know what type of Cepacia you have cultured, there are nine genomovars, the most common two being 'multivorans - genomovar 2' and 'cenocepacia - genomovar 3', ask your doc which one you have. Next, relax again. This is not a death sentence...
  4. K

    I am in hospital

    am in hospital Ok, first of all relax!! you need to know what type of Cepacia you have cultured, there are nine genomovars, the most common two being 'multivorans - genomovar 2' and 'cenocepacia - genomovar 3', ask your doc which one you have. Next, relax again. This is not a death sentence...
  5. K

    I am in hospital

    am in hospital Ok, first of all relax!! you need to know what type of Cepacia you have cultured, there are nine genomovars, the most common two being 'multivorans - genomovar 2' and 'cenocepacia - genomovar 3', ask your doc which one you have. Next, relax again. This is not a death sentence...
  6. K

    I am in hospital

    am in hospital Ok, first of all relax!! you need to know what type of Cepacia you have cultured, there are nine genomovars, the most common two being 'multivorans - genomovar 2' and 'cenocepacia - genomovar 3', ask your doc which one you have. Next, relax again. This is not a death sentence...
  7. K

    I am in hospital

    am in hospital Ok, first of all relax!! you need to know what type of Cepacia you have cultured, there are nine genomovars, the most common two being 'multivorans - genomovar 2' and 'cenocepacia - genomovar 3', ask your doc which one you have. <br /> <br />Next, relax again. This is not a death...
  8. K

    Where do I donate my vest?

    You could give it to me? I'd happily pay postage, which would probably be quite significant, as i'm in New Zealand, but the way my health has deteriorated lately, i'd still do it!! Over here they're too stingy to use vests, it's acappella or nothing. What type of vest is it? What is your body...
  9. K

    Where do I donate my vest?

    You could give it to me? I'd happily pay postage, which would probably be quite significant, as i'm in New Zealand, but the way my health has deteriorated lately, i'd still do it!! Over here they're too stingy to use vests, it's acappella or nothing. What type of vest is it? What is your body...
  10. K

    Where do I donate my vest?

    You could give it to me? I'd happily pay postage, which would probably be quite significant, as i'm in New Zealand, but the way my health has deteriorated lately, i'd still do it!! Over here they're too stingy to use vests, it's acappella or nothing. What type of vest is it? What is your body...
  11. K

    Where do I donate my vest?

    You could give it to me? I'd happily pay postage, which would probably be quite significant, as i'm in New Zealand, but the way my health has deteriorated lately, i'd still do it!! Over here they're too stingy to use vests, it's acappella or nothing. What type of vest is it? What is your body...
  12. K

    Where do I donate my vest?

    You could give it to me? I'd happily pay postage, which would probably be quite significant, as i'm in New Zealand, but the way my health has deteriorated lately, i'd still do it!! Over here they're too stingy to use vests, it's acappella or nothing. <br /> <br />What type of vest is it? What is...
  13. K

    I was just diagnosed with B. Cepacia! What is B. Cepacia???

    Sorry Sweetness but your doctor sounds like a giant douche bag!! There is absolutely no correlation between Staph and Cepacia, Cepacia used to be one of the pseudomonas family, but they found nine different genomovars, so typed it separately as the Cepacia Complex. You don't have cepacia...
  14. K

    I was just diagnosed with B. Cepacia! What is B. Cepacia???

    Sorry Sweetness but your doctor sounds like a giant douche bag!! There is absolutely no correlation between Staph and Cepacia, Cepacia used to be one of the pseudomonas family, but they found nine different genomovars, so typed it separately as the Cepacia Complex. You don't have cepacia...
  15. K

    I was just diagnosed with B. Cepacia! What is B. Cepacia???

    Sorry Sweetness but your doctor sounds like a giant douche bag!! There is absolutely no correlation between Staph and Cepacia, Cepacia used to be one of the pseudomonas family, but they found nine different genomovars, so typed it separately as the Cepacia Complex. You don't have cepacia...
  16. K

    I was just diagnosed with B. Cepacia! What is B. Cepacia???

    Sorry Sweetness but your doctor sounds like a giant douche bag!! There is absolutely no correlation between Staph and Cepacia, Cepacia used to be one of the pseudomonas family, but they found nine different genomovars, so typed it separately as the Cepacia Complex. You don't have cepacia...
  17. K

    I was just diagnosed with B. Cepacia! What is B. Cepacia???

    Sorry Sweetness but your doctor sounds like a giant douche bag!! <br /> <br />There is absolutely no correlation between Staph and Cepacia, Cepacia used to be one of the pseudomonas family, but they found nine different genomovars, so typed it separately as the Cepacia Complex. You don't have...
  18. K

    Question for European CFers

    Amy, are you wanting to try Bromhexine on it's own? In New Zealand we can get the following and i'm pretty sure you can get at least one of these in the states, just as a cough syrup guaiphenesin + bromhexine are in Benadryl Chesty Forte and Robitussin ME Chesty Cough
  19. K

    Question for European CFers

    Amy, are you wanting to try Bromhexine on it's own? In New Zealand we can get the following and i'm pretty sure you can get at least one of these in the states, just as a cough syrup guaiphenesin + bromhexine are in Benadryl Chesty Forte and Robitussin ME Chesty Cough
  20. K

    Question for European CFers

    Amy, are you wanting to try Bromhexine on it's own? In New Zealand we can get the following and i'm pretty sure you can get at least one of these in the states, just as a cough syrup guaiphenesin + bromhexine are in Benadryl Chesty Forte and Robitussin ME Chesty Cough
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