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Odd that a ENT would say that. Singular, allergy meds (Claratin) and nasal rinses are common med/treatments for CF patients(who have sinus issues) and have been for years. I would ask him specifically why he says that and do some research on your own and then have a discussion with your CF team.

Heaven keeps getting better every time a CF angel enters. My daughter 28 passed away this year on March 7. She was waiting for a transplant. It's also painful and sad for us too. The comforting thing is we know they are in a better place ---- breathing and flying what could be better. We...

My daughter had G542X and DF508 she passed away on Mar 7, 2013 she was 28 yrs old. Waiting for a transplant. I believe the originator of this post passed away the beg of the year. It is pretty lethal mutation combination.

How do the parents or loved ones deal with the agony of watching their child or loved one on a vent. Hoping for a miracle that a donor comes in time. Knowing the clock is ticking away.

We did meet with Dr. Ellemunter, he seems good, but we mainly dealt with Dr. Eder and he was wonderful. Since we didn't know German he had to speak in English which couldn't of been easy, especially since her CF is so complex. He took the time to made sure we understood everything and we knew...

We did meet with Dr. Ellemunter, he seems good, but we mainly dealt with Dr. Eder and he was wonderful. Since we didn't know German he had to speak in English which couldn't of been easy, especially since her CF is so complex. He took the time to made sure we understood everything and we knew...

University Hospital Innsbruck, Austria. We are from the states, but last summer my 27 yr old daughter was visiting Europe got very sick and spent 3 weeks in the hospital. It is a big hospital, transplant center and Cystic Fibrosis Center. They immediately got her records from the states and took...

University Hospital Innsbruck, Austria. We are from the states, but last summer my 27 yr old daughter was visiting Europe got very sick and spent 3 weeks in the hospital. It is a big hospital, transplant center and Cystic Fibrosis Center. They immediately got her records from the states and took...

My 27 year old daughter has the same mutations, DF508, and G542X and CFRD along with liver issues.

My 27 year old daughter has the same mutations, DF508, and G542X and CFRD along with liver issues.