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  1. J

    Our usernames

    well my name is joseph so took jo from that and i have a hotrod that is a s-10 blazer. took blazer from that and it is a 86. so i came up with joblazer86
  2. J

    What medications are you taking?

    I am on ultrase mt 20,albuterol neb 3x's a day,TOBI every other month,fosomax once a week,zithromax 3x a week,oscal d 2x a day,adek 2x a day,pulmozyme once a day,zantac 2x a day,vitamin e 3x a day, advair 50/500 2 puffs a day,glutathione 6x a day,magnesium 2x a day,probiotics 3x a day and will...
  3. J

    Working with cf

    I have worked full time since I was 15 but had to stop work last june b/c my fev's went down to 18%. I do have a severe case of cf but again everyone is different so I was able to work when I was in the 30's and 20's. Right now I am on disability and will be going to school next month. By this...
  4. J

    i hate doing my medicine

    I also hate doing my meds but you have to. I would rather do my meds then sit in the hospital on iv or at home with iv. That's even more of a hassle. I hate doing them but at least there are things that can slow the damage that it causes instead of nothing. Don't get me wrong CF is a horrible...
  5. J

    amikacin

    forgot the shortcut.heehee. http://www.transaveinc.com/news/20041012-2.cfm
  6. J

    amikacin

    interesting article that I found on the gsh forum about mucoid pseudomonas.
  7. J

    Pulmozyme??

    I started it when I was 9 I thinks and have used it for 13 yrs. know. did not have any problems till recently when I started coughing up blood
  8. J

    o2 levels

    most centers it is when your resting o2 level is below 90. normal o2 at sea level is 95 and above. a mile up is 92 and above.
  9. J

    just asking

    1 a day
  10. J

    Sweat Outlines in Bed

    I use to have sweat lines on my sheets a couple of months ago but that was the first time I had ever had that. The reason was I had a infection. I still sweat but not as much as before.
  11. J

    MY FRIEND WAS COUGHING UP BLOOD

    It happens like starfall stated. If it is not a lot and only happened once than it is no biggie.
  12. J

    financial assistance with cf

    do cshcn but there is a waiting list for it so try to submit the paperwork asap.
  13. J

    Glutathione

    My hospital has not said anything and I had told them that I am using it.
  14. J

    Glutathione

    I was using gsh in the summer for about 3 months and thought that it was not doing anything so stopped. Then I noticed that I had less energy and it was harder to fight infections off. So started it again in Nov. and have felt a little better but I have not had significant improvements like...
  15. J

    colistin

    I have not spoken to the transplant doc yet b/c my insurance does not cover it at the hospital I go to ,St. Paul in Dallas, but Baylor in Dallas does. So the social worker said my doctor is going to call the insurance company to make a deal with them so we will see 1/4/05 what happens.
  16. J

    cipro and bactrum

    blood in my mucus
  17. J

    cipro and bactrum

    Just wondering if anyone has been on bactrum and cipro at the same time. My doc gave it to me to take for 21 days b/c I am having bleeding issues. I don't think it is doing anything. I take both 2x's a day and they are 750mg each. I have been on it for 2 weeks already
  18. J

    colistin

    I'm about to be evaluated for a lung transplant also! my fev is 18%. do you wear oxygen nicole. I don't yet.
  19. J

    colistin

    When I was on it I didn't have headaches but I actually felt worse
  20. J

    Lung Transplant Testing

    Thanks for the information everyone. I just did not want to go into it not knowing what to expect b/c if you know what is coming it's a little easier. That's just my view about it! Thanks again!!!!!
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