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Last time I was in the hospital I had my own room and a T.V. spicyone what hopital do u go to? I go to St. Paul when I have to go into the hospital.

I have only been on it for a couple of months but haven't noticed anything yet

Was wondering how many test you need to do before you are put on the list? I am going to have to do this soon once the insurance part is taken care of and just wondering what to expect. Is some of the tests difficult?Exhausting on the body?

I was reading a article about a person with cf and these sugars and thought it was interesting. It shows to have helped numerous people with cf (did a search for it). If interested in it here is one website http://ambrotose-glycoexpert.blogspot.com/2004/11/glyconutrients-cystic-fibrosis-success.html

Spicyone what school do u or did u attend? I went to Plano East!!!

from Plano,Tx.

I was only using it for acne but stopped using b/c it made me too drowsy.

My Doc really did not suggest one or the other!My opinion I would stick with the vest but that is just me.

Well I have to say every cf clinic is different but I have never had the resources to go to another cf clinic for a second opinion. I am usually on Tobi every month b/c tried one month of with colistin and did not help. I am also on zithromax 3x's a week and pulmozyme once a day. I do not have...

I have a problem keeping up my workout also but I usually go on a stationary bike for 30mins a day and lift weights for a hr. I like working out more than the bike. How about swimming!!!

done

Just wondering who else has mrsa on this forum b/c I do!!!

You usually get this bug primarily through contact with another CF patient who has it or in the hospital. There are 9 different types and some are worse than others. If you have a combination of pseudo and cepacia it is always worse than one but depending on which type it differs. Cepacia is a...

I only have the vest and did not know about the medpulse. Did look at the web page for medpulse and it sounds like it works the same way as the vest but I like that it looks like a brief case so if you travel it looks normal. I will ask my physician about them both though on Tues. and see what...

I am not pancreatic sufficient!! I need those enzymes.

That is the correct way to use it as the others had stated. I have used it as well in the past. To avoid the foam build up while mixing roll it with the saline on a flat surface and that will avoid that problem. Before TOBI came out I use to have to do tobramycin that way but no saline b/c it...

Unfortunately it is unpredictable as Emily stated but from my experience I have a severe case as well and have been from 17% to 21% fev the last 2-3 yrs. I know it is hard when you are really low on fev but exercise really does a lot.

I cultured pseudo when I was 8 or 9 and have cultured it ever since and a couple different strands. Also have cultured mrsa since I was 15

I say if he is just taking you to prom you don't have to but if it is more than just that then I would if I were you. I didn't have a problem in high school with telling people b/c most of the time they were ignorant about it and just accepted it. If I was you I wouldn't tell him if it's just a...

My name is Joseph Smith. I was born in New York but was raised in Plano,Tx. (right outside Dallas). I am not on the transplant list for lungs but close to it 21%fev. I am not working right now but will be attending Sanford Brown Institute for Surgical Technician Jan. 18th. I hang out with my...