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  1. J

    This place is so cool!

    I will not tell someone about CF unless they ask and my parents never kept it from me what I have I've known as long as I can remember!
  2. J

    Do-over

    I am not doing as well either but if I would do it over I would have CF just b/c of the fact that you look at things differently when you have cf. you do not take advantage of things and you live for that day. If I did not have this disease I might of not had as much fun as I did when I was...
  3. J

    What will you wish for?

    I thought that once you are over 18 you can not participate,I'm 21, but I would wish for a vacation to the bahamas with my family.
  4. J

    What to do in the hospital?

    Well I kept busy watching football on the weekends and playing a gameboy during the week days. A lot of people have laptops too so they can surf the web, play games and watch dvd's. Those are the only things I can think of.
  5. J

    Nocardia ?

    I have mrsa but not nocardia. what is that?
  6. J

    oral antibiotics for pseudomonas

    I always go on IV meds now! I just got off of them 3 days ago and I already have a cold but I have been using oral gsh and it helps. They do not give me any antibiotics to take orally anymore maybe b/c it won't work with me anymore.
  7. J

    Dr's- male vs female

    I have had both genders and do not mind either. I get upset when they are not aggresive enough and have only had that problem twice!
  8. J

    I got my transplant

    congrats I bet it feels good to be able to walk up and down the stairs and do normal things without huffing and puffing. I dread the stairs
  9. J

    How can you tell and what are the definite signs?

    take him to have a sweat test done if u think he has cf b/c the sooner diagnosed the better he'll be
  10. J

    how tall are you?how much do you weigh?

    21 5"3 125 lbs.
  11. J

    SSDI/Medicare

    It is 2 yrs. and automatic but you have medicaid until that kicks in and ssdi takes 5 months before it goes into effect so you should also apply for supplemental social security b/c once approved you have it immediately
  12. J

    Treatment routine and social life

    I guess when you put in tx you mean treatment. It is hard to balance social life with this disease but there is some ways around it. I personally state that I will be back and go home to do it or if I am at my house I will leave for about 20 mins. I use to skip it sometimes b/c I figure it was...
  13. J

    Adult CF Clinics

    All CF centers run different but usually from my experience being to 4 so far you see a dietician,doctor, social worker and respiratory. Sometimes you have the nurse pop in and also some new docs, etc. that are in the learning process. your there guinea pig!!!!
  14. J

    Gas cause constipation? Or Constipation cause gas?

    this is not the answer to the question but I use to have the same problem about getting full so quick (bloating) and was perscribed zantac 150 2x 's a day it could help if you are not taking it already.
  15. J

    Gas cause constipation? Or Constipation cause gas?

    this is not the answer to the question but I use to have the same problem about getting full so quick (bloating) and was perscribed zantac 150 2x 's a day it could help if you are not taking it already.
  16. J

    CALMAX

    I was wondering to everyone that uses some form of calcium supplement has anyone used calmax? If u r wondering what calmax is it is a calcium supplement that is in a liquid form and is combined with vitamin c and magnesium.
  17. J

    CALMAX

    I was wondering to everyone that uses some form of calcium supplement has anyone used calmax? If u r wondering what calmax is it is a calcium supplement that is in a liquid form and is combined with vitamin c and magnesium.
  18. J

    Scandishake Victim

    I use a blender with ice cream too. never put ADEK in my shakes though.
  19. J

    Scandishake Victim

    I use a blender with ice cream too. never put ADEK in my shakes though.
  20. J

    question...

    I AGREE! NEVER BE EMBARRASSED!
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