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The nurse came to change my port needle today and we noticed that this is the second week that the flush has been very resistant. She told me that I should be speaking with the surgeon who put it in to be approved for a heavier Heparin flush, I forgot the name of it. She said there is most...

The nurse came to change my port needle today and we noticed that this is the second week that the flush has been very resistant. She told me that I should be speaking with the surgeon who put it in to be approved for a heavier Heparin flush, I forgot the name of it. She said there is most...

I'm having mine November 2nd!

I'm having mine November 2nd!

I'm having mine November 2nd!

Sean, I have CF too, and I do understand how difficult it can be, especially when you are feeling down about having this disease, to hear someone say that they're grateful to have it. I tend to be more grateful towards the innovations and strides that medicine has come in order to keeping us...

Sean, I have CF too, and I do understand how difficult it can be, especially when you are feeling down about having this disease, to hear someone say that they're grateful to have it. I tend to be more grateful towards the innovations and strides that medicine has come in order to keeping us...

Sean, <br /> <br />I have CF too, and I do understand how difficult it can be, especially when you are feeling down about having this disease, to hear someone say that they're grateful to have it. I tend to be more grateful towards the innovations and strides that medicine has come in order to...

Hey Erin! First and foremost GOOD LUCK!! Trust me, this is the best decision you'll make with regard to CF! I got my port placed a year ago and it was the best choice I've ever made. I actually got the idea and courage to do it through this site. I didn't even know it existed! When I woke up...

Hey Erin! First and foremost GOOD LUCK!! Trust me, this is the best decision you'll make with regard to CF! I got my port placed a year ago and it was the best choice I've ever made. I actually got the idea and courage to do it through this site. I didn't even know it existed! When I woke up...

Hey Erin! <br /> <br />First and foremost GOOD LUCK!! Trust me, this is the best decision you'll make with regard to CF! I got my port placed a year ago and it was the best choice I've ever made. I actually got the idea and courage to do it through this site. I didn't even know it existed! <br...

I'm really glad that this was posted. I've been dx since 4 months old, but we've never asked about specific mutations, etc, and types of bugs. I've been told that I culture PA, e. coli, and staph. What is the difference between all of them. I most related to the posts in this thread about being...

I'm really glad that this was posted. I've been dx since 4 months old, but we've never asked about specific mutations, etc, and types of bugs. I've been told that I culture PA, e. coli, and staph. What is the difference between all of them. I most related to the posts in this thread about being...

I'm really glad that this was posted. I've been dx since 4 months old, but we've never asked about specific mutations, etc, and types of bugs. I've been told that I culture PA, e. coli, and staph. What is the difference between all of them. I most related to the posts in this thread about being...

You may want to speak with your doctor in regard to stopping the TOBI. When I started Cayston the doctor said I could use it as a replacement to the TOBI. It may be something to think about. It certainly cut down my nebulizer time per day.

You may want to speak with your doctor in regard to stopping the TOBI. When I started Cayston the doctor said I could use it as a replacement to the TOBI. It may be something to think about. It certainly cut down my nebulizer time per day.

You may want to speak with your doctor in regard to stopping the TOBI. When I started Cayston the doctor said I could use it as a replacement to the TOBI. It may be something to think about. It certainly cut down my nebulizer time per day.

Yea that is what I was thinking too Cheryl.

Yea that is what I was thinking too Cheryl.

Yea that is what I was thinking too Cheryl.