Search results

  1. S

    CFers over 40

    I was 12 at the time of diag. now 63. FEV1 31. Worked for 35 yrs.. Took med. disability to better take care of CF this was in 2004, some 7yrs. ago. Dr. suggested more intense neb. rx and exercise program, which was hard to do working 40+hrs. and being on call. Had no problem getting on...
  2. S

    CFers over 40

    I was 12 at the time of diag. now 63. FEV1 31. Worked for 35 yrs.. Took med. disability to better take care of CF this was in 2004, some 7yrs. ago. Dr. suggested more intense neb. rx and exercise program, which was hard to do working 40+hrs. and being on call. Had no problem getting on...
  3. S

    New Job, Getting Off SSI...

    <P>Congrats on getting a job LKBamberg. Go for both the long term and short term disability. It will be worth it's wt. in Gold one day maybe. Definitely worth the bucks!! It paid off for me many times over. Drawing 2/3 of my salary until age 66 and can keep employers insurance, secondary ins...
  4. S

    New Job, Getting Off SSI...

    <P>Congrats on getting a job LKBamberg. Go for both the long term and short term disability. It will be worth it's wt. in Gold one day maybe. Definitely worth the bucks!! It paid off for me many times over. Drawing 2/3 of my salary until age 66 and can keep employers insurance, secondary ins...
  5. S

    New Job, Getting Off SSI...

    <P>Congrats on getting a job LKBamberg. Go for both the long term and short term disability. It will be worth it's wt. in Gold one day maybe. Definitely worth the bucks!! It paid off for me many times over. Drawing 2/3 of my salary until age 66 and can keep employers insurance, secondary ins...
  6. S

    Cayston or Tobi?

    <P>I alternate Tobi and Cayston 28 days on each. When I started Cayston my FEV1 was 28 now it is 31. Have been on Cayston about a yr. and Tobi for 8-9 yrs. Maybe the Cayston made the small difference. We all know our lung function drops a little with age, they say about 10% per yr. with CF if I...
  7. S

    Cayston or Tobi?

    <P>I alternate Tobi and Cayston 28 days on each. When I started Cayston my FEV1 was 28 now it is 31. Have been on Cayston about a yr. and Tobi for 8-9 yrs. Maybe the Cayston made the small difference. We all know our lung function drops a little with age, they say about 10% per yr. with CF if I...
  8. S

    Cayston or Tobi?

    <P>I alternate Tobi and Cayston 28 days on each. When I started Cayston my FEV1 was 28 now it is 31. Have been on Cayston about a yr. and Tobi for 8-9 yrs. Maybe the Cayston made the small difference. We all know our lung function drops a little with age, they say about 10% per yr. with CF if I...
  9. S

    Four years post TX!

    <P>Good for you beautifulsoul!!! Keep up the work!!</P> <P>My sister who was diag. at age 9, now 60 is over 11yrs. post double trans. doing great, to see her then and now you would never imagine how low she was, on deaths door and knocking. </P> <P>Great all the CF family who had a transplant...
  10. S

    Four years post TX!

    <P>Good for you beautifulsoul!!! Keep up the work!!</P> <P>My sister who was diag. at age 9, now 60 is over 11yrs. post double trans. doing great, to see her then and now you would never imagine how low she was, on deaths door and knocking. </P> <P>Great all the CF family who had a transplant...
  11. S

    Four years post TX!

    <P>Good for you beautifulsoul!!! Keep up the work!!</P> <P><BR>My sister who was diag. at age 9, now 60 is over 11yrs. post double trans. doing great, to see her then and now you would never imagine how low she was, on deaths door and knocking. </P> <P>Great all the CF family who had a...
  12. S

    Eflow Car Adapters

    I use energizer rechargeable batteries, got them at Sams ove a yr. ago like $10. for pack of 12 batteries. Already had charger to recharge double A batteries. Get about 3-4 wks out of each charge. Still on the 1st set of four batteries. I use batteries for all Cayston and Tobi, do not use AC...
  13. S

    Eflow Car Adapters

    I use energizer rechargeable batteries, got them at Sams ove a yr. ago like $10. for pack of 12 batteries. Already had charger to recharge double A batteries. Get about 3-4 wks out of each charge. Still on the 1st set of four batteries. I use batteries for all Cayston and Tobi, do not use AC...
  14. S

    Eflow Car Adapters

    I use energizer rechargeable batteries, got them at Sams ove a yr. ago like $10. for pack of 12 batteries. Already had charger to recharge double A batteries. Get about 3-4 wks out of each charge. Still on the 1st set of four batteries. I use batteries for all Cayston and Tobi, do not use AC...
  15. S

    nebulizer question

    <P>I use the eflow with the Altera neb. cup for Cayston one month and then Tobi the next, just cut the vol.  Tobi in 1/2 due to the effiency of Altera. Cayston takes < 2 min. Tobi<5-6.</P> <P>I start with a new Altera cup when starting the Cayston. Be sure and wash  and rinse with hot water. I...
  16. S

    nebulizer question

    <P>I use the eflow with the Altera neb. cup for Cayston one month and thenTobi the next, just cut the vol. Tobiin 1/2 due to the effiency of Altera. Cayston takes < 2 min. Tobi<5-6.</P> <P>I start with a new Altera cupwhen starting the Cayston. Be sure and wash and rinse with hot water. I use...
  17. S

    nebulizer question

    <P><BR>I use the eflow with the Altera neb. cup for Cayston one month and thenTobi the next, just cut the vol. Tobiin 1/2 due to the effiency of Altera. Cayston takes < 2 min. Tobi<5-6.</P> <P>I start with a new Altera cupwhen starting the Cayston. Be sure and wash and rinse with hot water. I...
  18. S

    Hypertonic Saline in 2 year old

    I have used HTS for 9 yrs. Started with 3% now use 7%, really can not tell the difference. I do the HTS first, I have tried bronchodilator first, but get better results with the HTS first. This may not make sense but it works for me. As for a child I would suggest to start at the lowest %HTS...
  19. S

    Hypertonic Saline in 2 year old

    I have used HTS for 9 yrs. Started with 3% now use 7%, really can not tell the difference. I do the HTS first, I have tried bronchodilator first, but get better results with the HTS first. This may not make sense but it works for me. As for a child I would suggest to start at the lowest %HTS...
  20. S

    Hypertonic Saline in 2 year old

    I have used HTS for 9 yrs. Started with 3% now use 7%, really can not tell the difference. I do the HTS first, I have tried bronchodilator first, but get better results with the HTS first. This may not make sense but it works for me. As for a child I would suggest to start at the lowest %HTS...
Top