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  1. S

    What do you think?

    The Pulmo-Aide neb. compressor with the Pari LC neb. is hard to beat. I have 3, 2 that I use in different locations in the house that are(at least 5yrs. old) and one new one in the box. My neb. time for HTS and Xopenex and Acetylcysteine is about 1 1/4 hrs. In my opinion I really do not want to...
  2. S

    Exercise help please

    I agree with you, good hard exercise is very important for CF folks. I did not have or take time to really exercise until I retired 6 yrs. ago. As a child I did not consider my self any different from other children. I did what other children did, all activity as well as Boy Scouts. Did the...
  3. S

    Exercise help please

    I agree with you, good hard exercise is very important for CF folks. I did not have or take time to really exercise until I retired 6 yrs. ago. As a child I did not consider my self any different from other children. I did what other children did, all activity as well as Boy Scouts. Did the...
  4. S

    Exercise help please

    I agree with you, good hard exercise is very important for CF folks. I did not have or take time to really exercise until I retired 6 yrs. ago. As a child I did not consider my self any different from other children. I did what other children did, all activity as well as Boy Scouts. Did the...
  5. S

    Time to stop working - how do you handle the change?

    Hello MeasureInLove, I like you enjoyed what I was doing. Worked for same employer 35 yrs. but because of drop in FEV1 (presently at 31) my Dr. and my bride of 40+ yrs. decided that it was in my best interest to stop working and take better care of my CF. This was in 2004. It was a adjustment...
  6. S

    Time to stop working - how do you handle the change?

    Hello MeasureInLove, I like you enjoyed what I was doing. Worked for same employer 35 yrs. but because of drop in FEV1 (presently at 31) my Dr. and my bride of 40+ yrs. decided that it was in my best interest to stop working and take better care of my CF. This was in 2004. It was a adjustment...
  7. S

    Time to stop working - how do you handle the change?

    Hello MeasureInLove, <br /> <br />I like you enjoyed what I was doing. Worked for same employer 35 yrs. but because of drop in FEV1 (presently at 31) my Dr. and my bride of 40+ yrs. decided that it was in my best interest to stop working and take better care of my CF. This was in 2004. It was a...
  8. S

    CF Equipment?

    I have had a good many nebulizer machines over the yrs.. I have had great success from the Pulmo-Aide ®Compressor/Nebulizer DEV5650D (Each)$110.74 x1 $110.74. This is from JRSMedical.com. You can get nebulizers and filters for your compressor also. The Pulmo-Aide is a work horse, I have 2 of...
  9. S

    CF Equipment?

    I have had a good many nebulizer machines over the yrs.. I have had great success from the Pulmo-Aide ®Compressor/Nebulizer DEV5650D (Each)$110.74 x1 $110.74. This is from JRSMedical.com. You can get nebulizers and filters for your compressor also. The Pulmo-Aide is a work horse, I have 2 of...
  10. S

    CF Equipment?

    I have had a good many nebulizer machines over the yrs.. I have had great success from the Pulmo-Aide ®Compressor/Nebulizer <br />DEV5650D (Each)$110.74 x1 $110.74. This is from JRSMedical.com. You can get nebulizers and filters for your compressor also. The Pulmo-Aide is a work horse, I have 2...
  11. S

    Slow Moving Bowel Obstruction

    Bowel obst. is like having a bad cramp, Charlie horse, muscle spasm in your tommy that comes and goes (peristalsis) along with no bowel movement or gas passing for a day or so. Hope you never have one. Sharp throbbing pain!!
  12. S

    Slow Moving Bowel Obstruction

    Bowel obst. is like having a bad cramp, Charlie horse, muscle spasm in your tommy that comes and goes (peristalsis) along with no bowel movement or gas passing for a day or so. Hope you never have one. Sharp throbbing pain!!
  13. S

    Slow Moving Bowel Obstruction

    Bowel obst. is like having a bad cramp, Charlie horse, muscle spasm in your tommy that comes and goes (peristalsis) along with no bowel movement or gas passing for a day or so. Hope you never have one. Sharp throbbing pain!!
  14. S

    Slow Moving Bowel Obstruction

    Golytely (go quickly) a better name for it. Get it cold, I mix crystal light lemonade, this helps with the taste. Start slowly sipping it. It will unstop you. I have been there several times. Good luck, you do not want to have your tummy operated on unless it is the last and only option. I now...
  15. S

    Slow Moving Bowel Obstruction

    Golytely (go quickly) a better name for it. Get it cold, I mix crystal light lemonade, this helps with the taste. Start slowly sipping it. It will unstop you. I have been there several times. Good luck, you do not want to have your tummy operated on unless it is the last and only option. I now...
  16. S

    Slow Moving Bowel Obstruction

    Golytely (go quickly) a better name for it. Get it cold, I mix crystal light lemonade, this helps with the taste. Start slowly sipping it. It will unstop you. I have been there several times. Good luck, you do not want to have your tummy operated on unless it is the last and only option. I now...
  17. S

    Do you clean the NUK?

    I use tap water to steam sterlize. Use 50% vinegar tap water mixture, soak over night to clean out the the rusty looking build up. Also, after each use of the sterilizer I wipe out the base with a paper towel, seems like this slows the build up process.
  18. S

    Do you clean the NUK?

    I use tap water to steam sterlize. Use 50% vinegar tap water mixture, soak over night to clean out the the rusty looking build up. Also, after each use of the sterilizer I wipe out the base with a paper towel, seems like this slows the build up process.
  19. S

    Do you clean the NUK?

    I use tap water to steam sterlize. Use 50% vinegar tap water mixture, soak over night to clean out the the rusty looking build up. Also, after each use of the sterilizer I wipe out the base with a paper towel, seems like this slows the build up process.
  20. S

    Something new with AZLI/Cayston

    I do what Debra does except I do the hts before the xopenex, they say do the bronco dial. Before the hts but that does not work best for me. I might add I become well hydrated 3-4 12oz glasses of water 30-45 min prior to neb. esp. In the am and well hydrated the rest of the day. I have never...
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