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Our children are 35, we have never talked about when any of us are going to die. Except that when wedo die, heaven is where we want to go.They know dad has to do what he does becasue of CF. The only person who knowswhen any of us are goignto dieis God. We end most of our conversation with a I...

<p>Our children are 35, we have never talked about when any of us are going to die. Except that when wedo die, heaven is where we want to go.They know dad has to do what he does becasue of CF. The only person who knowswhen any of us are goignto dieis God. We end most of our conversation with a I...

If you use Acetylcysteine it is on back order. Do not know when it will be avilable.

If you use Acetylcysteine it is on back order. Do not know when it will be avilable.

<p>If you use Acetylcysteine it is on back order. Do not know when it will be avilable.

Hello CF friends if I may call you that. God is a all Mighty God!! We have to play the hand we are dealt, regardless of whether it is bad or good. Depending on the decisions we make in life, whether they are good or bad we have to live with them. Attitude helps in making the correct choices. For...

Hello CF friends if I may call you that. God is a all Mighty God!! We have to play the hand we are dealt, regardless of whether it is bad or good. Depending onthe decisions we make in life, whether they are good or bad we have to live with them. Attitude helps in making the correct choices. For...

<p>Hello CF friends if I may call you that. God is a all Mighty God!! <br />We have to play the hand we are dealt, regardless of whether it is bad or good. <br />Depending onthe decisions we make in life, whether they are good or bad we have to live with them. Attitude helps in making the...

Come on team mate CF buddies. I know it is hard, but we have to keep a positive attitude. It would be nice if we had the new VX drugs, but it takes time. I realize that some of us do not have much time reaming including me FEV1 31, but maybe if we keep up the fight we will win. For me personally...

Come on team mate CF buddies. I know it is hard, butwe have to keep a positive attitude. It would be nice if we had the new VX drugs, but it takes time. I realize that some of us do not have much time reaming including me FEV1 31, but maybe if we keep up the fight we will win. For me personally...

<p>Come on team mate CF buddies. I know it is hard, butwe have to keep a positive attitude. It would be nice if we had the new VX drugs, but it takes time. I realize that some of us do not have much time reaming including me FEV1 31, but maybe if we keep up the fight we will win. For me...

Beside Cayston, I do Tobi 1/2 ampule due to the effiency of the altera nebulizer, on my alt. month from the Cayston. As stated previously in the other post, wash the head asap after use in hot soapy water then rinse in hot water. I use the steam sterilizer that came with the altera nightly...

Beside Cayston, I do Tobi 1/2 ampule due to the effiency of the altera nebulizer, on my alt. month from the Cayston. As stated previously in the other post, wash the head asap after use in hot soapy water then rinse in hot water. I use the steam sterilizer that came with the altera nightly...

Beside Cayston, I do Tobi 1/2 ampule due to the effiency of the altera nebulizer, on my alt. month from the Cayston. As stated previously in the other post, wash the head asap after use in hot soapy water then rinse in hot water. I use the steam sterilizer that came with the altera nightly...

I have blinked out (2-3 times) for a few seconds while hard coughing. Some what of a scary situtation. I know my limits now and stop coughing for a few seconds and let my body recompose then resume my coughing. I think what happens is you drop your blood pressure, a vagal response to the...

I have blinked out (2-3 times) for a few seconds while hard coughing. Some what of a scary situtation. I know my limits now and stop coughing for a few seconds and let my body recompose then resume my coughing. I think what happens is you drop your blood pressure, a vagal response to the...

I have blinked out (2-3 times) for a few seconds while hard coughing. Some what of a scary situtation. I know my limits now and stop coughing for a few seconds and let my body recompose then resume my coughing. I think what happens is you drop your blood pressure, a vagal response to the...

You must be wigged out on something!! Hope you daughter does not suffer. If she has the + sweat test for CF and the CF gene mutation, sounds like she has CF unfortunately. Get a second opinion. Get a third opinion. May God be with your daughter and you. If infact that she has CF she needs to...

You must be wigged out on something!! Hope you daughter does not suffer. If she has the + sweat test for CF and the CF gene mutation, sounds like she has CF unfortunately. Get a second opinion. Get a third opinion. May God be with your daughter and you. If infact that she has CF she needs to...

You must be wigged out on something!! Hope you daughter does not suffer. If she has the + sweat test for CF and the CF gene mutation, sounds like she has CF unfortunately. <br /> <br />Get a second opinion. Get a third opinion. May God be with your daughter and you. If infact that she has CF...