Search results

  1. J

    Baseline cough in children?

    Our son is 9, and just recently settled on a new baseline of consistent cough. We have not had previously, but after about 8 months of multiple oral & IV abx + a couple of bronch's, it looks like this is where we are now <img src="i/expressions/face-icon-small-sad.gif" border="0">
  2. J

    Baseline cough in children?

    Our son is 9, and just recently settled on a new baseline of consistent cough. We have not had previously, but after about 8 months of multiple oral & IV abx + a couple of bronch's, it looks like this is where we are now <img src="i/expressions/face-icon-small-sad.gif" border="0">
  3. J

    Baseline cough in children?

    Our son is 9, and just recently settled on a new baseline of consistent cough. <br /> <br />We have not had previously, but after about 8 months of multiple oral & IV abx + a couple of bronch's, it looks like this is where we are now <img src="i/expressions/face-icon-small-sad.gif" border="0">
  4. J

    Leaving a child alone in the hospital

    Statistics show that even grown adults left alone in the hospital have worse overall outcomes. If there is any way to avoid it don't leave your little girl alone.
  5. J

    Leaving a child alone in the hospital

    Statistics show that even grown adults left alone in the hospital have worse overall outcomes. If there is any way to avoid it don't leave your little girl alone.
  6. J

    Leaving a child alone in the hospital

    Statistics show that even grown adults left alone in the hospital have worse overall outcomes. <br /> <br />If there is any way to avoid it don't leave your little girl alone.
  7. J

    My son's father tells him he DOES NOT HAVE CF!

    Ok, let me see if I can tackle this:<br><br>1) If they did the full sequencing (would have checked ~1500 mutations); then there is no need to test you or his father.  They would be looking for the same mutations.<br><br>2) In order for your son to have CF, he would have to have 2 mutations, one...
  8. J

    My son's father tells him he DOES NOT HAVE CF!

    Ok, let me see if I can tackle this:<br><br>1) If they did the full sequencing (would have checked ~1500 mutations); then there is no need to test you or his father. They would be looking for the same mutations.<br><br>2) In order for your son to have CF, he would have to have 2 mutations, one...
  9. J

    My son's father tells him he DOES NOT HAVE CF!

    Ok, let me see if I can tackle this:<br><br>1) If they did the full sequencing (would have checked ~1500 mutations); then there is no need to test you or his father. They would be looking for the same mutations.<br><br>2) In order for your son to have CF, he would have to have 2 mutations, one...
  10. J

    family leave medical act

    From an FMLA standpoint once you pass 12 weeks they can terminate you if you are not available to work, and it is legal even if it sucks. However, given that you have CF I would definitely talk to Julie (first reply) about getting accommodations in place due to the disability. It will help...
  11. J

    family leave medical act

    From an FMLA standpoint once you pass 12 weeks they can terminate you if you are not available to work, and it is legal even if it sucks. However, given that you have CF I would definitely talk to Julie (first reply) about getting accommodations in place due to the disability. It will help...
  12. J

    family leave medical act

    From an FMLA standpoint once you pass 12 weeks they can terminate you if you are not available to work, and it is legal even if it sucks. <br /> <br />However, given that you have CF I would definitely talk to Julie (first reply) about getting accommodations in place due to the disability. It...
  13. J

    I NEED YOUR INPUT PLEASE

    1) Yes, most likely once colonized with PA it will be around for the long-haul. The rule of 3 negatives = stopping TOBI is subjective at best, because you can never be sure it is gone, especially since normally you test what you bring up, not necessarily what is in the lungs. 2) Yes, many...
  14. J

    I NEED YOUR INPUT PLEASE

    1) Yes, most likely once colonized with PA it will be around for the long-haul. The rule of 3 negatives = stopping TOBI is subjective at best, because you can never be sure it is gone, especially since normally you test what you bring up, not necessarily what is in the lungs. 2) Yes, many...
  15. J

    I NEED YOUR INPUT PLEASE

    1) Yes, most likely once colonized with PA it will be around for the long-haul. The rule of 3 negatives = stopping TOBI is subjective at best, because you can never be sure it is gone, especially since normally you test what you bring up, not necessarily what is in the lungs. <br /> <br />2)...
  16. J

    I hate CF

    Thank you all for your support, he is back home and had a pretty good day today. <br> <br>As you all know some days are better than others, and sometimes otherwise not surprising news catches you off guard. <br> <br>Becca's mom, thank you for the suggestion. While it is not associated with his...
  17. J

    I hate CF

    Thank you all for your support, he is back home and had a pretty good day today. <br> <br>As you all know some days are better than others, and sometimes otherwise not surprising news catches you off guard. <br> <br>Becca's mom, thank you for the suggestion. While it is not associated with his...
  18. J

    I hate CF

    Thank you all for your support, he is back home and had a pretty good day today. <br> <br>As you all know some days are better than others, and sometimes otherwise not surprising news catches you off guard. <br> <br>Becca's mom, thank you for the suggestion. While it is not associated with his...
  19. J

    Hemoptysis

    From what you describe I don't see what I would consider justification for an embolization. They are normally used if 1) the bleeding keeps going, or reoccurs over a period of time or 2) if you bleed enough that your stats (PTT & PT) are impacted. Beyond that is sounds like your Dr was being...
  20. J

    Hemoptysis

    From what you describe I don't see what I would consider justification for an embolization. They are normally used if 1) the bleeding keeps going, or reoccurs over a period of time or 2) if you bleed enough that your stats (PTT & PT) are impacted. Beyond that is sounds like your Dr was being...
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