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  1. J

    Portrayed Life Expectancy Affecting Life Decisions

    I personally am big on quality of life. If she enjoys school, and likes the challenge go for it. There is nothing wrong with pushing her to achieve; BUT if/when she is not able to keep up don't forget to give liberal support. I *think* what the teacher was trying to say is why put her in a...
  2. J

    Portrayed Life Expectancy Affecting Life Decisions

    I personally am big on quality of life. If she enjoys school, and likes the challenge go for it. <br /> <br />There is nothing wrong with pushing her to achieve; BUT if/when she is not able to keep up don't forget to give liberal support. I *think* what the teacher was trying to say is why put...
  3. J

    tough topic- portrayed life expectancy

    <div class="FTQUOTE"><begin quote> Basically..... it all comes down to: Statistics lie and liars use statistics. </end quote></div> Exactly. On this the CFF is no different than their counterparts for breast cancer, MS, CP, etc.
  4. J

    tough topic- portrayed life expectancy

    <div class="FTQUOTE"><begin quote> Basically..... it all comes down to: Statistics lie and liars use statistics. </end quote> Exactly. On this the CFF is no different than their counterparts for breast cancer, MS, CP, etc.
  5. J

    tough topic- portrayed life expectancy

    <div class="FTQUOTE"><begin quote> <br />Basically..... it all comes down to: Statistics lie and liars use statistics. <br /></end quote> <br /> <br />Exactly. On this the CFF is no different than their counterparts for breast cancer, MS, CP, etc.
  6. J

    tough topic- portrayed life expectancy

    <div class="FTQUOTE"><begin quote><div> </div><div>If that was how they actually did things then the "median" age would be a lot lower.  </div><div>Basically..... it all comes down to: Statistics lie and liars use statistics.</div></end quote></div><br><br>Exactly.  On this the CFF is no...
  7. J

    tough topic- portrayed life expectancy

    <div class="FTQUOTE"><begin quote> If that was how they actually did things then the "median" age would be a lot lower. Basically..... it all comes down to: Statistics lie and liars use statistics.</end quote><br><br>Exactly. On this the CFF is no different than their counterparts for breast...
  8. J

    tough topic- portrayed life expectancy

    <div class="FTQUOTE"><begin quote> If that was how they actually did things then the "median" age would be a lot lower. Basically..... it all comes down to: Statistics lie and liars use statistics.</end quote><br><br>Exactly. On this the CFF is no different than their counterparts for breast...
  9. J

    My niece was diagnosed last year

    Firstly, the heavy antibiotic use is not 'abnormal', nor it is anything to worry about. While there is a risk of developing resistance, this is just part of CF. The Netherlands have pretty good medical care, you can probably feel comfortable they are watching the amount the use. As for your...
  10. J

    My niece was diagnosed last year

    Firstly, the heavy antibiotic use is not 'abnormal', nor it is anything to worry about. While there is a risk of developing resistance, this is just part of CF. The Netherlands have pretty good medical care, you can probably feel comfortable they are watching the amount the use. As for your...
  11. J

    My niece was diagnosed last year

    Firstly, the heavy antibiotic use is not 'abnormal', nor it is anything to worry about. While there is a risk of developing resistance, this is just part of CF. The Netherlands have pretty good medical care, you can probably feel comfortable they are watching the amount the use. <br /> <br...
  12. J

    How long do you do IV antibiotics?

    We 'normally' do ~2-3 weeks depending on how he is doing. We actually are finishing up today, and the threshold his Dr used was 1 week beyond the stopping of symptoms that triggered the IV's.
  13. J

    How long do you do IV antibiotics?

    We 'normally' do ~2-3 weeks depending on how he is doing. We actually are finishing up today, and the threshold his Dr used was 1 week beyond the stopping of symptoms that triggered the IV's.
  14. J

    How long do you do IV antibiotics?

    We 'normally' do ~2-3 weeks depending on how he is doing. We actually are finishing up today, and the threshold his Dr used was 1 week beyond the stopping of symptoms that triggered the IV's.
  15. J

    Where do you tell people to look for CF info?

    FYI, if you want a source of 'facts' about CF, unlike the CFF, their Canadian counterpart publishes their statistics.  Here is a link to their site, as well as one to the most recent published statistics.  FYI, I'd kill for CFF to be willing to share theirs given the amount of data they hold...
  16. J

    Where do you tell people to look for CF info?

    FYI, if you want a source of 'facts' about CF, unlike the CFF, their Canadian counterpart publishes their statistics. Here is a link to their site, as well as one to the most recent published statistics. FYI, I'd kill for CFF to be willing to share theirs given the amount of data they hold onto...
  17. J

    Where do you tell people to look for CF info?

    FYI, if you want a source of 'facts' about CF, unlike the CFF, their Canadian counterpart publishes their statistics. Here is a link to their site, as well as one to the most recent published statistics. FYI, I'd kill for CFF to be willing to share theirs given the amount of data they hold onto...
  18. J

    tough topic- portrayed life expectancy

    <div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Momto2</b></i> <!--[if gte mso 9]><xml> <w:WordDocument> <w:View>Normal</w:View> <w:Zoom>0</w:Zoom> <w<img src="">unctuationKerning/> <w:ValidateAgainstSchemas/> <w:SaveIfXMLInvalid>false</w:SaveIfXMLInvalid>...
  19. J

    tough topic- portrayed life expectancy

    <div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Momto2</b></i> <!--[if gte mso 9]><xml> <w:WordDocument> <w:View>Normal</w:View> <w:Zoom>0</w:Zoom> <w<img src="">unctuationKerning/> <w:ValidateAgainstSchemas/> <w:SaveIfXMLInvalid>false</w:SaveIfXMLInvalid>...
  20. J

    tough topic- portrayed life expectancy

    <div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Momto2</b></i> <!--[if gte mso 9]><xml> <w:WordDocument> <w:View>Normal</w:View> <w:Zoom>0</w:Zoom> <w<img src="">unctuationKerning/> <w:ValidateAgainstSchemas/> <w:SaveIfXMLInvalid>false</w:SaveIfXMLInvalid>...
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