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LouLou, normally I stay with him but I'm in NY working so my wife is with him, and my other kids are spread out across Georgia at friends. It was supposed to be an outpatient procedure than morphed into a 2-day stay so we weren't prepared at all <img src="i/expressions/face-icon-small-sad.gif"...

LouLou, normally I stay with him but I'm in NY working so my wife is with him, and my other kids are spread out across Georgia at friends. It was supposed to be an outpatient procedure than morphed into a 2-day stay so we weren't prepared at all <img src="i/expressions/face-icon-small-sad.gif"...

I don't know of anywhere to buy them, sorry <img src="i/expressions/face-icon-small-sad.gif" border="0"> Normally in the US the pharmacy the provides the eFlow also provides replacement parts as well, including the heads. Hopefully someone else might have an idea.....

I don't know of anywhere to buy them, sorry <img src="i/expressions/face-icon-small-sad.gif" border="0"> Normally in the US the pharmacy the provides the eFlow also provides replacement parts as well, including the heads. Hopefully someone else might have an idea.....

I don't know of anywhere to buy them, sorry <img src="i/expressions/face-icon-small-sad.gif" border="0"> <br /> <br />Normally in the US the pharmacy the provides the eFlow also provides replacement parts as well, including the heads. <br /> <br />Hopefully someone else might have an idea.....

<P>M was just inpatient the start of May, and did 2 weeks of IV abx (Fortaz & Merepenem).  Admit was initially for a GI/Liver issue but the started IV's anyways for a lingering cough.</P> <P> </P> <P>He was scheduled for an outpatient GI scope again to follow up from before and his CF Dr wanted...

<P>M was just inpatient the start of May, and did 2 weeks of IV abx (Fortaz & Merepenem). Admit was initially for a GI/Liver issue but the started IV's anyways for a lingering cough.</P> <P></P> <P>He was scheduled for an outpatient GI scope again to follow up from before and his CF Dr wanted to...

<P><BR>M was just inpatient the start of May, and did 2 weeks of IV abx (Fortaz & Merepenem). Admit was initially for a GI/Liver issue but the started IV's anyways for a lingering cough.</P> <P></P> <P>He was scheduled for an outpatient GI scope again to follow up from before and his CF Dr...

LostMiler, can I ask which transplant center is working with you? I know there are some that now that will work with Cepacia or Myco; but I'm glad you found someone that would look at the 'whole' picture and just curious as I know others have struggled to find that solution. Brian, as a CF-dad...

LostMiler, can I ask which transplant center is working with you? I know there are some that now that will work with Cepacia or Myco; but I'm glad you found someone that would look at the 'whole' picture and just curious as I know others have struggled to find that solution. Brian, as a CF-dad...

LostMiler, can I ask which transplant center is working with you? <br /> <br />I know there are some that now that will work with Cepacia or Myco; but I'm glad you found someone that would look at the 'whole' picture and just curious as I know others have struggled to find that solution. <br />...

Please be careful when reading & replying to very old posts. The original post was nearly 4 years ago, and by someone who at the time was a well respected and established member. I do not have any reason to suspect there was anything inappropriate in his post, even if it was pretty glowing...

Reaching out and sending hugs your way TinyMiracle. I know the gtube is not fun; but once she recovers from the surgery in a few days it can have a drastic impact on health as you can boost her weight quickly. Studies have shown a direct correlation to body weight and long-term health with CF...

Reaching out and sending hugs your way TinyMiracle. I know the gtube is not fun; but once she recovers from the surgery in a few days it can have a drastic impact on health as you can boost her weight quickly. Studies have shown a direct correlation to body weight and long-term health with CF...

Reaching out and sending hugs your way TinyMiracle. I know the gtube is not fun; but once she recovers from the surgery in a few days it can have a drastic impact on health as you can boost her weight quickly. Studies have shown a direct correlation to body weight and long-term health with CF...

LTA, your mutation combination is rare. Yes F508 is the most common mutation; however, the R334W has been noted in a handful of patients worldwide. There is some question from a medical standpoint about it's role in disease formation. The presence of 1 mutations (F508) means you are a...

LTA, your mutation combination is rare. Yes F508 is the most common mutation; however, the R334W has been noted in a handful of patients worldwide. There is some question from a medical standpoint about it's role in disease formation. The presence of 1 mutations (F508) means you are a...

LTA, your mutation combination is rare. <br /> <br />Yes F508 is the most common mutation; however, the R334W has been noted in a handful of patients worldwide. There is some question from a medical standpoint about it's role in disease formation. <br /> <br />The presence of 1 mutations (F508)...

You can, and we have. The only issue we had it is tended to clog up the screen a bit so you have to make sure to rinse it really well afterwards. And yes, we just used the normal HTS vial.

You can, and we have. The only issue we had it is tended to clog up the screen a bit so you have to make sure to rinse it really well afterwards. And yes, we just used the normal HTS vial.