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Yes, I understand what you are going through. I lost my sister/best friend to CF two years ago and I have CF too. Personally, I don't say it get's easier, it gets different. The way you grieve gets different. Everything is different. Let people help you and be there for you, don't shut them out...

AWESOME! Give that girl a proper chance!

The worst part of sinus surgery for me was right when I got out of surgery, I was so drugged and I was vomiting blood that was dripping down from my sinuses. People say you won't be hungry as soon as you get out of surgery, but I was starving. Thankfully, my boyfriend brought me a milkshake, I...

Ceftazamine is my favorite IV drug because it is so easy! They should definitely be able to send you home on it. It's a push IV(it's in a gigantic syringe) and you just have to push it slowly so that you dose it over 5 minutes. I believe it is every 8 hours(its been a long time & im resistant...

My doctor says that "most woman with CF's health decline after they have a baby, but most me with CF's health doesn't decline." He says it's because women are busy taking care of their kids and don't take care of themselves. And the lack of sleep, germs, etc. Personally, I believe that if you...

Yes, I get it, it can be awful, especially when traveling somewhere tropical and I'm in the sun fore extended periods at a time, for several days in a row. I was told it was just something people with CF were prone to, whether or not you are on antibiotics or not. I always called it "sun...

I feel like I've responded to one of your threads before, so I hope I'm not repeating myself to you :) It is very frustrating, I've switched career/career paths several times because of how they have affected my health and it is a nuisance because you do all of this training to work in a...

My doctor told me not to take Boswellia Extract as it might interact with my CF medications. Just FYI.

Do all of your PICC lines occur through just a normal Infusion nurse? Or do you do it through the IR department? For a long time I did it through the IR department where they have a X-ray machine and an ultrasound and they had better luck than the Infusion nurses. It still was a pain in the...

I tried gluten free for at least 6 weeks and didn't notice a difference. I was trying it more for my joints, but didn't notice much in my GI system, either. I did notice I craved sweets less, which was good for my diabetes :) I still each mostly GF because my boyfriend has to eat GF and I really...

I'm a Kaiser patient, so I just get it through their Pharmacy's. Unfortunately they don't have any facilities in Las Vegas area, so you probably can't get it through them. Sorry I can't be of help.

I'm also curious what her PFT's were before she began Kalydeco?

Where do you live? I'm in California & they always say there is a shortage of Acetylcysteine 10%(mucomyst) but if I ask for a different concentration-- Acetylcysteine 20% they are always able to get it for me. You just have to mix 3ml of saline or albuterol with 3 ml of Acetylcysteine. I've...

When I was around 20/21 as well. I had developed bad side effects to Cipro and eventually resistance to it. I also found it wasn't really helpful to take anymore not sure if it was because of the thick mucus or what, but if I did take it it wasn't doing anything for me. So, I was off and on...

I'm curious about it, too, and what people's opinions are on it. I know some people who take it as a supplement and claim it helps, have you heard anything about that?

My boyfriend hasn't ever gotten any yeast/fungal infections from me and I've had them off and on for years. We live together, so I would know :) Does she take probiotics? I take Culturelle all the time & when I'm on IVs I add on femdophilis. Any slight irritation down there while on...

So many things- 1. Laughing so hard it turns into a cough attack. 2. Peeing from coughing so hard. 3. Clogging toilets. 4. Farting/stinky poop. I don't always own up to the farts :) When I was little my moms best friend would tell her daughter in Chinese, " She made a stinky poo poo again".

Yeah, his actions are strange. He sounds old fashioned. He's willing to do the normal stuff, but not willing to try much that is new(whether new to you or new to everyone). Instead of telling me, "No, you can't try that", my doctor says, "Well, we can try it, but I doubt you will like it/it...

I wouldn't recommend working as a vet tech, as even though I haven't had a transplant, at work I am exposed to cats & cat litter occasionally and it makes me cough and I feel more congested afterwards. I've been told litter isn't good for CF-ers to be around. I've also heard the same things as...

Wow, what you are describing is the spitting image of my last doctor. Until you wrote, "St Louis, MO", I really thought it was my old doctor. I couldn't stand having a doctor who wouldn't try "new things" before there was more data. It sounds like you don't trust your doctor, and if that is the...