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It could be just side effects of the antibiotics that are making your feel "bleh" and could be the reason why your appetite isn't totally back to normal. I'd give it a week after being done with the antibiotics to feel 100%, but everyone is different. But I'm sure the pneumonia is playing a...

It really depends on the person. I'm sure there are a lot of Forums about MRSA. Did you culture it for the first time? If so, ask your doctor if you can take antibiotics to try and get rid of it! Personally, I've had more active infections with MRSA than I had with just the Pseudomonas. At...

It really depends on the person. Personally, I HATE hospital stays. I don't get sleep because they wake you up all the time(if I don't get enough sleep I don't get better and it is impossible to get enough sleep in the hospital), I can't exercise, there's germs galore in a hospital, and they...

Yup, I have definitely cut my thumb a few times on the cayston vials. Like hammer pocket said I, too twist the whole top and most of the time that works if it doesn't I use one of my insulin needles to open it. You could try a normal sterilized needle, too. Hard to to believe the vials used...

I wouldn't be too worried if you have a lot of pain the day after insertion. I have had pain for several days after picc line insertion and use a hot pad and ibprofen. Sometimes the pain is worse when the IV is attached and the antibiotics are going into my vein. I've even had pain throughout...

Just be aware when you do your sinus rinses it is best to do them at least two hours before bed otherwise it may drip into your throat/lungs while you sleep and cause you to cough while you sleep. And I would definitely try doing rinses twice a day. I find doing a rinse first thing In the...

I'm with Bill on this one. If he's not taking them and not having bad gas and diarrhea then he probably doesn't need them. When I was really little I didn't take my enzymes regularly and was bloated, farted, had stinky poop, and diarrhea. It wasn't until I was in my teens when I started to care...

My sister was on Disability before and after her transplant. She went to grad school post transplant and kept her disability until she got a full time job which was probably 3 years later. I'm pretty sure in California you keep your disability until you start to make over $1,000 a month, so you...

I have a couple of questions regarding Aspergillus. 1) Have many people been able to eradicate Aspergillus? I've cultured it off and on but never been treated for it and my doctor is considering treating me for it. 2) People who have had positive results and treated for it, have you had tests...

Yes, I do rinses twice a day because my sinuses are so bad. I find that using warm water really does make a difference(of course boil or buy distilled water) and I mix 1 tsp iodized salt and 1/8tsp baking soda into 8oz water. I do one full sinus rinse bottle on each side and squirt almost the...

Any women out there over 55? It seems like all the "old geezers" are men who have replied ;) it also seems like several were diagnosed later in life. Very interesting topic!

If you haven't you should feel thankful. I'm on a WindStar Cruise ship right now and every time I do my nebulous we treatments I set off a smoke alarm. It is apparently a very sensitive smoke alarm and the captain claims there is nothing they can do to prevent it because it is hard wired into...

How soon after you all stopped using the Tobi Podhaler did the tightness in your chest go away? I had some tightness before I started and it seems to be getting worse on it and I'm debating stopping it. Thanks!

That is amazing! Great job! A side note regarding the acapella/vest combo - I do my flutter at the same time as vesting because like Running4Life I don't get much out of the vest but feel like doing it simataneously is better than doing either separately.

Yes, where is your CF Center? I think it really depends on which Kaiser you go to. I loved Oakland's CF center for my pediatric care with Dr Shay(he is AMAZING) but didn't care for their adult center. I'm now at the Santa Clara Center for my adult care and it is great. I can email my doctor...

Welcome! That's interesting. When I first got MRSA I had what you describe-- a lot of dry coughing. I actually blamed the dry cough on Cayston. But, after a year or two with MRSA I've become constantly phlegm-y and my doctor says that the constant phlegm is more the norm for MRSA. So now I...

Here is a link to my forum post which asked a similar question in case you want to read others responses. I think everyone's port surgery can be a little different. I think my surgery was particularly painful because the surgeon said it was difficult to place (probably because Ive had so many...

There are way too many over sharers on Facebook! I think you were right in getting upset. My boyfriend took a bunch of pictures of my brothers young kids recently and he ASKED if he could post them on Facebook before even considering posting them. And that's what people should do, respect other...

I think it depends on how high your numbers were. Do you know what your HGBA1C or random glucose test was? My brother was early stages CFRD and just started cutting back on sugar and didn't have to see an Endocronologist for years as he was able to keep his glucose levels somewhat stable. I was...

To be honest, I'm curious as well Lena Bean, as I hear stories of people going in for "routine" clean outs and then coming out of the hospital with severely reduced lung function or don't come out alive. I just wonder do the people who get admitted and then pass away in the hospital have low...