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  1. G

    Philips Avent IQ24

    I have it and LOVE IT. You have to use distilled water which means you have to buy it so that could be a pain. But I use mine everyday and I just love it. Gets everything all nice and disinfected and you do not have to bother with boiling water on the stove. It works for me<br>
  2. G

    Philips Avent IQ24

    I have it and LOVE IT. You have to use distilled water which means you have to buy it so that could be a pain. But I use mine everyday and I just love it. Gets everything all nice and disinfected and you do not have to bother with boiling water on the stove. It works for me<br>
  3. G

    light-headedness during coughing

    Maybe another inhaled RX while on your off months of TOBI would help you with the cough. That is what happen to me. I could not get through my off TOBI months so I started Colistin. LOVE coli it works great on me. If you cough really hard I can see getting dizzy would be common. I cough really...
  4. G

    light-headedness during coughing

    Maybe another inhaled RX while on your off months of TOBI would help you with the cough. That is what happen to me. I could not get through my off TOBI months so I started Colistin. LOVE coli it works great on me. If you cough really hard I can see getting dizzy would be common. I cough really...
  5. G

    light-headedness during coughing

    Maybe another inhaled RX while on your off months of TOBI would help you with the cough. That is what happen to me. I could not get through my off TOBI months so I started Colistin. LOVE coli it works great on me. If you cough really hard I can see getting dizzy would be common. I cough really...
  6. G

    Increased Cough

    Yeah I was on TOBI forever then could not get through  my off months so I started Colistin on off months and all was good but then my TOBI months were not so great. So started Cayston when it came out with alternating Coli. Cayston was great at first and then about a year later or really 6...
  7. G

    Increased Cough

    Yeah I was on TOBI forever then could not get through my off months so I started Colistin on off months and all was good but then my TOBI months were not so great. So started Cayston when it came out with alternating Coli. Cayston was great at first and then about a year later or really 6 months...
  8. G

    Increased Cough

    Yeah I was on TOBI forever then could not get through my off months so I started Colistin on off months and all was good but then my TOBI months were not so great. So started Cayston when it came out with alternating Coli. Cayston was great at first and then about a year later or really 6 months...
  9. G

    social security, or other resources

    Two words for getting SSDi or SSI and any questions about all that: Beth Sufian<br><br>She is a lawyer who has CF and gets CF people their SSi or SSDI. She is wonderful!!!! I do not think she ever lost a case.....<br>
  10. G

    social security, or other resources

    Two words for getting SSDi or SSI and any questions about all that: Beth Sufian<br><br>She is a lawyer who has CF and gets CF people their SSi or SSDI. She is wonderful!!!! I do not think she ever lost a case.....<br>
  11. G

    social security, or other resources

    Two words for getting SSDi or SSI and any questions about all that: Beth Sufian<br><br>She is a lawyer who has CF and gets CF people their SSi or SSDI. She is wonderful!!!! I do not think she ever lost a case.....<br>
  12. G

    Increased Cough

    Yeah, Cayston worked wonders for me in the beginning and thought it was a wonder drug. I was on TOBI forever and it seemed to  loose its punch. Now Cayston just makes me have increased cough. So I am going back to tobra..... Ugh!<br>
  13. G

    Increased Cough

    Yeah, Cayston worked wonders for me in the beginning and thought it was a wonder drug. I was on TOBI forever and it seemed to loose its punch. Now Cayston just makes me have increased cough. So I am going back to tobra..... Ugh!<br>
  14. G

    Increased Cough

    Yeah, Cayston worked wonders for me in the beginning and thought it was a wonder drug. I was on TOBI forever and it seemed to loose its punch. Now Cayston just makes me have increased cough. So I am going back to tobra..... Ugh!<br>
  15. G

    Increased Cough

    So I stopped Cayston for awhile cause I felt like it was not keeping me clear and lots of increased coughing. Went back to Tobra.... Now started back on Cayston and the coughing is increased again. But I mean, how do you REALLY know it is the Cayston that is not a good option and TOBRA is better...
  16. G

    Increased Cough

    So I stopped Cayston for awhile cause I felt like it was not keeping me clear and lots of increased coughing. Went back to Tobra.... Now started back on Cayston and the coughing is increased again. But I mean, how do you REALLY know it is the Cayston that is not a good option and TOBRA is better...
  17. G

    Increased Cough

    So I stopped Cayston for awhile cause I felt like it was not keeping me clear and lots of increased coughing. Went back to Tobra.... Now started back on Cayston and the coughing is increased again. But I mean, how do you REALLY know it is the Cayston that is not a good option and TOBRA is better...
  18. G

    Understanding respirtory symptoms

    For what it is worth there has been many times where the doc use to tell me I do not sound really bad lung wise but yet I was coughing my head off and ready for a tune up. So maybe she could use a tune up? I really do not have any good answers but do hope you can find some relief for her! Stay...
  19. G

    Understanding respirtory symptoms

    For what it is worth there has been many times where the doc use to tell me I do not sound really bad lung wise but yet I was coughing my head off and ready for a tune up. So maybe she could use a tune up? I really do not have any good answers but do hope you can find some relief for her! Stay...
  20. G

    Understanding respirtory symptoms

    For what it is worth there has been many times where the doc use to tell me I do not sound really bad lung wise but yet I was coughing my head off and ready for a tune up. So maybe she could use a tune up? I really do not have any good answers but do hope you can find some relief for her! Stay...
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