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I have 3 insurance(s) and none want to pay. I looked online at Medrise and saw they cut the price from $5000 to $2750. The vest no longer benefits me, so I use one of those old old hand held percussor. I received my Hill Rom VEST in 2007, and as the years went by, it became less effective...

I see that no one has replied to your question. I, myself, would like to get a more reliable and a much faster output of the breathing meds. I currently have a standard 35 PSI nebulizer, and I can onlly feel it going to the upper part of the lung quadrants<<<(I think that's how you...

I think I would get a 2nd opinion unless this doctor specializes in CF related diabetes. Then again, I would still want a 2nd opinion. Never heard about checking to see if you have diabetes via chip.

Totally agree with you and bigstar....don't forget it also comes down to the $$$$$$$. It's not sad, it's evil

I think it's time to do a family intervention, even if it takes a psychologist to be part of it. Godspeed on getting the help and/or the point across to your family.

Have you had blood work to check your iron and potassium? Our body uses every calorie, muscle, etc. just to breathe and that itself will make you tired.

I would check with Medicare Part B online/phone/etc. and try to get all u can before "obamacare" takes effect. People with chronic diseases like CF will be the first to feel the effects of trying to get meds filled/approved/etc.

My left chest wall/ribs stick out more than the right side. This is an on-going everyday issue for the past 6 years. I use Lidoderm patches everyday, heating pad, and pain meds. None of my doctors can explain it, which, if they really took the time and did an MRI, they would know. What it is...

I didn't watch the whole video, but I hope the school board was sued by the ADA. This is ridiculous and something I would like to share on FB

44 years old, double delta, and my FEV1 is 20%

I have 2 from over 20 years ago. I plan on getting one to represent 65 roses. If you are on the transplant list, I would not get one. Also, if you have cultured/colonized MRSA, doctors worry about that also.

It happens to me every time. It takes a week of all the breathing treatments & CPT before I can cough anything up. I guess we are more exposed to irritants at home than the hospital, where they keep it freezing cold (so those bugs can't travel around)

This happens to me every time. I don't if it's because I live in an order home or whatnot. Of course, the hospitals keep it freezing cold so no germ can "stay alive". BUT, yes, i do cough more phlegm up at home than i do at the hospital. You are not alone.

<strong>First of all, be yourself!!!! There are so many different degrees of severity of CF. Such as, I have the Double Delta gene (which is the worst ones to have). Most ppl that have that gene combo don't make it out of their 20's and here I am 43 years old. Surround yourself with positive and...

<strong>I love listening to Pink Floyd. My favorite cd is THE WALL</strong>

<strong>In my opinion, it might be time to stop PICC lines and go ahead and have a port implanted. PICC lines leaves scars, lots of skin irritation like u said, but the most important thing, it makes it very easy for bacteria to enter the line, especially if the nurse is not taking all the...

<strong>In my opinion, it might be time to stop PICC lines and go ahead and have a port implanted. PICC lines leaves scars, lots of skin irritation like u said, but the most important thing, it makes it very easy for bacteria to enter the line, especially if the nurse is not taking all the...

Oh yeah, I was dx at 18 months old, did not have the first bout of pseudomonas til was I 25.

Oh yeah, I was dx at 18 months old, did not have the first bout of pseudomonas til was I 25.

welcome to the group. u will find alot of information on this site and alot of friends. I am 43 years old with DDF508 and in the process of trying to get on the transplant list. I was recently dx with CFRD last November, but my main problem is pain all over my thoraxic area. BTW, my name is...