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  1. R

    Gluten free? Anybody know anything?

    I have Celiacs and CF so I do the GF thing, but I also don't eat dairy or soy cause my body reacts the same way. All I can say is- try it for 2-3 weeks, if it does nothing for you then it does nothing for you and have a donut for me while you celebrate that gluten does love you back :) Everyone...
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    Texas centers

    I have lived in Austin and I went to the Dell Children's Center and saw Dr. Fulmer there. The adult patients there are admitted to Seton hospital if they need to be seen and overall I thought the care I recieved in Seton was great, although I also have Celiac disease and they don't have much...
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    Zero Energy/Reliant of Caffeine

    I felt that way a few years back and it turned out in addition to CF, I have Celiacs. A blood test can miss it though but for me a GI did an endoscopy and an endocrinologist (who was also checking my thyroid) figured it out. I didn't have typical GI celiac symptoms, I had headaches, fatigue...
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    Zero Energy/Reliant of Caffeine

    I felt that way a few years back and it turned out in addition to CF, I have Celiacs. A blood test can miss it though but for me a GI did an endoscopy and an endocrinologist (who was also checking my thyroid) figured it out. I didn't have typical GI celiac symptoms, I had headaches, fatigue...
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    HELP - Major drop in fev1

    Really Printer? Did I misunderstand or were you assuming this mother was not being honest in her posting or is it that she sought a second opinion? I'm wondering if there is a pattern to your responses and if it has anything to do with your childhood?
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    Thieves Essential Oils-Alternative medicine-Has anyone tried it?

    I haven't tried it but I have a friend who is selling it and wants me to try it. I don't know. I get it, sometimes natural things work wonders but big pharma can't patent something natural or make huge profits from it so it might be that it works and isn't profitable or maybe it does nothing. My...
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    Frequencer VS. ChestMaster

    Okay, so I'm about to get a Frequencer but the docs brought up some new device called ChestMaster and I wanted to take a few days to compare and think over which I would like. I currently use a Vest but I loathe it. The issues with the Vest are as follows:<br><br>I travel and it's huge and...
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    Who are you in a nut shell

    My name is Robin Diagnosed at 6 months old, DeltaF508 x 2 Two sons, one with my first husband another with my second plus two wonderful stepsons. My husband is military, I am not currently working but hoping to go back after I finish my degree. I worked in libraries for ten years until the...
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    mom of a 16 yr old daughter

    I understand doctors know more but they do not know everything. I suffered for a year with various GI symptoms, weight loss, vitamin deficiencies and pain while my CF docs played musical enzymes before a GI found I also have Celiac disease. I then suffered for months two years later because my...
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    CF friendly careers?

    I've had negative experience with employers as well, one supervisor called me into a meeting and told me I should wear a mask because I was worrying staff and patrons with my cough. (She knew I had CF and that it wasn't contagious.) Anyway, benefits aren't so much an issue, my husband is...
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    School

    It's nice that folks are being supportive, people in my school were not supportive. One of the things I did that helped me in high school was an IEP that allowed me to stay home on Wednesdays. It gave me a break to rest up, the teachers have me my work on Tuesday and I turned it in Thursday and...
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    CF friendly careers?

    Hi all, I'm 29, have CF and have not worked due to health issues these last four years. I'm changing my degree plans to something with a varying schedule (private investigator) and I was wondering if anyone had any great ideas or ways to work in your treatments and medical routines into a...
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    Woman specific issue

    I've noticed a similar trend during ovulation, I also noticed that I don't ovulate these last two years unless I've recently had IV antibiotics. I figure it's related to the body not ovulating if there is infection or illness present. Last month I started on the 6th and ended up on IVS the...
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