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  1. R

    what do you think this is?

    Get checked for Celiac disease. Yes, its easy to say its not an allergy thing cause you've never been allergic to anything but the symptoms you are describing are Celiac disease and it is an autoimmune disorder. When I was diagnosed my first thought was "Well I've eaten gluten all my life- that...
  2. R

    bloating and gas

    I once drank a gallon of golightly and nothing happened. Anyone else ever wonder what sick SOB named it that anyway? For me its usually more like go-violently....
  3. R

    Is Texas a good state to live in with CF, are Insurance and CF Hospitals/Centers good

    I moved from Texas to Ohio but now i'm prepping to move back, my husband is military so we go where they send us and health insurance is Tricare and they pay 100% without issue so I really know nothing about other health insurance plans.
  4. R

    Medical CF Trash and Danger To Pets

    My cat is the hunter of swab caps, those little caps with the tiny sponges of alcohol in them I put on the end of my access after IVs. Not all hospitals or home health care companies use them but I think it is becoming standard in the U.S. and admittedly, she is a strange cat but you'd think...
  5. R

    Is Texas a good state to live in with CF, are Insurance and CF Hospitals/Centers good

    I was seen in Texas at Dell by Dr. Fuller. He was very competent. When I would be admitted to Seton the nurses and staff were very good, they will bring you a fridge and a microwave and a stationary bike to have in your room. (This was 3 years ago though so I dont know if changes have been...
  6. R

    I designed a side table to help aid in making our lifes alittle easier.

    I think you have amazing talent and I like your product but what I am looking for is some type of table made to fit a vest machine and my nebulizer machine with storage for vest, hoses and maybe detachable bags for dirty nebs? Just a thought if you decide to make other things :) Beautiful table...
  7. R

    disibility

    Go to CFF.org, contact the law offices of Suffian & Passimano. They helped me file my initial application and were great. They had a grant to help folks file so if they still have that they can probably help you too for free.
  8. R

    how can this be taking so long?

    All of those symptoms can be related to Celiac disease too, if the test comes back negative I'd look into that.
  9. R

    Help please!

    It happened to me too! My son was around that age when I began having similar symptoms. I was on meds for joint pain, pain meds and even hospitalized several times for migraines. I had Celiac disease as well as CF! It was found by chance by a GI and an Endocrinologist. My CF docs kept telling...
  10. R

    Trying to concieve help please

    Both my sister and I have CF and struggled to conceive and what was holding us back was not our CF but our Thyroid. There's a big difference in what a primary doctor and a fertility doctor consider healthy TSH level, mine was a 7, which my primary doc and my CF doc said was normal. My fertility...
  11. R

    Trying to get pregnant

    I went to a fertility doc and she checked my TSH, (thyroid) and even though my previous primary doc checked it and said 5 was a fine number, she said if never get pregnant unless it was under 2. After about 8 weeks on synthroid, it was fixed and I got pregnant. My sister also has CF and the same...
  12. R

    How can I lose fat safely?

    I'm trying to tone up too. After two kids and I'm approaching 30, it's rough. I don't eat gluten, cows milk dairy or soy cause I have Celiacs and those things give me massive joint aches. I don't see any reason for anyone else to give up those things but for me the GF foods tasted so crappy I...
  13. R

    Bob Flanagan, CF 'Artist"

    I'm watching it now, I get him. I'm not into S&M personally but I get it. I think his obsession with pain is about taking control over pain. I think maybe he went to far, sort of becoming obsessed with enduring pain. I like his morbid sense of humor, though I could gave done without seeing so...
  14. R

    Bronch...to do or not to do

    Blocking someone. To block someone just go to one of their hateful ridiculous comments and click on their user name, it will take you to their user profile and "Block" should be an option on a menu on the left hand side. I did this and no longer am subjected to a certain elderly "gentleman's"...
  15. R

    BCAAs

    Anyone taking any supplements for working out? I am taking a small amount, mostly just branch-chain amino acids but I was wondering if anyone else has any recommendations or experience to share?
  16. R

    Bronch...to do or not to do

    I wondered about the bronc testing myself, not to sound like some conspiracy theory nut but I've wondered if the reason the CF clinics are pushing for these tests suddenly have anything to do with trying to determine how many of us might have a mycrobacterium infection as a direct result of the...
  17. R

    Bronch...to do or not to do

    Thank you for that information Idevoti, I have seen some folks on here that just seem like nothing more than a wasted opportunity for organ harvesting. I will use this tool immediately on at least one individual. Thank you! :)
  18. R

    Bronch...to do or not to do

    Printer Printer, she asked you to stop posting on her threads and I think you should. You seem to thrive on bullying people on here. It needs to stop.
  19. R

    Running

    I've recently started an intense 6 days a week/2 hours a day work out plan with cardio and weight lifting. It helps a lot that my husband was an Army Drill Sergeant and sport medicine major and he recommended I try some supplements. I trust him but I'm also cautious so I researched some things...
  20. R

    Gluten free? Anybody know anything?

    Ps- corn pasta is pretty good and brown rice pasta tastes like wheat pasta, Rudi's white bread is good if you wrap it in a paper towel and microwave a slice or two, Enjoy Life makes great cookies and Vans crackers taste just like Wheat Thins :)
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