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I saw my doctor yesterday and asked him to prescribe me a contraceptive pill. He proceeded to explain that the contraceptive pill will not only act as a contraceptive but also as therapy for cf. The reason is that female hormones (estrogen) make cf worse, and the pill will sort of block my own...

I saw my doctor yesterday and asked him to prescribe me a contraceptive pill. He proceeded to explain that the pill will not only act as a contraceptive but also as therapy for cf. The reason is that female hormones (estrogen) make cf worse - it is also believed that this is one of the reasons...

I don´t seem to have any of the symptoms. The last time I was tested for diabetes was 2 months ago, I was admitted to the hospital for 3 weeks for IV treatment and they tested 2 times a week, 5 times a day, and the numbers always came back normal, even while on Prednisone during the last week...

Ah, I also get dopey regularly (love the appetite it gives me) but I never smoke it. Please consider that even though your lungs are not too bad now, in time, smoking will only make them worse. I always cook it in butter and mix it with different things. Some of my usual choices are dopey...

Hey buddy, I can certainly relate to the negative/ destructive lifestyle which is now part of my past. I am a 29 year old female and have been living abroad for many years, against all odds because of cf. In the past, being destructive and not caring much about my health was the only way I knew...

Hey LTA, we share a mutation! The R334W one. I believe it´s not a very common one.

I don´t have body aches, only soul aches. (lame) But yeah... no pain.

Hi all. Thanks for all the feedback, I hadn´t checked in a while and missed most responses. I have not done the chip test yet because I have been traveling and my next appointment is on January 9, at which time I will be giving the doctor my answer as to whether I want to do this or not. To be...

Hi, I have to blow my nose constantly, even when I don't have a cold. It's worse when I have a coughing fit (several times a day). It has also gotten worse since I started using oxygen at night 5 months ago. My nose is constantly dry and pretty congested. My doctor tells me there's nothing I...

Hi, I am pancreatic sufficient (no enzymes) and standard diabetes tests always indicate normal values (no diabetes). But I had an appointment with my doc this morning and he said that there is a new way to test for diabetes which consists of inserting a small chip in your belly area and leave...

Thanks for this! I am about to purchase one online. How do you convert the results to percentage? I think the results indicate the liters right?

Thanks for your response again Vaultboy. I've been on it for 7 days now and still coughing, but i guess it goes to show me how much was there that i hadn't been able to get rid before. And yes, it is also brown. Let's see if the docs will keep me on it. The goal was about 2 weeks.

Hi, Do you cough more on Prednisone (in the beginning)? I know it's supposed to suppress mucus production but I've also heard that in the beginning it may cause you to cough more in case there's old, residual mucus attached to our lungs. But not every doctor is too convinced. I'm currently...

Thank you both for your answers. Fabian - Great to hear that your lung function has improved so much with Prednisone. I am actually going to be on it for only 2 weeks, so I probably won't notice anything, not sure! The lung function test on Friday will tell. How long did it take you to notice...

FEV1 33% and I'm 29.

Folks, I'm going through a nightmare. I am in the hospital for 3 weeks for a sort of a tune up, to see if there's any chance of improving my lung function (my lung function has been stable at around 35% for years and I don't currently have an 'active infection'). When this morning my doctor...

Hey, I can't really help with your question but you've helped ME with it. I've been avoiding anti-depressants for 10 years (I did take them 10 years ago after a suicide attempt, but it didn't last long. The anti depressants that is) and now I strongly believe I should give them another try. Most...

Yes, one of the symptoms of CF is "difficulty to thrive". Hang in there though. Some guys only 'make the jump' later when they hit about 20 or so, CF or not.

Hi, sorry I can't respond to you question directly because I've never been to South America. I've traveled a lot though and have lived in 4 countries and I'm so glad I have allowed myself to overcome health related fears and just go for it. It's truly allowed me to have great experiences. I do...

Wow I can really relate with your second paragraph. I stopped working a few months ago and am now on disability. Now that I don't have the distraction of work, I feel like I live for my health. Therapies, lung clearance, exercise etc. I don't regret it either but I can certainly say that my...