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Last year, at 28 yr old, I was made redundant at a job that I loved and lived for. This ended up being a blessing in disguise. I can't believe how much I was pushing myself for years. I don't think I would have ever stopped if I hadn't been forced, and all this with an FEV1 of around 33%! (I was...

Ah OK I was not aware. I thought that once you were on oxygen 24/7 you wouldn't have the energy to keep up with a busy lifestyle. That is probably the case, but I'm guessing some people prefer to try and live a "normal" lifestyle as much as possible. I admire that.

Hi Eden, Believe it or not, they didn't use to talk to us about FEV1 or other lung function values at my hospital, so I was never really aware of my condition in terms of 'numbers' (this was also 15 years ago and things have come a long way). The earliest I can remember knowing what my FEV1 was...

On the other hand, at least this show is not portraying cf sufferers as people who look terribly sick and who are on the verge of dying at any moment, like I have heard of before! This girl looks kind of healthy and positive, and she's not in the hospital waiting for death. Yay! Makes us look...

I did a sleep study and they confirmed that I needed oxygen during sleep because my O2 saturation average for the night was 86%. I have been on night oxygen for less than a year and don't notice any difference in terms of my energy when awake, but still I understand why it's needed (mostly for...

I have watched the 1st 2 episodes that are out and I think it's not too bad. However, I was wondering if it is realistic for a person with cf to be on oxygen 24/7 and still go to school (high school) like everybody else? Wouldn't she be at home, mostly, because it is probably extremely difficult...

I use it and I don't notice anything. I do drink water after using it, like I was advised to do. Normal water though, from the faucet.

Hi. I am a 29 yr old female and I have had Pseudomonas since I can remember. I was diagnosed at 15 and I think I already had it then, and have never been able to get rid of it. I am pancreatic sufficient. My lung function is not good. I'm around 32% FEV1. Each person is different but I have been...

Remi, I am thinking about you and I can understand the thought process that is washing over you now, and no one can blame you. I actually thank you for reaching out. I am not religious so I think similarly to what you described. Once we are gone, I believe we are truly gone, if I'm going to be...

I just came across this which I think fits like a glove to most of us: Definition: Contrary to what most people think, an introvert is not simply a person who is shy. In fact, being shy has little to do with being an introvert! Shyness has an element of apprehension, nervousness and anxiety...

piggylu - I am on Zoloft 50 mg daily and it does wonders for me as far as depression goes. But since it doesn't make me feel social I have been wondering if I suffer from social anxiety or if it's just my personality.. that's why I posted this. azdesertrat - My desire to have a dog is huge but...

I second Amber. It's never too late to contribute! Thanks all for the feedback.

I have been taking this medicine for years, 1x every day (250) and I never had side effects.

Congratulations Amber!! You deserve that happiness. Big hug.

Thank you all for your feedback. It seems we all feel very similarly and it's nice to know this sort of thing is probably common. If I think about it, there are a lot of people who do not suffer from any health conditions and yet are very introverted and prefer their own company. I just got so...

Hi, I have never been very good at keeping friends around, I guess I have always enjoyed being on my own. However, I still went out a lot and interacted with others quite a lot. As time went by, I am now around 30% FEV1 and I have literally lost all interest in being with other people. I am...

I am an expat in the Netherlands, where you can buy cannabis legally. I used it again last night and I noticed 2 things. One is that I was suddenly able to get rid of mucus very easily, I didn't even have to cough, only a slight clearing of the throat was enough to bring it all up. Another is...

This is a great question and Amber - thanks for responding! I hope more people will contribute.

Hi all. I have been eating THC for a few months (I never smoke) and the main advantage for me is increase of appetite (the munchies). As far as a respiratory relief, I am not sure yet. It's possible that it sometimes triggers a more productive cough, but I cannot be sure if the 2 are directly...

The one thing that worked for me was anti depressants. I was also depressed and felt everything that you described and didn't think that I could feel ok again (all common feelings when we're depressed) but I do. I take Zoloft 50. Have you ever looked into that? You mention you see a...