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I take cipro whenever I get an infection and I don´t have side effects from it. I actually used to take another one which name I cannot recall and I had lots of side effects on that one, I felt like a schizophrenic, so I switched to Cipro and it´s been fine. But mind you, I don´t suffer from...

Hi, I have been flying long distances (more than 10 hours) for many years and never had any problems during or after the flight. However, in my last flight, which was only a 3 hours, I measured my O2 for the 1st time - with an oximeter - and was shocked - my O2 levels dropped to the 70%s! Is...

Thank you!! Big hug Amber. :)

Never had a tune up. FEV1 is 35% and has been for a LONG time.

Hey, I like your sense of humor and somewhat poetic writing and story telling. Thanks for joining us. Hope to hear more from you.

I have 4 tattoos and never had a problem because of them. None of them is CF related, but I have been playing with the idea of getting my mutations tattoed somewhere, sometime. Make it more personal and kind of intriguing if you´re looking from the outside.

Sounds good Jeanne. I'm wondering which spirometers pair with phones and ipads? I haven't seen any with that feature.

Hey, I can't answer most of your questions mostly because I don't live in the US but I have been using PARI eflow for 3 years now and it works fine. I've used it with 4 different medicines, all approved by doctors: - Pulmozyme - Colomycin - Tobi - MucoClear Just gotta use different cups for the...

Hello. I'm a 28 year old female (29 next month) and here's what I do on a daily basis: - Nebulize Pulmozyme in the morning - About 30 min later I nebulize Colomycin During the day, I having coughing fits (either provoked or involuntary) that help me cough up mucus. Unlike the previous poster...

Am I right in assuming that just because Kalydeco works on R117H, it doesn't mean that it'll work on R334W? Great to hear it's helping so many people though!

Hey, funny you asked that because for the first time this month I noticed that I felt more tired and overall crappy on the day that I was ovulating. It could have been a coincidence, especially since I only noticed it this month, but it could also be related.

Mark, I watched your video! And liked and subscribed.

Mark (the first Mark) hehe, Thanks for posting the video and taking the time to try to go forward with this idea and raise awareness for CF. I was a bit touched by your post where you say that you're sad that 30 people have read your thread but only 5 watched the video. I have actually not seen...

Wow amazing video, I've just watched it. Very emotional. Go Charlie!

Interesting topic. I was born in 1983. Diagnosed in 1991 with Bronchiectasis (I had had no symptoms up till this age) and then spent the next 6 years in extremely poor health until I was finally diagnosed at 15 years old with CF. As opposed to all the other posters here, I was advised to "not...

Thanks. I tried it again last night and this time I had no problems. I realized that I couldn't fall asleep because of anxiety about the oxygen (what a surprise) so I decided to take my laptop to bed with me and watch George Carlin (comedian) doing his stand up to help me relax. I had the oxygen...

Like other people have suggested, I believe in therapy - talking with someone who has a neutral standpoint about you and your situation can be very helpful. It can also help you understand the areas in which you are struggling (yes, it can be CF, but what exactly about it), and that can be the...

Thanks for your answers so far. Did you start feeling improvement (during the day) straight away or did it also take some time?

I had my first attempt at using oxygen at night last night. I was relaxed and (finally) accepting the situation so I thought it was going to go relatively smoothly. It didn't. I tossed and turned for 2,5 hours in bed and couldn't fall asleep. It felt uncomfortable, unnatural and the wind in my...

Hi, Sorry this is not going to address your problem directly, but at least you are getting some work done. I was all excited about pulmonary rehab, but all they did was teach me a breathing technique and sent me home for me to practice by myself! Then she called the other day to check on me, I...