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  1. C

    hello again

    Welcome back! How are the boys doing? I hope well. 40 lbs is great!! Mine barely weighed that at 6... How about you? Any new news on your testing for CF? Did you get the Ambry test yet? I'm sorry about the PPD diagnosis but I hope the extra help works!
  2. C

    hello again

    Welcome back! How are the boys doing? I hope well. 40 lbs is great!! Mine barely weighed that at 6... How about you? Any new news on your testing for CF? Did you get the Ambry test yet? I'm sorry about the PPD diagnosis but I hope the extra help works!
  3. C

    hello again

    Welcome back! How are the boys doing? I hope well. 40 lbs is great!! Mine barely weighed that at 6... How about you? Any new news on your testing for CF? Did you get the Ambry test yet? I'm sorry about the PPD diagnosis but I hope the extra help works!
  4. C

    cost of cf carrier testing

    Well, depending on whether you're planning on having more children or not, it may be more financially feasible to just test baby. Assuming you're keeping the baby either way, if you're not planning on having more children, and you take steps not to, couldn't you just test baby with the full...
  5. C

    cost of cf carrier testing

    Well, depending on whether you're planning on having more children or not, it may be more financially feasible to just test baby. Assuming you're keeping the baby either way, if you're not planning on having more children, and you take steps not to, couldn't you just test baby with the full...
  6. C

    cost of cf carrier testing

    Well, depending on whether you're planning on having more children or not, it may be more financially feasible to just test baby. Assuming you're keeping the baby either way, if you're not planning on having more children, and you take steps not to, couldn't you just test baby with the full...
  7. C

    Anyone dx'd with type 1 diabetes and then CF?

    Can happen. I know of someone whose DD was dx'd at 12. She'd been dx'd at 4 with Type I diabetes but they didn't catch the CF til age 12. No lung involvement at that time, just very small for size and the diabetes...
  8. C

    Anyone dx'd with type 1 diabetes and then CF?

    Can happen. I know of someone whose DD was dx'd at 12. She'd been dx'd at 4 with Type I diabetes but they didn't catch the CF til age 12. No lung involvement at that time, just very small for size and the diabetes...
  9. C

    Anyone dx'd with type 1 diabetes and then CF?

    Can happen. I know of someone whose DD was dx'd at 12. She'd been dx'd at 4 with Type I diabetes but they didn't catch the CF til age 12. No lung involvement at that time, just very small for size and the diabetes...
  10. C

    New to CF ? re testing

    The tests are comparable. I <b>believe</b> Ambry is more comprehensive if you add the deletion testing. But, if the Quest testing is negative, or only shows one mutation, you may then have basis for the Ambry testing and insurance may approve it. Another option would be to re-do the sweat...
  11. C

    New to CF ? re testing

    The tests are comparable. I <b>believe</b> Ambry is more comprehensive if you add the deletion testing. But, if the Quest testing is negative, or only shows one mutation, you may then have basis for the Ambry testing and insurance may approve it. Another option would be to re-do the sweat...
  12. C

    New to CF ? re testing

    The tests are comparable. I <b>believe</b> Ambry is more comprehensive if you add the deletion testing. But, if the Quest testing is negative, or only shows one mutation, you may then have basis for the Ambry testing and insurance may approve it. Another option would be to re-do the sweat...
  13. C

    Compressor/Nebulizer Question - Not again Update

    Compressor/Nebulizer Question I agree with the poster who suggested checking the <b>filter</b> on the compressor itself. They need to be changed every 6 months-1 year and will effect performance. Hope that helps.
  14. C

    Compressor/Nebulizer Question - Not again Update

    Compressor/Nebulizer Question I agree with the poster who suggested checking the <b>filter</b> on the compressor itself. They need to be changed every 6 months-1 year and will effect performance. Hope that helps.
  15. C

    Compressor/Nebulizer Question - Not again Update

    Compressor/Nebulizer Question I agree with the poster who suggested checking the <b>filter</b> on the compressor itself. They need to be changed every 6 months-1 year and will effect performance. Hope that helps.
  16. C

    Desperately seeking answers

    Good morning. My guess would also be PCD because of the situs inversus. There is an email list you can join on Yahoo for PCD. I would try there. Like CF, the presentation with PCD can be very different from one child to the next. If in fact, your grandson has PCD, you'll definitely want to...
  17. C

    Desperately seeking answers

    Good morning. My guess would also be PCD because of the situs inversus. There is an email list you can join on Yahoo for PCD. I would try there. Like CF, the presentation with PCD can be very different from one child to the next. If in fact, your grandson has PCD, you'll definitely want to...
  18. C

    Desperately seeking answers

    Good morning. My guess would also be PCD because of the situs inversus. There is an email list you can join on Yahoo for PCD. I would try there. Like CF, the presentation with PCD can be very different from one child to the next. If in fact, your grandson has PCD, you'll definitely want to...
  19. C

    Tubal Ligation

    I don't have CF so I don't know if my answer will interest you. I did have a tubal ligation though. Immediately after, my periods got really heavy, longer, and closer together. I've talked to several other women who've had similiar experiences. None had CF though so not sure that helps...
  20. C

    Tubal Ligation

    I don't have CF so I don't know if my answer will interest you. I did have a tubal ligation though. Immediately after, my periods got really heavy, longer, and closer together. I've talked to several other women who've had similiar experiences. None had CF though so not sure that helps...
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