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My personal thought is that Axcan has stopped pursuing gaining approval for Viokase as well as Ultrase now that they have acquired Eurand, the maker of Zenpep. When Axcan had submitted their NDA for Ultrase way back early in 2010, there had been found to be a problem with it which would delay...

This thread was started back when the FDA deadline passed and several enzymes ultimately became unavailable (Ultrase, Pancrecarb and Viokase) due to never gaining their approval. When you say that you contacted Axcan and they are 'still working' on it- how long ago was this? Axcan has acquired...

This thread was started back when the FDA deadline passed and several enzymes ultimately became unavailable (Ultrase, Pancrecarb and Viokase) due to never gaining their approval. When you say that you contacted Axcan and they are 'still working' on it- how long ago was this? Axcan has acquired...

This thread was started back when the FDA deadline passed and several enzymes ultimately became unavailable (Ultrase, Pancrecarb and Viokase) due to never gaining their approval. <br /> <br />When you say that you contacted Axcan and they are 'still working' on it- how long ago was this? Axcan...

edited since I misunderstood your first post and her specific dx. <img src="i/expressions/face-icon-small-wink.gif" border="0"> <br><br>Since she has a CRMS dx- it's still recommended that these children be followed by a CF center and it sounds like she is. I would make sure all your concerns...

edited since I misunderstood your first post and her specific dx. <img src="i/expressions/face-icon-small-wink.gif" border="0"> <br><br>Since she has a CRMS dx- it's still recommended that these children be followed by a CF center and it sounds like she is. I would make sure all your concerns...

edited since I misunderstood your first post and her specific dx. <img src="i/expressions/face-icon-small-wink.gif" border="0"> <br><br>Since she has a CRMS dx- it's still recommended that these children be followed by a CF center and it sounds like she is. I would make sure all your concerns...

An allergic reaction I hear of commonly associated with cf is APBA, a reaction to aspergillus. I have no idea what kind of sputum is commonly seen with this, but I do know it can cause severe inflammation and decline in pulmonary function if not properly treated (and the typical abx, etc won't...

An allergic reaction I hear of commonly associated with cf is APBA, a reaction to aspergillus. I have no idea what kind of sputum is commonly seen with this, but I do know it can cause severe inflammation and decline in pulmonary function if not properly treated (and the typical abx, etc won't...

An allergic reaction I hear of commonly associated with cf is APBA, a reaction to aspergillus. I have no idea what kind of sputum is commonly seen with this, but I do know it can cause severe inflammation and decline in pulmonary function if not properly treated (and the typical abx, etc won't...

Liza~ we used to be able to get more from clinic as well and now it's a lot stricter. Now we can get 2 every 6mo. It's better than nothing of course, but I think it's the same thing- they don't get the free stuff as they used to.

Liza~ we used to be able to get more from clinic as well and now it's a lot stricter. Now we can get 2 every 6mo. It's better than nothing of course, but I think it's the same thing- they don't get the free stuff as they used to.

Liza~ we used to be able to get more from clinic as well and now it's a lot stricter. Now we can get 2 every 6mo. It's better than nothing of course, but I think it's the same thing- they don't get the free stuff as they used to.

My daughter was not dx'ed until she was 7.5. She was not well at all by that time, but obviously after all the waiting and worrying we'd already done for several years, a week or two in one direction or the other would not really change anything. However- let me tell you- once we'd seen the dr...

My daughter was not dx'ed until she was 7.5. She was not well at all by that time, but obviously after all the waiting and worrying we'd already done for several years, a week or two in one direction or the other would not really change anything. However- let me tell you- once we'd seen the dr...

My daughter was not dx'ed until she was 7.5. She was not well at all by that time, but obviously after all the waiting and worrying we'd already done for several years, a week or two in one direction or the other would not really change anything. However- let me tell you- once we'd seen the dr...

I am thinking it may not have been a 'clean catch'. Mucus is not a typical finding in urine, but is a completely normal secretion otherwise in that general area and may have gotten into the cup accidentally. It's good to test again to be sure for both things though.

I am thinking it may not have been a 'clean catch'. Mucus is not a typical finding in urine, but is a completely normal secretion otherwise in that general area and may have gotten into the cup accidentally. It's good to test again to be sure for both things though.

I am thinking it may not have been a 'clean catch'. Mucus is not a typical finding in urine, but is a completely normal secretion otherwise in that general area and may have gotten into the cup accidentally. It's good to test again to be sure for both things though.

It is OBSCENE what your DME provider will charge for these things- approaching $30 in many cases. I know insurance doesn't ultimately pay that much, but it's crazy. I wanted a backup compressor for Emily so I purchased a Vios- it came with 2 Sprint cups, tubing and a Bubbles mask, all for about...