Search results

  1. H

    Pari Nebulizers

    It is OBSCENE what your DME provider will charge for these things- approaching $30 in many cases. I know insurance doesn't ultimately pay that much, but it's crazy. I wanted a backup compressor for Emily so I purchased a Vios- it came with 2 Sprint cups, tubing and a Bubbles mask, all for about...
  2. H

    Pari Nebulizers

    It is OBSCENE what your DME provider will charge for these things- approaching $30 in many cases. I know insurance doesn't ultimately pay that much, but it's crazy. I wanted a backup compressor for Emily so I purchased a Vios- it came with 2 Sprint cups, tubing and a Bubbles mask, all for about...
  3. H

    Pari Nebulizers

    Good links, I have bought in bulk as well. My best deal was buying 6 sidestreams off amazon.com for 49.99+free shipping!!
  4. H

    Pari Nebulizers

    Good links, I have bought in bulk as well. My best deal was buying 6 sidestreams off amazon.com for 49.99+free shipping!!
  5. H

    Pari Nebulizers

    Good links, I have bought in bulk as well. My best deal was buying 6 sidestreams off amazon.com for 49.99+free shipping!!
  6. H

    Pari Nebulizers

    Always check at amazon.com-- they sell from various vendors and will have unexpected good deals. You never know what you will find until you look- I've gotten them as low as $15/each with free shipping but other times you check you can't find them lower than $20/each with shipping you have to...
  7. H

    Pari Nebulizers

    Always check at amazon.com-- they sell from various vendors and will have unexpected good deals. You never know what you will find until you look- I've gotten them as low as $15/each with free shipping but other times you check you can't find them lower than $20/each with shipping you have to...
  8. H

    Pari Nebulizers

    Always check at amazon.com-- they sell from various vendors and will have unexpected good deals. You never know what you will find until you look- I've gotten them as low as $15/each with free shipping but other times you check you can't find them lower than $20/each with shipping you have to...
  9. H

    Suspected CF-looking for information

    I believe Bill's second mutation is one that would only have been found with that full sequencing and there are many others like that here. He is correct in that this testing is far superior! The one to ask for is "Ambry Amplified for CF w/deletions and duplications." They were the first and are...
  10. H

    Suspected CF-looking for information

    I believe Bill's second mutation is one that would only have been found with that full sequencing and there are many others like that here. He is correct in that this testing is far superior! The one to ask for is "Ambry Amplified for CF w/deletions and duplications." They were the first and are...
  11. H

    Suspected CF-looking for information

    I believe Bill's second mutation is one that would only have been found with that full sequencing and there are many others like that here. He is correct in that this testing is far superior! The one to ask for is "Ambry Amplified for CF w/deletions and duplications." They were the first and are...
  12. H

    Suspected CF-looking for information

    I'm sorry no one caught your post sooner- welcome to our forums, but sorry you needed to come here. <br> <br>Your daughter does have a lot going on- it is a good idea to have her worked up. I'm sorry she went through so much illness as a child that was let go without adequate treatment. Nasal...
  13. H

    Suspected CF-looking for information

    I'm sorry no one caught your post sooner- welcome to our forums, but sorry you needed to come here. <br> <br>Your daughter does have a lot going on- it is a good idea to have her worked up. I'm sorry she went through so much illness as a child that was let go without adequate treatment. Nasal...
  14. H

    Suspected CF-looking for information

    I'm sorry no one caught your post sooner- welcome to our forums, but sorry you needed to come here. <br> <br>Your daughter does have a lot going on- it is a good idea to have her worked up. I'm sorry she went through so much illness as a child that was let go without adequate treatment. Nasal...
  15. H

    Sweat test exact numbers

    If his pediatrician was the one to run the stool test, it was not likely to be one for pancreatic insufficiency but rather one for bacteria, etc. You want the one for fecal fat and elastase. Borderline results on the sweat test (such as your son had) combined with other symptoms needed to be...
  16. H

    Sweat test exact numbers

    If his pediatrician was the one to run the stool test, it was not likely to be one for pancreatic insufficiency but rather one for bacteria, etc. You want the one for fecal fat and elastase. Borderline results on the sweat test (such as your son had) combined with other symptoms needed to be...
  17. H

    Sweat test exact numbers

    If his pediatrician was the one to run the stool test, it was not likely to be one for pancreatic insufficiency but rather one for bacteria, etc. You want the one for fecal fat and elastase. <br /> <br />Borderline results on the sweat test (such as your son had) combined with other symptoms...
  18. H

    Need MIC-key help/suggestion & Tobi question

    The extension being able to spin in the hole reduces pulling on the button as they move around. It has never come off while Emily has been hooked up, whether she's been sleeping or running a feed awake and moving around with the backpack on. We don't tape the button or extension directly to her...
  19. H

    Need MIC-key help/suggestion & Tobi question

    The extension being able to spin in the hole reduces pulling on the button as they move around. It has never come off while Emily has been hooked up, whether she's been sleeping or running a feed awake and moving around with the backpack on. We don't tape the button or extension directly to her...
  20. H

    Need MIC-key help/suggestion & Tobi question

    The extension being able to spin in the hole reduces pulling on the button as they move around. It has never come off while Emily has been hooked up, whether she's been sleeping or running a feed awake and moving around with the backpack on. We don't tape the button or extension directly to her...
Top