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  1. H

    Confused! Son newly diagnosed

    Were all of the sweat tests done at the same hospital? It is vital that they be done at a lab accredited by the cf foundation (in other words- affiliated with a CF center.) They are the only ones that have enough experience to do the tests correctly. I agree with the above post where you were...
  2. H

    Confused! Son newly diagnosed

    Were all of the sweat tests done at the same hospital? It is vital that they be done at a lab accredited by the cf foundation (in other words- affiliated with a CF center.) They are the only ones that have enough experience to do the tests correctly. I agree with the above post where you were...
  3. H

    Confused! Son newly diagnosed

    Were all of the sweat tests done at the same hospital? It is vital that they be done at a lab accredited by the cf foundation (in other words- affiliated with a CF center.) They are the only ones that have enough experience to do the tests correctly. <br /> <br />I agree with the above post...
  4. H

    Fundraising

    That is a really good point, Kate. The accredited care centers that those with CF are able to use would NOT be there, and would not have the standards they do (or the registry they do) without the CFF.
  5. H

    Fundraising

    That is a really good point, Kate. The accredited care centers that those with CF are able to use would NOT be there, and would not have the standards they do (or the registry they do) without the CFF.
  6. H

    Fundraising

    That is a really good point, Kate. The accredited care centers that those with CF are able to use would NOT be there, and would not have the standards they do (or the registry they do) without the CFF.
  7. H

    Acapella

    The acapella can be used by young children but it requires a focused breathing technique in order to be an effective method of airway clearance. My daughter just had a session with the PT at clinic last week working with the acapella (she's had hers for a while but it's been more recent that we...
  8. H

    Acapella

    The acapella can be used by young children but it requires a focused breathing technique in order to be an effective method of airway clearance. My daughter just had a session with the PT at clinic last week working with the acapella (she's had hers for a while but it's been more recent that we...
  9. H

    Acapella

    The acapella can be used by young children but it requires a focused breathing technique in order to be an effective method of airway clearance. My daughter just had a session with the PT at clinic last week working with the acapella (she's had hers for a while but it's been more recent that we...
  10. H

    Fundraising

    <div class="FTQUOTE"><begin quote>So the millions of dollars that we break our backs to raise money for is going to line the pockets of pharmaceutical companies then?</end quote></div> Who else is going to forward the development of the what... 20? 30? treatments being worked on in the drug...
  11. H

    Fundraising

    <div class="FTQUOTE"><begin quote>So the millions of dollars that we break our backs to raise money for is going to line the pockets of pharmaceutical companies then?</end quote> Who else is going to forward the development of the what... 20? 30? treatments being worked on in the drug pipeline...
  12. H

    Fundraising

    <div class="FTQUOTE"><begin quote>So the millions of dollars that we break our backs to raise money for is going to line the pockets of pharmaceutical companies then?</end quote> <br />Who else is going to forward the development of the what... 20? 30? treatments being worked on in the drug...
  13. H

    ADHD Medication

    The enzymes will not change how the medication works- they work the same way his own pancreatic enzymes would, to digest food. Oral medications are made to be broken down and absorbed in this environment and be effective. :-) To get the best effect, you'll want to give it to him early in the...
  14. H

    ADHD Medication

    The enzymes will not change how the medication works- they work the same way his own pancreatic enzymes would, to digest food. Oral medications are made to be broken down and absorbed in this environment and be effective. :-) To get the best effect, you'll want to give it to him early in the...
  15. H

    ADHD Medication

    The enzymes will not change how the medication works- they work the same way his own pancreatic enzymes would, to digest food. Oral medications are made to be broken down and absorbed in this environment and be effective. :-) <br /> <br />To get the best effect, you'll want to give it to him...
  16. H

    Using a transformer with the vest?

    I would definitely contact the vest manufacturer for their suggestion- they will know how to safely use it where you are and can tell you how to get what you need- and by going through the vest company directly, you can find out what needs to be done so you don't risk voiding your warranty on...
  17. H

    Using a transformer with the vest?

    I would definitely contact the vest manufacturer for their suggestion- they will know how to safely use it where you are and can tell you how to get what you need- and by going through the vest company directly, you can find out what needs to be done so you don't risk voiding your warranty on...
  18. H

    Using a transformer with the vest?

    I would definitely contact the vest manufacturer for their suggestion- they will know how to safely use it where you are and can tell you how to get what you need- and by going through the vest company directly, you can find out what needs to be done so you don't risk voiding your warranty on...
  19. H

    Spray Parks???? Not Waterpark

    Our dr recommended keeping a strong-flavored drink nearby for Emily to sip on while she did hypersal- whatever she liked that had a strong flavor that would help clear the taste from her mouth and soothe her throat. As it turns out, Emily LOVES the hypersal and licks the mask, tries to drink it...
  20. H

    Spray Parks???? Not Waterpark

    Our dr recommended keeping a strong-flavored drink nearby for Emily to sip on while she did hypersal- whatever she liked that had a strong flavor that would help clear the taste from her mouth and soothe her throat. As it turns out, Emily LOVES the hypersal and licks the mask, tries to drink it...
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