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You can open the capsules into a spoon and have your son wash it down with a drink. He'd probably be less likely to chew them this way. I started doing this when I was around your sons age instead of applesauce. Make sure the beads aren't too small and don't get stuck to the sides of his mouth...

I too used Colistin in that way. We used a syringe to put the sterile water into the little bottle of Colistin powder, then gently mixed it together by 'swooshing' the bottle around. Then, we used the syringe again to transfer it to the nebulizer cup. Sometimes Colistin is very foamy in the...

Hi, I'm Coll (short for Colleen- I'm a girl, clarifying just because there's been some confusion LOL), I'm 15 and in the 10th grade. I'm the manager of the field hockey team, am in band and also on the debate team. Most of my free time I hang out with my friends, and my mom cause she's pretty...

Well since I had meconium ileus, they sort of had a hunch that I may have CF. I did have one sweat test though, when I was an infant that confirmed CF.

John, You seem to be talking about a skin infection caused by mycobacterium. I think the majority of people on this form are talking about a respiratory infection caused by the MAC; it is a forum for people with cystic fibrosis, which is a genetic disease, which among other things, causes thick...

Hi Nicole, I had a G-Tube put in this April. I think it took a good 2 weeks until my stomach was no longer sore. I don't remmeber a constant pain really- it mostly hurt a lot when I coughed and also, with stomach acid leaking from around the site, it was very tender/raw. Mine apparantely healed...

LOL, I am, in fact, a girl. Coll is short for Colleen, but no one really calls me Colleen. Thanks for the suggestions

Coll is short for Colleen, though hardly anyone calls me by my full name. <img src="i/expressions/face-icon-small-smile.gif" border="0">

I'm currently in the hospital, and not suprisingly, am a little bit bored. I was just wondering how everyone else passes time in the hospital. I've been reading a lot, but any other ideas are appareciated

I've always been under the impression that Zithromax is used in CF primarily as an anti-inflammatory as opposed to an antibiotic. That's why Cfers are on it continously. Anyone else hear differntly?

I wouldn't say the toilet concept is far out there- studies have shown that toilet water get spawned up to ten feet away from the toilet when it is flushed. Obvioulsy if your toilet and sink aren't in the same room (although I alway thought most bathrooms were laid out in that way) , this...

I was around 4 or 5 years old when I first cultured pseudomonas. Most clinic do a sputum culture at every visit to see what bacterias are growing. For older people, this is just done by coughing up mucus. But younger kids who can't cough properly yet usually get a throat swab. My mom says I...

Iagree that some people go to far in trying to protect their CF children, but I don't think this is a case of that. Toothbrushes are really gross when you think about them- they sit a few feet awayt from the toilet (which spews particles onto them every time they are flushed), and damp places...

Some scientists now believe that there is a modifying gene aside from the genes that actually cause CF that determine the severity of the disease. They started looking into something like this after they saw families where siblings had the same mutations, yet different severities of illness

I've been gone for a few days (internet access being set up in hospital room), and was surprised to see what has gone on on this thread. The fact is, fake posts are a problem on internwt groups of any kind, and like other people said, this website makes it fairly clear that CF is genetic. Anyone...

Hi, Have you tried cForward.com? There is also a website run by a patient that has TONS of links on it-- someone recently posted the address of it, but I'm not sure in which thread on here. Good luck

When there have been babies (including preemies) born in my family, my doctors have known about it and no one has told me to be careful around them because of pseudomonas. Obviously, it's good to keep your hands clean around them (cause of their weaker immune systems), and not to cough on them-...

I've seen Milk Thistle for sale at our local Whole Foods supermarket (for those who don't have Whole Foods in their area, Whole Foods is an organic/health food supermarket with an extensive herbal/natural supplements section). I'd imagine any store like this would also carry it. Of course, if...

I don't know from personal experience, but from what other people have said on this forum, anything between 40-60 is considered borderline. Caren, maybe your son had a test with different measurements or something?

I don't know from personal experience, but from what other people have said on this forum, anything between 40-60 is considered borderline. Caren, maybe your son had a test with different measurements or something?