Search results

I actually didn't even remember what I said, so at first I was confused by Emily agreeing with me LOL. I never bought into original sin, not even thinking about it in relation to CF. I just thought it was so ridiculous that a baby who died before being baptized would sit in Hell or Purgatory...

I actually didn't even remember what I said, so at first I was confused by Emily agreeing with me LOL. I never bought into original sin, not even thinking about it in relation to CF. I just thought it was so ridiculous that a baby who died before being baptized would sit in Hell or Purgatory...

Definitely keep the updates coming! <img src="i/expressions/face-icon-small-smile.gif" border="0"> It does seem a bit funny that you don't know the gender, but do know of the CF- it was sort of similar for my family- after they spotted the meconium ileus, my mom got more frequent sonograms, and...

Definitely keep the updates coming! <img src="i/expressions/face-icon-small-smile.gif" border="0"> It does seem a bit funny that you don't know the gender, but do know of the CF- it was sort of similar for my family- after they spotted the meconium ileus, my mom got more frequent sonograms, and...

Allan, Congratulations! As far as I know, severity cannot be determined prenatally, or even once the baby is born (do you know if its a little boy or girl?). You sort of just find out as you go along. As you may or may not know, 10% of CF babies (including myself) are born with meconium ileus...

Allan, Congratulations! As far as I know, severity cannot be determined prenatally, or even once the baby is born (do you know if its a little boy or girl?). You sort of just find out as you go along. As you may or may not know, 10% of CF babies (including myself) are born with meconium ileus...

I've cultured pseudomonas for about 11 years now. My mom says it was a huge emotional shock for her, and the nebulizers were an adjustment. Pseudomonas isn't the death sentence it used to be, it's just another part of CF- a manageable part. <img src="i/expressions/face-icon-small-happy.gif"...

I've cultured pseudomonas for about 11 years now. My mom says it was a huge emotional shock for her, and the nebulizers were an adjustment. Pseudomonas isn't the death sentence it used to be, it's just another part of CF- a manageable part. <img src="i/expressions/face-icon-small-happy.gif"...

Correct me if I'm wrong, but this won't help people who already culture pseudomonas, right? *Sigh* Worthless for me then LOL- but sounds promising for people who haven't cultured it.

Correct me if I'm wrong, but this won't help people who already culture pseudomonas, right? *Sigh* Worthless for me then LOL- but sounds promising for people who haven't cultured it.

1. On a sonogram, they actually saw my meconium ileus, and at that point the person doing the sonogram asked my mom if there was a history of CF. They said it would either be CF, or just a congenital thing, and it turned out to be CF. I was delivered 2 weeks early by C-section and had 4...

1. On a sonogram, they actually saw my meconium ileus, and at that point the person doing the sonogram asked my mom if there was a history of CF. They said it would either be CF, or just a congenital thing, and it turned out to be CF. I was delivered 2 weeks early by C-section and had 4...

<blockquote>Quote<br><hr>i was in your place 21months ago the only difference is i'm married i think its just as hard you will be fine and able to do what ever it takes to get thru the bad and move on to the good kepp posting there is allot of help out there. <hr></blockquote> While it goes...

<blockquote>Quote<br><hr>i was in your place 21months ago the only difference is i'm married i think its just as hard you will be fine and able to do what ever it takes to get thru the bad and move on to the good kepp posting there is allot of help out there. <hr></blockquote> While it goes...

The midday treatment is hard- if I'm feeling a bit down healthwise, I do them, and it feels like I'm scheduling my life around treatments, not the other way around. The only thing I can think of, depending on how long Murren naps, is to do the treatment when you first put her down, and then take...

The midday treatment is hard- if I'm feeling a bit down healthwise, I do them, and it feels like I'm scheduling my life around treatments, not the other way around. The only thing I can think of, depending on how long Murren naps, is to do the treatment when you first put her down, and then take...

Let me just second what Emily said, that it is very possible for your daughter to have CF, even with no family history. CF was only identified as a disease in 1938, so it's not as if there is a ton of history to look at anyway. You're right, your doctor may be erring on the side of caution...

Let me just second what Emily said, that it is very possible for your daughter to have CF, even with no family history. CF was only identified as a disease in 1938, so it's not as if there is a ton of history to look at anyway. You're right, your doctor may be erring on the side of caution...

I'm with everyone else that now is the best time to tell him. There's no need to tell him it is a life threatening disease, like Teri said, and because he is so young, the thought of death will probably never cross his mind, as it might when he gets a little older. I know of a boy who was 16...

I'm with everyone else that now is the best time to tell him. There's no need to tell him it is a life threatening disease, like Teri said, and because he is so young, the thought of death will probably never cross his mind, as it might when he gets a little older. I know of a boy who was 16...