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  1. T

    Dreams

    Very interesting topic! I love it. I don't always have CF in my dreams, but in most I do. I have a re-occurring nightmare that I go on vacation and forget ALL of my medicine, vest, nebs etc. Terror sets in and I immediately start trying to figure out how I'm going to get all of these things...
  2. T

    Dreams

    Very interesting topic! I love it. I don't always have CF in my dreams, but in most I do. I have a re-occurring nightmare that I go on vacation and forget ALL of my medicine, vest, nebs etc. Terror sets in and I immediately start trying to figure out how I'm going to get all of these things...
  3. T

    Dreams

    Very interesting topic! I love it. <br /> <br />I don't always have CF in my dreams, but in most I do. I have a re-occurring nightmare that I go on vacation and forget ALL of my medicine, vest, nebs etc. Terror sets in and I immediately start trying to figure out how I'm going to get all of...
  4. T

    Hypertonic Saline copay

    Hey everyone... I have BCBS and for a 30 day supply I pay $9 for generics, $28 brand, and $47 specialty drugs. My only meds that fall under the specialty category are Pulmozyme, Tobi, Cayston and Hypersal. Does anyone else's insurance put hyper-sal into their "specialty drug" or highest copay...
  5. T

    Hypertonic Saline copay

    Hey everyone... I have BCBS and for a 30 day supply I pay $9 for generics, $28 brand, and $47 specialty drugs. My only meds that fall under the specialty category are Pulmozyme, Tobi, Cayston and Hypersal. Does anyone else's insurance put hyper-sal into their "specialty drug" or highest copay...
  6. T

    Hypertonic Saline copay

    Hey everyone... <br /> <br />I have BCBS and for a 30 day supply I pay $9 for generics, $28 brand, and $47 specialty drugs. My only meds that fall under the specialty category are Pulmozyme, Tobi, Cayston and Hypersal. Does anyone else's insurance put hyper-sal into their "specialty drug" or...
  7. T

    LightNLife/Lauren

    Thanks for reminding us of Lauren, Debbi. Hard to believe it has been a year already. I think of Lauren often. Like LouLou, I found Lauren's faith inspiring and learned so much from her about life, love, marriage, and faith. I hope people caught Brad's post in the partners section a couple...
  8. T

    LightNLife/Lauren

    Thanks for reminding us of Lauren, Debbi. Hard to believe it has been a year already. I think of Lauren often. Like LouLou, I found Lauren's faith inspiring and learned so much from her about life, love, marriage, and faith. I hope people caught Brad's post in the partners section a couple...
  9. T

    LightNLife/Lauren

    Thanks for reminding us of Lauren, Debbi. Hard to believe it has been a year already. <br /> <br />I think of Lauren often. Like LouLou, I found Lauren's faith inspiring and learned so much from her about life, love, marriage, and faith. <br /> <br />I hope people caught Brad's post in the...
  10. T

    ever feel like IVs are making you feel worse?

    Yes Erin, I know exactly what you are talking about! This has def happened to me before where you get to the point where you feel like the IV's are actually counterproductive! They have run their course and beat down the infection in your lungs, but now are just wreaking havoc on the rest of...
  11. T

    ever feel like IVs are making you feel worse?

    Yes Erin, I know exactly what you are talking about! This has def happened to me before where you get to the point where you feel like the IV's are actually counterproductive! They have run their course and beat down the infection in your lungs, but now are just wreaking havoc on the rest of...
  12. T

    ever feel like IVs are making you feel worse?

    Yes Erin, I know exactly what you are talking about! This has def happened to me before where you get to the point where you feel like the IV's are actually counterproductive! They have run their course and beat down the infection in your lungs, but now are just wreaking havoc on the rest of...
  13. T

    How do you make it work??

    Hi Khristina, Thanks a bunch for posting this question. I really hope you get some replies because this is something I struggle with myself. I have been a "housewife" now for almost two years. I find that I actually seem to get LESS done around the house now than I did when I was working! I...
  14. T

    How do you make it work??

    Hi Khristina, Thanks a bunch for posting this question. I really hope you get some replies because this is something I struggle with myself. I have been a "housewife" now for almost two years. I find that I actually seem to get LESS done around the house now than I did when I was working! I...
  15. T

    How do you make it work??

    Hi Khristina, <br /> <br />Thanks a bunch for posting this question. I really hope you get some replies because this is something I struggle with myself. I have been a "housewife" now for almost two years. I find that I actually seem to get LESS done around the house now than I did when I was...
  16. T

    times a day you do pulmozyme

    Hey Jeana, thanks for posting this. I have been wondering the same thing lately. I have done Pulmozyme once daily since it was approved back in the day. I just recently started noticing that some people use it twice daily. I'm curious about how doctors make the decision to use twice daily...
  17. T

    times a day you do pulmozyme

    Hey Jeana, thanks for posting this. I have been wondering the same thing lately. I have done Pulmozyme once daily since it was approved back in the day. I just recently started noticing that some people use it twice daily. I'm curious about how doctors make the decision to use twice daily...
  18. T

    times a day you do pulmozyme

    Hey Jeana, thanks for posting this. I have been wondering the same thing lately. I have done Pulmozyme once daily since it was approved back in the day. I just recently started noticing that some people use it twice daily. I'm curious about how doctors make the decision to use twice daily...
  19. T

    Has DAFCF helped you???

    I would love to help Julie! Now lets see if I can still compose an actual written letter as opposed to an email! LOL! When would you like these by? I have quite a bit going on right now but will definitely try to do it soon! Take Care, Autumn
  20. T

    Has DAFCF helped you???

    I would love to help Julie! Now lets see if I can still compose an actual written letter as opposed to an email! LOL! When would you like these by? I have quite a bit going on right now but will definitely try to do it soon! Take Care, Autumn
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