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  1. R

    Flu Mist Clinic at my daughter's school

    I will try to tackle this question. First off, I would ask either your daughter's pediatrician or CF doc what their opinion is. I would get the girls their flu shots BUT that will not be enough time for any immunity to kick in. I would think it takes at least 7-10 days before immunity starts...
  2. R

    Flu Mist Clinic at my daughter's school

    I will try to tackle this question. First off, I would ask either your daughter's pediatrician or CF doc what their opinion is. I would get the girls their flu shots BUT that will not be enough time for any immunity to kick in. I would think it takes at least 7-10 days before immunity starts...
  3. R

    Flu Mist Clinic at my daughter's school

    I will try to tackle this question. First off, I would ask either your daughter's pediatrician or CF doc what their opinion is. I would get the girls their flu shots BUT that will not be enough time for any immunity to kick in. I would think it takes at least 7-10 days before immunity starts...
  4. R

    Need suggestions

    My daughter with CF was actually easier to potty train than my son without CF. For my daughter with Cf we did a reward system. A special treat after going on the potty. A sticker or piece of candy. My son without CF was tough. My husband had to take the lead; basically spent the weekend...
  5. R

    Need suggestions

    My daughter with CF was actually easier to potty train than my son without CF. For my daughter with Cf we did a reward system. A special treat after going on the potty. A sticker or piece of candy. My son without CF was tough. My husband had to take the lead; basically spent the weekend...
  6. R

    Need suggestions

    My daughter with CF was actually easier to potty train than my son without CF. For my daughter with Cf we did a reward system. A special treat after going on the potty. A sticker or piece of candy. My son without CF was tough. My husband had to take the lead; basically spent the weekend...
  7. R

    504 plan for 3rd grader

    Thank you for your input! I need to get this officially set up. Most of these things are in place but not in an official 504 plan. The school has been fine with accomadations needed. The issue I had is because my daughter is performing at or above grade level; requesting a tutor gets me...
  8. R

    504 plan for 3rd grader

    Thank you for your input! I need to get this officially set up. Most of these things are in place but not in an official 504 plan. The school has been fine with accomadations needed. The issue I had is because my daughter is performing at or above grade level; requesting a tutor gets me...
  9. R

    504 plan for 3rd grader

    Thank you for your input! I need to get this officially set up. Most of these things are in place but not in an official 504 plan. The school has been fine with accomadations needed. The issue I had is because my daughter is performing at or above grade level; requesting a tutor gets me...
  10. R

    Creon cost

    yikes. A couple things I would do: contact your CF clinic and see if they have any Creon samples..Our clinic always seems to have samples for enzymes they may be able to give you. i do not know about Signa insurance but speak with your social worker at the CF clinic. Also, contact Creon and...
  11. R

    Creon cost

    yikes. A couple things I would do: contact your CF clinic and see if they have any Creon samples..Our clinic always seems to have samples for enzymes they may be able to give you. i do not know about Signa insurance but speak with your social worker at the CF clinic. Also, contact Creon and...
  12. R

    Creon cost

    yikes. A couple things I would do: contact your CF clinic and see if they have any Creon samples..Our clinic always seems to have samples for enzymes they may be able to give you. i do not know about Signa insurance but speak with your social worker at the CF clinic. Also, contact Creon and...
  13. R

    504 plan for 3rd grader

    So, My daughter with CF is in 3rd grade and we do not have an official 504 plan set up. My daughter had a winter from H#ll being sick in 2nd grade and I don't want a repeat for 3rd grade.<br>My only request for her 504 would be for her to have a tutor in place if she is sick and absent for 3 or...
  14. R

    504 plan for 3rd grader

    So, My daughter with CF is in 3rd grade and we do not have an official 504 plan set up. My daughter had a winter from H#ll being sick in 2nd grade and I don't want a repeat for 3rd grade.<br>My only request for her 504 would be for her to have a tutor in place if she is sick and absent for 3 or...
  15. R

    504 plan for 3rd grader

    So, My daughter with CF is in 3rd grade and we do not have an official 504 plan set up. My daughter had a winter from H#ll being sick in 2nd grade and I don't want a repeat for 3rd grade.<br>My only request for her 504 would be for her to have a tutor in place if she is sick and absent for 3 or...
  16. R

    working to correct Delta F508

    http://www.cff.org/aboutCFFoundation/NewsEvents/11-16-Genzyme-and-CFFT-to-Collaborate.cfm
  17. R

    working to correct Delta F508

    http://www.cff.org/aboutCFFoundation/NewsEvents/11-16-Genzyme-and-CFFT-to-Collaborate.cfm
  18. R

    working to correct Delta F508

    http://www.cff.org/aboutCFFoundation/NewsEvents/11-16-Genzyme-and-CFFT-to-Collaborate.cfm
  19. R

    Why doesn't it seem like doctors are super aggressive with sinuses?

    It also may depend on your clinic/CF doc. Some may be more aggressive than others. I agree that the sinuses feed the lungs. My daughter was having a lot of issues when she was 2 or so, her regular pediatrician ordered a sinus CT, which I can't remember what it showed but it was not normal...
  20. R

    Why doesn't it seem like doctors are super aggressive with sinuses?

    It also may depend on your clinic/CF doc. Some may be more aggressive than others. I agree that the sinuses feed the lungs. My daughter was having a lot of issues when she was 2 or so, her regular pediatrician ordered a sinus CT, which I can't remember what it showed but it was not normal...
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